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» Anyone been to see Dr.Claire Bailey in Birmingham?
Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Vestibulectomy
Sun Aug 13, 2017 9:54 am by infinitelywondering

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

» Pain management - what works for me
Sat Aug 12, 2017 9:58 am by sj17

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering


I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 0

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0

Issues since 2009

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Issues since 2009

Post  Kam10 on Tue Jan 17, 2012 1:40 am

Hi. I just joined and want to share my story.

My pain isn't usually too severe. I can wear pants and jeans with no problem, and on most days my pain only bothers me when touhed (sex, wiping, inserting tampons etc.). However, I do randomly get shooting pains without touch, almost like a pin prick. I also have flare ups were I have swelling, itchniess, and my pain is worse. At those times sex is usually more painful and pants will start to bother me if they are too tight. Even at my best days there is always some discomfort and sex has rarely been completely pain free since I started having issues. One positive is this started happening when I was engaged and my now husband has been very undertanding (though frustrated I'm sure).

It all started around July of 2009. I had what I thought was a yeast infection. I got some over-the-counter meds before I called my Obgyn. I had an infection the December before and trying over the counter treatments was the first thing my doctor wanted me to do then. So I didn't bother calling him first. The over-the-counter treatments didn't work, so I called my doctor and the nurse perscibed me diflucan. That did help some, but there was still some discomfort. Somthing still wasn't quite right. So I called the doctor and he had me come in the office. He tested me for yeast, bacterial infections, and some other STDs out of standard procedure. All the tests came back negative. On top of all that, he didn't seem interested in helping me anymore and said if I was still having issues to see a genearl doctor. This made me so mad! He didn't even recommend a doctor for me to see and on top of that wanted me to see a generalist.

I did end up seeing a genral doctor becuase I was able to get in faster there than another Obgyn. That doctor did notice some yeast external and gave me a perscription antifungal cream and diflucan. Again, that helped some, but I still had some minor pain. That doctor recommended me to another Obgyn in town. That doctor said I had vestibulitis and performed the Q-tip test on me. He also wanted me to try some topical steroids and hdyocortizone cream. None of those things helped me. The steriod cream actually made things much worse.

That doctor then refferred me to a doctor two hours away who specializes in vulvodynia. I actually ended up getting in with a different doctor, but they are both affliated with the same hospital. My doctor only had a waiting period of a month compared to 4-5 with the other doctor. I was told they both have the same philosophy and treatment methods and worked very close with one another. I decided to take the one with less of a wait. I had my first appoitment with the specialist in Jan. 2010.

Though I like my doctor, I havn't had too much luck with treatment yet. I spent a year and a half being put on different antidepressants. None of them helped, and a lot of them gave me really bothersome side effects. I also was given Lyrica. That didn't do anything for me either. I just started pelvic floor physcial theraphy. When I went in my pelvic floor was really tense and was told I could use theraphy. It's too early to tell if it will help, but I'm hopeful. Plus the doctor is in my town and is really nice. In addition to exercises she advised me to use a spray bottle to rinse after I pee and use aloe femine wipes instead of toliet paper. She also told me of a website where I can get aloe products. I ordered some lube and other products that are safe to use down there. Those things seemed to have help some.

Sorry for the novel. I hope this can help someone. Feel free to ask questions if you have any.

Posts : 32
Join date : 2012-01-16

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