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» Vestibulectomy
Fri Aug 18, 2017 12:39 pm by Hopeitworks

» Anyone been to see Dr.Claire Bailey in Birmingham?
Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

» Pain management - what works for me
Sat Aug 12, 2017 9:58 am by sj17

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 0

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0


Two things... IBS & Periods.

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Two things... IBS & Periods.

Post  JemimaSurrender on Thu Dec 08, 2011 12:05 pm

First of all...

For the last two days I have been beyond sore. Most notable is the extreme burning pain whenever I sit down. Generally I get pain when I'm sat leaning forward (like at the dinner table, or at a desk) but it's more of an ache, like a bruise. But for some reason, as of yesterday afternoon, it's been burning like mad, stinging, and is very, very tender. It's also been very itchy, but, as always, only around the vestibule.

Now, I was just wondering if there's any link between vestibulodynia and your menstruation cycle? It's something I'd never really considered before, and as I'm not taking the pill I'd kind of ruled any hormone changes out. But I realised I should be due on in about a weeks time, and my skin has just started getting spotty again. I don't usually notice until I actually start, then I think "oh, so that's why I've been covered in spots for the last week". But I thought... If my hormone changes affect my skin, than I guess it could do the same down there, right?

Does anyone know anymore about it?

Moving on to... IBS! Yay. (excuse any grossness... I'm sorry!)

For nearly 4 years I've had a change in *ahem* toilet habits. Instead of experiencing the normal kind of, erm, stool (eek!) I've consistently had very soft, brightly coloured ones. Now, it was at this time four years ago that I started having regular sex, I started taking the pill, and I became vegetarian, so as a result I never really bothered looking into it as I just thought it could be something like that causing the change, and as it wasn't having that much of an effect on my day to day life, I ignored it. Until now.

Looking over the forum I spotted something about IBS being link to VV. Can anyone tell me more about it?

I've thought in the past I may have had IBS, but never looked it up really as I'd assumed it's only really diagnosed by what you tell the doctor you have, as in, there's no actual tests for it or anything.

Anyway... I also read on here something about IBS, carbs & VV? I'm a little mixed up about it all but maybe some of you VV docs in waiting can help me! Basically, VV started for me, really, 3 years ago (ibs like symptoms 4) and I am absolutely CRAZY for carbs! I eat bread atleast once a day, sometimes twice, and live off things like pasta, potatoes and all that yummy stuff.

Now... Is this bad??? Could my bread obsession me exacerbating my symptoms? Could it be aiding the IBS (if I have it)? And how on Earth do I suggest this to my doctor, along with the 200 other things I've got to bring up with her, in my next 10 minute appointment??

Any suggestions/advice/tips for any of the above would me greatly received! Thanks guyyyyys.

JemimaSurrender

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Re: Two things... IBS & Periods.

Post  Sarah001 on Thu Dec 08, 2011 12:13 pm

They have found that lots of women with V have things like IBS but they don't know why, typical. Your carb eating could be playing a role if you have a wheat intolerance or gluten sensitivity but the only way to know for sure is to cut out carbs and see what happens to your IBS.

As for V and menstrual cycles there is often a connection but again they don't really know why, right before my period I have a reduction in symptoms which then increase again a couple of days into my period but alot of the women on here get worse right before a period too. As you can see there's no way they can know why for sure as it varies from woman to woman how and when we are affected by our cycles.

It is possible for a food allergy to cause V though so it might be an idea to reduce your carbs to see if it helps, you could start by removing one at a time to see what happens so you can pinpoint which one is to blame (if any) or cut them all out and then if it works gradually reintroduce them one at a time to see if one triggers symptoms again. To be honest you're probably better trying this on your own and using your doctor for other possible causes rather than just have her/him tell you the same thing, that way you get good value at your drs appointments as well as trying things yourself.
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Sarah001

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Re: Two things... IBS & Periods.

Post  JemimaSurrender on Thu Dec 08, 2011 12:18 pm

Ahh, that's great, thanks so much.

Sometimes you read so many different things that they get all mixed up in your head!

I'll try and ween myself off all these loooovely carbs then. Is it still possible to get allergy testing done? I know Holland & Barrett used to do it but they've stopped now, although the ladies in there did suggest another place for me to try. But I heard testing's not very reliable really and it just tends to give a result of an allergy towards anything you've just eaten that's still in your stomach!

I'll definitely try and cut things out anyway and see what helps, but I'm scared I'll be breadless for life. Bye bye wholemeal... It's been nice knowing ya!

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Re: Two things... IBS & Periods.

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