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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 1

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 1

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

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Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist

after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

Comments: 9

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 12

Can A Cut In Vestibule cause Vulvodynia?

Thu Mar 01, 2018 1:07 am by rockylife

Can a cut in the vestibule area cause vulvodynia? Is it possible that some nerve a were damaged that’s why I feel this pain in my area without visible lesions?

Comments: 0

Anyone from New Jersey

Thu Feb 22, 2018 10:47 pm by LindafromNJ

Looking to maybe talk to someone from NJ to see if there are any support groups in this state.

Comments: 3

Issues since 2009

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Issues since 2009

Post  Kam10 on Tue Jan 17, 2012 1:40 am

Hi. I just joined and want to share my story.

My pain isn't usually too severe. I can wear pants and jeans with no problem, and on most days my pain only bothers me when touhed (sex, wiping, inserting tampons etc.). However, I do randomly get shooting pains without touch, almost like a pin prick. I also have flare ups were I have swelling, itchniess, and my pain is worse. At those times sex is usually more painful and pants will start to bother me if they are too tight. Even at my best days there is always some discomfort and sex has rarely been completely pain free since I started having issues. One positive is this started happening when I was engaged and my now husband has been very undertanding (though frustrated I'm sure).

It all started around July of 2009. I had what I thought was a yeast infection. I got some over-the-counter meds before I called my Obgyn. I had an infection the December before and trying over the counter treatments was the first thing my doctor wanted me to do then. So I didn't bother calling him first. The over-the-counter treatments didn't work, so I called my doctor and the nurse perscibed me diflucan. That did help some, but there was still some discomfort. Somthing still wasn't quite right. So I called the doctor and he had me come in the office. He tested me for yeast, bacterial infections, and some other STDs out of standard procedure. All the tests came back negative. On top of all that, he didn't seem interested in helping me anymore and said if I was still having issues to see a genearl doctor. This made me so mad! He didn't even recommend a doctor for me to see and on top of that wanted me to see a generalist.

I did end up seeing a genral doctor becuase I was able to get in faster there than another Obgyn. That doctor did notice some yeast external and gave me a perscription antifungal cream and diflucan. Again, that helped some, but I still had some minor pain. That doctor recommended me to another Obgyn in town. That doctor said I had vestibulitis and performed the Q-tip test on me. He also wanted me to try some topical steroids and hdyocortizone cream. None of those things helped me. The steriod cream actually made things much worse.

That doctor then refferred me to a doctor two hours away who specializes in vulvodynia. I actually ended up getting in with a different doctor, but they are both affliated with the same hospital. My doctor only had a waiting period of a month compared to 4-5 with the other doctor. I was told they both have the same philosophy and treatment methods and worked very close with one another. I decided to take the one with less of a wait. I had my first appoitment with the specialist in Jan. 2010.

Though I like my doctor, I havn't had too much luck with treatment yet. I spent a year and a half being put on different antidepressants. None of them helped, and a lot of them gave me really bothersome side effects. I also was given Lyrica. That didn't do anything for me either. I just started pelvic floor physcial theraphy. When I went in my pelvic floor was really tense and was told I could use theraphy. It's too early to tell if it will help, but I'm hopeful. Plus the doctor is in my town and is really nice. In addition to exercises she advised me to use a spray bottle to rinse after I pee and use aloe femine wipes instead of toliet paper. She also told me of a website where I can get aloe products. I ordered some lube and other products that are safe to use down there. Those things seemed to have help some.

Sorry for the novel. I hope this can help someone. Feel free to ask questions if you have any.

Posts : 32
Join date : 2012-01-16

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