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» UK Vulvodynia Clinics
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» 8 years and struggling
Thu May 17, 2018 11:22 pm by Kezz

» Vestibulectomy recovery question!
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» Gabapentin Gel. or other topical creams
Thu May 17, 2018 11:55 am by Rosie21

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 5

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14


Two things... IBS & Periods.

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Two things... IBS & Periods.

Post  JemimaSurrender on Thu Dec 08, 2011 12:05 pm

First of all...

For the last two days I have been beyond sore. Most notable is the extreme burning pain whenever I sit down. Generally I get pain when I'm sat leaning forward (like at the dinner table, or at a desk) but it's more of an ache, like a bruise. But for some reason, as of yesterday afternoon, it's been burning like mad, stinging, and is very, very tender. It's also been very itchy, but, as always, only around the vestibule.

Now, I was just wondering if there's any link between vestibulodynia and your menstruation cycle? It's something I'd never really considered before, and as I'm not taking the pill I'd kind of ruled any hormone changes out. But I realised I should be due on in about a weeks time, and my skin has just started getting spotty again. I don't usually notice until I actually start, then I think "oh, so that's why I've been covered in spots for the last week". But I thought... If my hormone changes affect my skin, than I guess it could do the same down there, right?

Does anyone know anymore about it?

Moving on to... IBS! Yay. (excuse any grossness... I'm sorry!)

For nearly 4 years I've had a change in *ahem* toilet habits. Instead of experiencing the normal kind of, erm, stool (eek!) I've consistently had very soft, brightly coloured ones. Now, it was at this time four years ago that I started having regular sex, I started taking the pill, and I became vegetarian, so as a result I never really bothered looking into it as I just thought it could be something like that causing the change, and as it wasn't having that much of an effect on my day to day life, I ignored it. Until now.

Looking over the forum I spotted something about IBS being link to VV. Can anyone tell me more about it?

I've thought in the past I may have had IBS, but never looked it up really as I'd assumed it's only really diagnosed by what you tell the doctor you have, as in, there's no actual tests for it or anything.

Anyway... I also read on here something about IBS, carbs & VV? I'm a little mixed up about it all but maybe some of you VV docs in waiting can help me! Basically, VV started for me, really, 3 years ago (ibs like symptoms 4) and I am absolutely CRAZY for carbs! I eat bread atleast once a day, sometimes twice, and live off things like pasta, potatoes and all that yummy stuff.

Now... Is this bad??? Could my bread obsession me exacerbating my symptoms? Could it be aiding the IBS (if I have it)? And how on Earth do I suggest this to my doctor, along with the 200 other things I've got to bring up with her, in my next 10 minute appointment??

Any suggestions/advice/tips for any of the above would me greatly received! Thanks guyyyyys.

JemimaSurrender

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Re: Two things... IBS & Periods.

Post  Sarah001 on Thu Dec 08, 2011 12:13 pm

They have found that lots of women with V have things like IBS but they don't know why, typical. Your carb eating could be playing a role if you have a wheat intolerance or gluten sensitivity but the only way to know for sure is to cut out carbs and see what happens to your IBS.

As for V and menstrual cycles there is often a connection but again they don't really know why, right before my period I have a reduction in symptoms which then increase again a couple of days into my period but alot of the women on here get worse right before a period too. As you can see there's no way they can know why for sure as it varies from woman to woman how and when we are affected by our cycles.

It is possible for a food allergy to cause V though so it might be an idea to reduce your carbs to see if it helps, you could start by removing one at a time to see what happens so you can pinpoint which one is to blame (if any) or cut them all out and then if it works gradually reintroduce them one at a time to see if one triggers symptoms again. To be honest you're probably better trying this on your own and using your doctor for other possible causes rather than just have her/him tell you the same thing, that way you get good value at your drs appointments as well as trying things yourself.
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Sarah001

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Re: Two things... IBS & Periods.

Post  JemimaSurrender on Thu Dec 08, 2011 12:18 pm

Ahh, that's great, thanks so much.

Sometimes you read so many different things that they get all mixed up in your head!

I'll try and ween myself off all these loooovely carbs then. Is it still possible to get allergy testing done? I know Holland & Barrett used to do it but they've stopped now, although the ladies in there did suggest another place for me to try. But I heard testing's not very reliable really and it just tends to give a result of an allergy towards anything you've just eaten that's still in your stomach!

I'll definitely try and cut things out anyway and see what helps, but I'm scared I'll be breadless for life. Bye bye wholemeal... It's been nice knowing ya!

JemimaSurrender

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Re: Two things... IBS & Periods.

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