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» Can you guys tell me your experiences with diflucan/Fluconazole?
Today at 1:29 am by ryn207

» So frustrating!!
Today at 1:25 am by ryn207

» Looking for suggestions or encouragement
Today at 1:19 am by ryn207

» Looking for a friend..... and new problems
Yesterday at 10:00 pm by VVSSufferer

» Vestibulectomy recovery question!
Sun Jan 14, 2018 11:37 pm by Kezz

» Prescription creams that work!
Sun Jan 14, 2018 4:46 am by Mintaherb

» Struggling
Sun Jan 14, 2018 4:29 am by Mintaherb

» Went Away and Came Back
Sat Jan 13, 2018 10:56 am by mary jane

» Amitriptyline given for vulvodyina pain
Sat Jan 13, 2018 1:39 am by ryn207

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad

Comments: 5

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules


I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Issues since 2009

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Issues since 2009

Post  Kam10 on Tue Jan 17, 2012 1:40 am

Hi. I just joined and want to share my story.

My pain isn't usually too severe. I can wear pants and jeans with no problem, and on most days my pain only bothers me when touhed (sex, wiping, inserting tampons etc.). However, I do randomly get shooting pains without touch, almost like a pin prick. I also have flare ups were I have swelling, itchniess, and my pain is worse. At those times sex is usually more painful and pants will start to bother me if they are too tight. Even at my best days there is always some discomfort and sex has rarely been completely pain free since I started having issues. One positive is this started happening when I was engaged and my now husband has been very undertanding (though frustrated I'm sure).

It all started around July of 2009. I had what I thought was a yeast infection. I got some over-the-counter meds before I called my Obgyn. I had an infection the December before and trying over the counter treatments was the first thing my doctor wanted me to do then. So I didn't bother calling him first. The over-the-counter treatments didn't work, so I called my doctor and the nurse perscibed me diflucan. That did help some, but there was still some discomfort. Somthing still wasn't quite right. So I called the doctor and he had me come in the office. He tested me for yeast, bacterial infections, and some other STDs out of standard procedure. All the tests came back negative. On top of all that, he didn't seem interested in helping me anymore and said if I was still having issues to see a genearl doctor. This made me so mad! He didn't even recommend a doctor for me to see and on top of that wanted me to see a generalist.

I did end up seeing a genral doctor becuase I was able to get in faster there than another Obgyn. That doctor did notice some yeast external and gave me a perscription antifungal cream and diflucan. Again, that helped some, but I still had some minor pain. That doctor recommended me to another Obgyn in town. That doctor said I had vestibulitis and performed the Q-tip test on me. He also wanted me to try some topical steroids and hdyocortizone cream. None of those things helped me. The steriod cream actually made things much worse.

That doctor then refferred me to a doctor two hours away who specializes in vulvodynia. I actually ended up getting in with a different doctor, but they are both affliated with the same hospital. My doctor only had a waiting period of a month compared to 4-5 with the other doctor. I was told they both have the same philosophy and treatment methods and worked very close with one another. I decided to take the one with less of a wait. I had my first appoitment with the specialist in Jan. 2010.

Though I like my doctor, I havn't had too much luck with treatment yet. I spent a year and a half being put on different antidepressants. None of them helped, and a lot of them gave me really bothersome side effects. I also was given Lyrica. That didn't do anything for me either. I just started pelvic floor physcial theraphy. When I went in my pelvic floor was really tense and was told I could use theraphy. It's too early to tell if it will help, but I'm hopeful. Plus the doctor is in my town and is really nice. In addition to exercises she advised me to use a spray bottle to rinse after I pee and use aloe femine wipes instead of toliet paper. She also told me of a website where I can get aloe products. I ordered some lube and other products that are safe to use down there. Those things seemed to have help some.

Sorry for the novel. I hope this can help someone. Feel free to ask questions if you have any.

Posts : 32
Join date : 2012-01-16

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