Vulvodynia Support
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» Hope to all my suffering ladies
Sick of worrying constantly..... EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Sick of worrying constantly..... EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Sick of worrying constantly..... EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Sick of worrying constantly..... EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Sick of worrying constantly..... EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Sick of worrying constantly..... EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Sick of worrying constantly..... EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Sick of worrying constantly..... EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Sick of worrying constantly..... EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Sick of worrying constantly.....

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Sick of worrying constantly..... Empty Sick of worrying constantly.....

Post  Ceriane Sun Feb 26, 2012 1:28 am

I am sick of worrying about my condition constantly...I have avoided getting into relationships for the last few years because of it (I've had other health problems as well...pernicious anaemia)....I really think it has ruined my life....and I'll never have a normal relationship because of it...people are constantly constantly asking "How's your love life" "How come your not with anyone?" "Found yourself a bloke yet? Your taking your time aren't you...." "Are you STILL single?" in a patronising tone....and all I can think about is how every guy I've dated over the last few years I've found an excuse to end it and then breathed a sigh of relief because at least no one is going to expect me to have sex....I get people assuming I'm desperate to be with someone and can't understand why I'm not "Can you not try a dating agency?" "Do your friends not know anyone they can set you up with?" etc etc etc...people keep on and on and on about my lack of a love life...to the point where I just avoid socialising because it makes me feel like breaking down and crying...I know the reason I'm not with anyone...and I keep it to myself...nobody is going to want me with this condition....I want a relationship....but then I don't...I change my mind all the time....I want sex....I want to be able to have pain free sex so badly....no one else seems to have this condition and it's all so easy for them....It's changed how I feel about my body and about men and sex so badly....I no longer have the romantic dream...I just see men as sexual predators to be kept well away from and sex as a completely painful thing because of my vulvodynia....and all the while I'm feeling like this...when I'm around people who constantly wonder why I'm never with anyone...and ask questions when all the while I know the reason why....it just gets me down...can anyone relate?

Ceriane

Posts : 76
Join date : 2012-02-16

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Post  smile22 Mon Feb 27, 2012 12:38 am

Hi, I'm not in exactly the same situation as you as I have a boyfriend, but he's far from supportive these days anyway. I am at a point where he treats me like shit, but i feel like i need him because i dont think any other man would have me without sex, and if they did, i would be so upset to think that i would never be able to be that close to them, which i guess is similar to how you are feeling. its so horrible i can't go out because my pain is 24/7, but i really do understand how you feel. its so awful to just want to be able to have sex and do such normal things and not be able to.

So in a sense I know exactly how you feel, its soooo scary and I know I can't help you with it and this message is probably pointless as I am offering no solution but I just wanted to comment on your post to let you know that you are not alone in how you are feeling, even though i'm with someone i'm still so scared everyday that im going to be left alone any day soon and that im never going to be able to have sex with anyone again. i really hope that one day soon you find a cure and don't have to worry anymore x

smile22

Posts : 51
Join date : 2012-02-07
Location : England

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Sick of worrying constantly..... Empty Welcome!

Post  sadone Mon Feb 27, 2012 11:26 pm

Hi Ceriane!

This forum is really great, and you are in the right place. I can totally empathize with how you feel about not wanting to get into a relationship, and then ending them and feeling relief. I just want to tell you that there are plenty of women on here with V who have found boyfriends who can work around the condition. I have to say that I felt like you prior to my diagnosis. I kept thinking that there was something psychologically wrong with me, and I just couldn't get up the courage to have sex because it was so painful. I avoided men for a long time, and also had people ask me why I didn't have a boyfriend. It was so frustrating- no one could understand! I sought psychotherapy, and my therapist encouraged me to date. I was surprised- the first guy I dated after this diagnosis was fine with it. Although, I ended the relationship because of other reasons. My current boyfriend is also very good about it. We just find other ways to be intimate. We've been together for a year now. So, DO NOT GIVE UP HOPE. When you meet the right person, everything will be fine. If you start by taking things slowly, and if there is a real connection, he will understand. I didn't believe it, but there are guys out there who are understanding. Just look at all the women on here who are in relationships! I hope you feel better soon, and that I can offer you hope for the future. I was totally in your shoes before, and I understand the heartache and feelings of hopelessness. I never thought that I'd find a guy who understands, but I did. Wishing you the best! Feel free to msg me if you'd like! Smile

sadone

Posts : 53
Join date : 2011-12-12

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Post  Ceriane Wed Feb 29, 2012 3:47 pm

Thank you. You have both made me feel so much better....it's what I needed to hear...I'm feeling a lot more positive now...just needed to vent because it all gets screwed up in my head as it affects me emotionally. Thanks. I think someone worth being with would understand and we could work around it...if I wanted a sexual relationship....and if your bf has made you feel that no one else would want you then he's not the right one for you....your worth so much more than someone to have sex with....what about love? Everyone deserves love!!! So many women have all kinds of problems that affect them sexually....generally partners are supportive and the ones who aren't your better off without them anyway!

Ceriane

Posts : 76
Join date : 2012-02-16

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