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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 19

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2

New here, my story and looking for advice

Wed Apr 26, 2017 9:02 am by rachiecakes

Hi All!

I was really hoping to get some feedback from everyone here - it's very hard dealing with an issue like this because no one really understands what I'm going through!

Im 28 years old I've had interstitial cystitis for 3 years - but never an vaginal issues. About 6 months ago I got a yeast infection following a course of antibiotics - similarly I developed IC after a bad UTI. The itching …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 2

Male visitor

Wed Jan 18, 2017 11:19 pm by outsider

Hello!

I am a 25 year old guy who has erectile dysfunction following an injury a few years ago. I am here because I think that men and women with sexual dysfunction could benefit from dating each other. My experience has been that women have lost interest when they found out that penetrative sex was not possible with me.
So I am interested in learning more about female sexual disorders. Do young …

Comments: 3

New Here: Question/My Story

Mon Apr 03, 2017 2:00 am by overit14

Hi everyone. I came across this site by Googling "vulvar pain support". I feel like my case is different than most I read about so I was wondering if anyone else here experiences this in the way that I do.

This started in 2012 and has happened off and on since. I get really, really red and it's very painful, swollen and burns. Sometimes it may be a little itchy, but mostly it just …

Comments: 6


Two things... IBS & Periods.

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Two things... IBS & Periods.

Post  JemimaSurrender on Thu Dec 08, 2011 12:05 pm

First of all...

For the last two days I have been beyond sore. Most notable is the extreme burning pain whenever I sit down. Generally I get pain when I'm sat leaning forward (like at the dinner table, or at a desk) but it's more of an ache, like a bruise. But for some reason, as of yesterday afternoon, it's been burning like mad, stinging, and is very, very tender. It's also been very itchy, but, as always, only around the vestibule.

Now, I was just wondering if there's any link between vestibulodynia and your menstruation cycle? It's something I'd never really considered before, and as I'm not taking the pill I'd kind of ruled any hormone changes out. But I realised I should be due on in about a weeks time, and my skin has just started getting spotty again. I don't usually notice until I actually start, then I think "oh, so that's why I've been covered in spots for the last week". But I thought... If my hormone changes affect my skin, than I guess it could do the same down there, right?

Does anyone know anymore about it?

Moving on to... IBS! Yay. (excuse any grossness... I'm sorry!)

For nearly 4 years I've had a change in *ahem* toilet habits. Instead of experiencing the normal kind of, erm, stool (eek!) I've consistently had very soft, brightly coloured ones. Now, it was at this time four years ago that I started having regular sex, I started taking the pill, and I became vegetarian, so as a result I never really bothered looking into it as I just thought it could be something like that causing the change, and as it wasn't having that much of an effect on my day to day life, I ignored it. Until now.

Looking over the forum I spotted something about IBS being link to VV. Can anyone tell me more about it?

I've thought in the past I may have had IBS, but never looked it up really as I'd assumed it's only really diagnosed by what you tell the doctor you have, as in, there's no actual tests for it or anything.

Anyway... I also read on here something about IBS, carbs & VV? I'm a little mixed up about it all but maybe some of you VV docs in waiting can help me! Basically, VV started for me, really, 3 years ago (ibs like symptoms 4) and I am absolutely CRAZY for carbs! I eat bread atleast once a day, sometimes twice, and live off things like pasta, potatoes and all that yummy stuff.

Now... Is this bad??? Could my bread obsession me exacerbating my symptoms? Could it be aiding the IBS (if I have it)? And how on Earth do I suggest this to my doctor, along with the 200 other things I've got to bring up with her, in my next 10 minute appointment??

Any suggestions/advice/tips for any of the above would me greatly received! Thanks guyyyyys.

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Re: Two things... IBS & Periods.

Post  Sarah001 on Thu Dec 08, 2011 12:13 pm

They have found that lots of women with V have things like IBS but they don't know why, typical. Your carb eating could be playing a role if you have a wheat intolerance or gluten sensitivity but the only way to know for sure is to cut out carbs and see what happens to your IBS.

As for V and menstrual cycles there is often a connection but again they don't really know why, right before my period I have a reduction in symptoms which then increase again a couple of days into my period but alot of the women on here get worse right before a period too. As you can see there's no way they can know why for sure as it varies from woman to woman how and when we are affected by our cycles.

It is possible for a food allergy to cause V though so it might be an idea to reduce your carbs to see if it helps, you could start by removing one at a time to see what happens so you can pinpoint which one is to blame (if any) or cut them all out and then if it works gradually reintroduce them one at a time to see if one triggers symptoms again. To be honest you're probably better trying this on your own and using your doctor for other possible causes rather than just have her/him tell you the same thing, that way you get good value at your drs appointments as well as trying things yourself.
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Sarah001

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Re: Two things... IBS & Periods.

Post  JemimaSurrender on Thu Dec 08, 2011 12:18 pm

Ahh, that's great, thanks so much.

Sometimes you read so many different things that they get all mixed up in your head!

I'll try and ween myself off all these loooovely carbs then. Is it still possible to get allergy testing done? I know Holland & Barrett used to do it but they've stopped now, although the ladies in there did suggest another place for me to try. But I heard testing's not very reliable really and it just tends to give a result of an allergy towards anything you've just eaten that's still in your stomach!

I'll definitely try and cut things out anyway and see what helps, but I'm scared I'll be breadless for life. Bye bye wholemeal... It's been nice knowing ya!

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Re: Two things... IBS & Periods.

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