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Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22


I have questions!

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I have questions!

Post  KA12 on Mon Feb 13, 2012 10:16 am

Is it possible to have two different types of vulvodynia?

I just starting having this about 6 months ago and it is getting worse and worse. Two things trigger it. SEX, of course, and bath or soap stuff. However, when it is the bath or soap stuff I get blisters that don't pop and go away in 48-72 hours. I can hardly move and when I do everyone asks me whats wrong because I walk funny. Its very very painful.

The sex pain comes any time I have pressure down there. That means Sex, gyno visits, or even just cleaning inside. The pain sucks and feels raw. It gets worse the more press that is put (ex: Gyno visit is hell). The only time it has greatly messed with the way I walk is with gyno visits or before I realized the cause and had multiple positions sex.

I believe the trigger was a sacrum injury I got around the same time period.

Is it possible for me to have two different types? I feel like I do but since I am with a doctor who does not know anything about this (she is great and willing to learn!!) I need to ask around.

BTW- I do not have herpes blisters! I am STD and everything else you can test for culturally and blood work wise free!!

Thank you for your help

KA12

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Re: I have questions!

Post  Sarah001 on Mon Feb 13, 2012 12:54 pm

Yes, I have both generalised unprovoked Vulvar pain and Vulvar Vestibulitis so you can have both kinds together. I'm not sure about those blisters you mention though, I haven't come across that as a symptom unless there's an infection which you say there isn't or perhaps a reaction to something?
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Sarah001

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Re: I have questions!

Post  Aussie on Tue Feb 14, 2012 1:43 am

Don't wash inside it will make it worse. Perhaps see a dermatologist for the blisters.

I have/had both. provoked and unprovoked Soap triggers me awfully. A stinging feeling. I use something called moogoo. Google it. So gentle and smells nice. Other than that the dove sensitive body wash is pretty good but don't put it in the bath.

Pretty much gone now (I hope it lasts) about 80-95% depending on the day.

GOOD LUCK!!

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Re: I have questions!

Post  shortstuff on Wed Feb 15, 2012 11:21 am

KA12 - I wash with Aveeno baby soap with oatmeal. It's the only wash I can find that does not irritate me. I tried the Dove sensitive, but it made it much worse, even though that was the only soap I'd ever used previously down there. Whenever my pain is really bad, I also bathe with Aveeno Oatmeal Bath. Lukewarm water, not hot water (which may irritate it more I've heard).

Maybe some of these tips could help you too...

shortstuff

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Re: I have questions!

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