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» Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia
Yesterday at 8:15 pm by WVR00

» What helped (and practically cured) my Vulvodynia
Yesterday at 4:43 pm by Katiej

» How I cured my Vulvodynia!
Yesterday at 8:24 am by Katiej

» Amitriptyline given for vulvodyina pain
Sat Nov 18, 2017 11:33 pm by WVR00

» Needing some reassurance
Sat Nov 18, 2017 12:28 pm by Katiej

» Amitriptyline Success and new-found love
Sat Nov 18, 2017 12:24 pm by Katiej

» New diagnosis, any advice whilst I wait for a specialist
Sat Nov 18, 2017 3:57 am by jungleclover

» Vestibulectomy today and no pain
Fri Nov 17, 2017 3:28 pm by Dsrt16

» vestibulectomy success
Thu Nov 16, 2017 12:41 am by Hopeitworks

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 0

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 3

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4


I have questions!

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I have questions!

Post  KA12 on Mon Feb 13, 2012 10:16 am

Is it possible to have two different types of vulvodynia?

I just starting having this about 6 months ago and it is getting worse and worse. Two things trigger it. SEX, of course, and bath or soap stuff. However, when it is the bath or soap stuff I get blisters that don't pop and go away in 48-72 hours. I can hardly move and when I do everyone asks me whats wrong because I walk funny. Its very very painful.

The sex pain comes any time I have pressure down there. That means Sex, gyno visits, or even just cleaning inside. The pain sucks and feels raw. It gets worse the more press that is put (ex: Gyno visit is hell). The only time it has greatly messed with the way I walk is with gyno visits or before I realized the cause and had multiple positions sex.

I believe the trigger was a sacrum injury I got around the same time period.

Is it possible for me to have two different types? I feel like I do but since I am with a doctor who does not know anything about this (she is great and willing to learn!!) I need to ask around.

BTW- I do not have herpes blisters! I am STD and everything else you can test for culturally and blood work wise free!!

Thank you for your help

KA12

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Re: I have questions!

Post  Sarah001 on Mon Feb 13, 2012 12:54 pm

Yes, I have both generalised unprovoked Vulvar pain and Vulvar Vestibulitis so you can have both kinds together. I'm not sure about those blisters you mention though, I haven't come across that as a symptom unless there's an infection which you say there isn't or perhaps a reaction to something?
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Sarah001

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Re: I have questions!

Post  Aussie on Tue Feb 14, 2012 1:43 am

Don't wash inside it will make it worse. Perhaps see a dermatologist for the blisters.

I have/had both. provoked and unprovoked Soap triggers me awfully. A stinging feeling. I use something called moogoo. Google it. So gentle and smells nice. Other than that the dove sensitive body wash is pretty good but don't put it in the bath.

Pretty much gone now (I hope it lasts) about 80-95% depending on the day.

GOOD LUCK!!

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Re: I have questions!

Post  shortstuff on Wed Feb 15, 2012 11:21 am

KA12 - I wash with Aveeno baby soap with oatmeal. It's the only wash I can find that does not irritate me. I tried the Dove sensitive, but it made it much worse, even though that was the only soap I'd ever used previously down there. Whenever my pain is really bad, I also bathe with Aveeno Oatmeal Bath. Lukewarm water, not hot water (which may irritate it more I've heard).

Maybe some of these tips could help you too...

shortstuff

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Re: I have questions!

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