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» Just Diagnosed with Vulvadynia
Today at 1:57 am by angelique2016

» Vulvadynia
Yesterday at 7:45 am by mary jane

» Constant pain, I want to die.
Sat Jul 22, 2017 9:41 pm by Meggiemay

» What is Vulvodynia?
Sat Jul 22, 2017 9:21 pm by mary jane

» Will I ever be able to wear jeans?
Wed Jul 19, 2017 11:02 pm by jungleclover

» Looking for a friend IRL; LA/OC
Wed Jul 19, 2017 10:58 pm by jungleclover

» Anyone else get this from yeast infections? (new member)
Wed Jul 19, 2017 10:37 pm by jungleclover

» Owner of vulvodyniSuppoet.com
Wed Jul 19, 2017 10:28 pm by LaurenVV

» anyone from southern california in here?
Tue Jul 18, 2017 2:38 am by crypticcalico

Just Diagnosed with Vulvadynia

Tue Aug 02, 2016 9:11 pm by CherryTree23

Well, I was just diagnosed today, yay...my symptoms are just burning pain in vaginal opening. This all came about after taking Bactrim, Monistat, Clindomycin and Diflucan. This doctor was extremely confident I have Vulvadynia. Also told me my vaginal skin isn't red. Yes, it is, mine isn't typically electric red. He prescribed Ampytripline (sp) said, I have a very mild case, and worse case …

Comments: 7

Vulvadynia

Fri Jul 21, 2017 11:53 pm by Linda Williams

I am 68 years old and a year ago was diagnosed with vestibulitis, then vulvadynia. I have a history of chinchilla bladder infections, have had major bladder repair, hysterectomy, mid 30's, an auto immune disease. I take a daily antibiotic to keep UTI's at bay. My doctor has done the Quip test which was uncomfortable but did not test anything. I use Premarin vaginal cream 2 times a week. These …

Comments: 3

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 21

Looking for a friend IRL; LA/OC

Tue Jul 18, 2017 2:51 am by crypticcalico

Hello!

I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.

Comments: 1

Owner of vulvodyniSuppoet.com

Wed Jul 19, 2017 10:28 pm by LaurenVV

Hi, I started vulvodyniasupport.com at the age of 28.
I was a leader when there was no help, no forums etc.

As I went on my path, I found acupuncture, herbs and time helped me recover.
Most never do.

I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.

I have moved on from the support world and found a career that allowed
Me to bring my …

Comments: 0

anyone from southern california in here?

Tue Jul 12, 2011 6:43 pm by Melissa777

Hi Im just wondering if anyone here is from so cal- USA
I am in san diego- but from LA!!!

Comments: 6

Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

Tue Jul 04, 2017 9:01 am by Tired89

Hello everyone. It's been quite a long time since I've posted. I've been extremely depressed and bottling it all up. I've been seeing a pelvic floor therapist (it's only been 4 visits) for my provoked vestibulodynia and the only reason she can get inside of me to do myofascial release and to use the dilators is because I use BLT (benzocaine, lidocaine, tetracaine) ointment on my vestibule prior …

Comments: 2

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12


I have questions!

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I have questions!

Post  KA12 on Mon Feb 13, 2012 10:16 am

Is it possible to have two different types of vulvodynia?

I just starting having this about 6 months ago and it is getting worse and worse. Two things trigger it. SEX, of course, and bath or soap stuff. However, when it is the bath or soap stuff I get blisters that don't pop and go away in 48-72 hours. I can hardly move and when I do everyone asks me whats wrong because I walk funny. Its very very painful.

The sex pain comes any time I have pressure down there. That means Sex, gyno visits, or even just cleaning inside. The pain sucks and feels raw. It gets worse the more press that is put (ex: Gyno visit is hell). The only time it has greatly messed with the way I walk is with gyno visits or before I realized the cause and had multiple positions sex.

I believe the trigger was a sacrum injury I got around the same time period.

Is it possible for me to have two different types? I feel like I do but since I am with a doctor who does not know anything about this (she is great and willing to learn!!) I need to ask around.

BTW- I do not have herpes blisters! I am STD and everything else you can test for culturally and blood work wise free!!

Thank you for your help

KA12

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Re: I have questions!

Post  Sarah001 on Mon Feb 13, 2012 12:54 pm

Yes, I have both generalised unprovoked Vulvar pain and Vulvar Vestibulitis so you can have both kinds together. I'm not sure about those blisters you mention though, I haven't come across that as a symptom unless there's an infection which you say there isn't or perhaps a reaction to something?
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Sarah001

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Re: I have questions!

Post  Aussie on Tue Feb 14, 2012 1:43 am

Don't wash inside it will make it worse. Perhaps see a dermatologist for the blisters.

I have/had both. provoked and unprovoked Soap triggers me awfully. A stinging feeling. I use something called moogoo. Google it. So gentle and smells nice. Other than that the dove sensitive body wash is pretty good but don't put it in the bath.

Pretty much gone now (I hope it lasts) about 80-95% depending on the day.

GOOD LUCK!!

Aussie

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Re: I have questions!

Post  shortstuff on Wed Feb 15, 2012 11:21 am

KA12 - I wash with Aveeno baby soap with oatmeal. It's the only wash I can find that does not irritate me. I tried the Dove sensitive, but it made it much worse, even though that was the only soap I'd ever used previously down there. Whenever my pain is really bad, I also bathe with Aveeno Oatmeal Bath. Lukewarm water, not hot water (which may irritate it more I've heard).

Maybe some of these tips could help you too...

shortstuff

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Re: I have questions!

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