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» What's next?
Today at 10:07 am by amyhp

» HELP!! Topical cream?
Mon Apr 16, 2018 5:49 pm by Sad

» Please tell me this can get better
Sun Apr 15, 2018 11:31 am by amf329

» Pressure to have sex.
Sun Apr 15, 2018 2:00 am by Sad

» Vulvodynia and other neurological diseases?
Sat Apr 14, 2018 8:00 pm by wuhujen

» I'M NEW - Do I listen to my gyno who I feel has it wrong?
Sat Apr 14, 2018 7:57 pm by wuhujen

» I wanted to share a resource that has made a huge difference for me
Wed Apr 11, 2018 9:28 pm by amf329

» Loneliness
Wed Apr 11, 2018 11:36 am by sophiarp

» I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone
Fri Apr 06, 2018 4:06 am by Warrior2010

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3


I have questions!

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I have questions!

Post  KA12 on Mon Feb 13, 2012 10:16 am

Is it possible to have two different types of vulvodynia?

I just starting having this about 6 months ago and it is getting worse and worse. Two things trigger it. SEX, of course, and bath or soap stuff. However, when it is the bath or soap stuff I get blisters that don't pop and go away in 48-72 hours. I can hardly move and when I do everyone asks me whats wrong because I walk funny. Its very very painful.

The sex pain comes any time I have pressure down there. That means Sex, gyno visits, or even just cleaning inside. The pain sucks and feels raw. It gets worse the more press that is put (ex: Gyno visit is hell). The only time it has greatly messed with the way I walk is with gyno visits or before I realized the cause and had multiple positions sex.

I believe the trigger was a sacrum injury I got around the same time period.

Is it possible for me to have two different types? I feel like I do but since I am with a doctor who does not know anything about this (she is great and willing to learn!!) I need to ask around.

BTW- I do not have herpes blisters! I am STD and everything else you can test for culturally and blood work wise free!!

Thank you for your help

KA12

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Re: I have questions!

Post  Sarah001 on Mon Feb 13, 2012 12:54 pm

Yes, I have both generalised unprovoked Vulvar pain and Vulvar Vestibulitis so you can have both kinds together. I'm not sure about those blisters you mention though, I haven't come across that as a symptom unless there's an infection which you say there isn't or perhaps a reaction to something?
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Sarah001

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Re: I have questions!

Post  Aussie on Tue Feb 14, 2012 1:43 am

Don't wash inside it will make it worse. Perhaps see a dermatologist for the blisters.

I have/had both. provoked and unprovoked Soap triggers me awfully. A stinging feeling. I use something called moogoo. Google it. So gentle and smells nice. Other than that the dove sensitive body wash is pretty good but don't put it in the bath.

Pretty much gone now (I hope it lasts) about 80-95% depending on the day.

GOOD LUCK!!

Aussie

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Re: I have questions!

Post  shortstuff on Wed Feb 15, 2012 11:21 am

KA12 - I wash with Aveeno baby soap with oatmeal. It's the only wash I can find that does not irritate me. I tried the Dove sensitive, but it made it much worse, even though that was the only soap I'd ever used previously down there. Whenever my pain is really bad, I also bathe with Aveeno Oatmeal Bath. Lukewarm water, not hot water (which may irritate it more I've heard).

Maybe some of these tips could help you too...

shortstuff

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Re: I have questions!

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