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New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci


I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Issues since 2009

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Issues since 2009

Post  Kam10 on Tue Jan 17, 2012 1:40 am

Hi. I just joined and want to share my story.

My pain isn't usually too severe. I can wear pants and jeans with no problem, and on most days my pain only bothers me when touhed (sex, wiping, inserting tampons etc.). However, I do randomly get shooting pains without touch, almost like a pin prick. I also have flare ups were I have swelling, itchniess, and my pain is worse. At those times sex is usually more painful and pants will start to bother me if they are too tight. Even at my best days there is always some discomfort and sex has rarely been completely pain free since I started having issues. One positive is this started happening when I was engaged and my now husband has been very undertanding (though frustrated I'm sure).

It all started around July of 2009. I had what I thought was a yeast infection. I got some over-the-counter meds before I called my Obgyn. I had an infection the December before and trying over the counter treatments was the first thing my doctor wanted me to do then. So I didn't bother calling him first. The over-the-counter treatments didn't work, so I called my doctor and the nurse perscibed me diflucan. That did help some, but there was still some discomfort. Somthing still wasn't quite right. So I called the doctor and he had me come in the office. He tested me for yeast, bacterial infections, and some other STDs out of standard procedure. All the tests came back negative. On top of all that, he didn't seem interested in helping me anymore and said if I was still having issues to see a genearl doctor. This made me so mad! He didn't even recommend a doctor for me to see and on top of that wanted me to see a generalist.

I did end up seeing a genral doctor becuase I was able to get in faster there than another Obgyn. That doctor did notice some yeast external and gave me a perscription antifungal cream and diflucan. Again, that helped some, but I still had some minor pain. That doctor recommended me to another Obgyn in town. That doctor said I had vestibulitis and performed the Q-tip test on me. He also wanted me to try some topical steroids and hdyocortizone cream. None of those things helped me. The steriod cream actually made things much worse.

That doctor then refferred me to a doctor two hours away who specializes in vulvodynia. I actually ended up getting in with a different doctor, but they are both affliated with the same hospital. My doctor only had a waiting period of a month compared to 4-5 with the other doctor. I was told they both have the same philosophy and treatment methods and worked very close with one another. I decided to take the one with less of a wait. I had my first appoitment with the specialist in Jan. 2010.

Though I like my doctor, I havn't had too much luck with treatment yet. I spent a year and a half being put on different antidepressants. None of them helped, and a lot of them gave me really bothersome side effects. I also was given Lyrica. That didn't do anything for me either. I just started pelvic floor physcial theraphy. When I went in my pelvic floor was really tense and was told I could use theraphy. It's too early to tell if it will help, but I'm hopeful. Plus the doctor is in my town and is really nice. In addition to exercises she advised me to use a spray bottle to rinse after I pee and use aloe femine wipes instead of toliet paper. She also told me of a website where I can get aloe products. I ordered some lube and other products that are safe to use down there. Those things seemed to have help some.

Sorry for the novel. I hope this can help someone. Feel free to ask questions if you have any.

Posts : 32
Join date : 2012-01-16

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