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Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 4

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 3

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules


I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

suffering in silence?

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suffering in silence?

Post  missnik1 on Mon Jan 09, 2012 8:59 pm

i feel like ive been suffering in silence for the past couple of years. i have trouble opening up about my issues..my moods definitely reflect my pain though. but no one around me seems to understand because they dont know what im struggling with on a daily basis. i could use some support from others in my same situation, i just turned 23 have had vulvodynia for past 2 years. im also in a long term relationship that is heading south fast thanks to the detrimental effects of this frustrting disorder! i need something to be hopeful about , to look forwrd to, new hope i guess. ive tried seveeral treatments with no relief and im sick and tired of making doctor appointment aftr apointment. i dont have the best of insurances (just state). so i feel like im not getting the best of care either. like my problems are getting brushed aside. i need tips on how to find a good doctor and how to make the most out of my appointments. i get anxious beforehand and feel like i leave a lot of things out during our discussion. and just leave there not feeling any better about myself. how do i open up and make it sound as serious as it really is? i want the doctor to understand my concerns and my pain.


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Re: suffering in silence?

Post  Sarah001 on Tue Jan 10, 2012 7:56 pm

Write it down if you forget stuff then you have the paper as a reminder and a distraction to look at if you struggle to open up. I can't help with the insurance issues becuase I'm in the UK so I don't fully understand it but don't let them fob you off, write it down so you get everything out in the appointment.

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Re: suffering in silence?

Post  ButterflyLiz on Wed Jan 11, 2012 8:06 pm

I second Sarah’s suggestion; I get nervous & forget things too and taking along notes for the doctor is a brilliant way to get around this. If you look at my post on another thread here: http://www.vulvodyniasupportforum.com/t648-my-belated-story you can see the layout I use. I take two copies along to appointments; one to refer to myself and one the doctor can keep in my file. Don’t be afraid to include the psychological impact this condition has had on you. I hope reading around the forum has helped you to feel less alone. There are lots of us out there! x

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Re: suffering in silence?

Post  unga on Fri Feb 17, 2012 1:48 am

hello, I totally understand what you're feeling, after 3 years I have just found a doctor who is understanding and exploring various treatment methods with me. This happened because I pretty much had a breakdown at the reception of the doctors surgery and the receptionist who had seen me there often told me there was a new doctor at the surgery who she thought would be hepful, and she was...this was a stroke of luck, but it shows that they do happen. My advice to you, as some other people have said, is write everything down and then make sure you say it, it's easy to get distracted or to belittle your experience... do not do this, this is a serious situation that affects all facets of your life...tell them everything that has been affected. I hesitate to write this but I have found male doctors to be unhelpful (this is only my experience I am not at all suggesting that a male doctor could not be helpful; sadly one of the ones I saw insinuated that I didn't know how to have intercourse properly, if I wasn't so offended and embarrassed I probably would have punched him), and the most helpful doctors have been young women. I think just being calm and making sure you say everything you want to say is important. best of luck to you Xx


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Re: suffering in silence?

Post  noni on Fri Feb 17, 2012 3:13 am

Hey Miss!

Your dark feelings are normal with this condition. We've all been there.

Have a look around and read about us. We're like sisters on here.


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