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» It feels like I’m going to have pain forever
Mon Jul 16, 2018 12:11 pm by mhhh

» It feels like I’m going to have pain forever
Mon Jul 16, 2018 10:01 am by dunkelma

» It feels like I’m going to have pain forever
Mon Jul 16, 2018 8:51 am by dunkelma

» Honey decreased my pain considerably!
Sun Jul 15, 2018 12:53 pm by mhhh

» Birth control pills can cause vestibulitis
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» Gabapentin gel and pregnancy
Sat Jul 14, 2018 4:15 pm by Georgie 121212

» From a concerned husband
Fri Jul 13, 2018 6:02 pm by emalita

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 1

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 9

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 0

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 1

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 5

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0


It it or isn't it? Ignored for two years.....

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It it or isn't it? Ignored for two years.....

Post  mass_hysteria_x on Wed Jun 27, 2012 9:21 am

Hi new here and I'm not sure if I have this or not but hopefully will be finding out soon and any opinions would be helpful x
It all started two years ago I had one of the worst bladder infections I have ever experienced that lasted for a month of feeling like I really needed to pee! After two courses of antibiotics this finally subsided and then came the ITCH and stinging and burning Mad So I went to a clinic got told i had thrush, tried cream nothing happened, went to my doctors was told I had thrush and some swabs taken came back negative and I was left alone and every time I went to see my doctor I was told it was all in my head. No matter how many times I went all i got was thrush treatment even though it came back negative! I was even in tears with the doctor begging him to help to no avail.
So after a while the cuts started appearing and I couldn't even go to the toilet it hurt that much. Went to the clinic again and guess what I was told? THRUSH! So months went by and i was in pain and itching and burning and sore almost constantly. No
Anyway I got a new partner and went to the clinic to be tested at this point I had one of my little cuts which was apparently thrush so while there she swabbed it. Few weeks later I got a letter saying i had herpes type 2. pale (This was 4 months ago) It was scary but I thought hey maybe this was the cause of all my problems and I can finally get it sorted and move on!! So I went to the clinic were they very reluctantly gave me medication. Honestly they were just going to leave me! I had to beg them for medication! They gave me four months worth and said the itching burning and sores would stop. So I'm near the end of my meds now and the only thing that has changed is that I no longer get sores. Which is good I suppose but still I sting daily and burning.
I have changed doctors now two years later and she actually listened to me and gave me some medication (tricyclic antidepressants) to try and said to come back in a months time and I can see a gynecologist.
I hope I am getting to the bottom of this! I don't get dressed most days as wearing anything that goes in-between my legs sets the pain off badly I already suffered from severe depression which has become 100x worse and I have even felt suicidal. I want constant pain gone! I have only had very few days pain free in two years and I am only 21 and just want to live my life! Even daily activities are hard walking can trigger it such as walking or moving in a certain way. Sometimes I just sit here and the pangs of pain come. Some days I am scared to move. It is always in the same place near the opening on the outter labia sometimes but very rarely can be on the inner labia. Anyway hopefuly i should have my diagnosis soon. About to ring for an appointment now wish me luck girls I need some help! Does this sound like vulvodynia to you?
Also on a side note I notice much more irritation when I have pubic hair and tend to keep it hair free through waxing (shaving is not an option was done once and the pain and irritation is caused was out of this world!) anyone else have this?

mass_hysteria_x

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Re: It it or isn't it? Ignored for two years.....

Post  bCherie on Thu Jul 12, 2012 10:47 am

First I'm no expert.
Second god that sounds so similar to my story.
I was diagnosed with genital warts and had 'them' (the lesions) burnt off then got told I didn't have it at all. Ask your GP to do a blood test to double check you actually have this problem. (if you do, it could just be a coincidence too)

my personal experience is after having pretty much the symptoms you described and more for 5 and a half years a dermatologist who is an expert in this field in australia told me this...

the last few vertebra in your spine control all the nerve endings in your pelvis region. If you have bad posture (from slouching at your desk or caused by big boobs) and/or are overweight the vertebra at the bottom of your spine can go out of alignment and/or become compressed.This causes the nerve endings to send out 'pain' messages. This is called pain referral. A lot like when someone is told the RSI in their wrist is caused by their bad back/posture when they sit!!

The cure is to loose weight (A MUST if you are big) see a physio (with a specialization in pilates) to get your posture fixed and do physio guided pilates.

I only JUST found this out but I'm very hopeful it will work and start treatment next week! My doctor told me she has helped a lot of women with this problem successfully and she said I will be pain free within a year!

There are a lot of causes of vulvadynia and this may not be your answer but I am telling everyone I find with similar symptoms to mine as in my 5 years of research I NEVER heard this treatment before! If you want to stay in touch to see how I go let me know! Smile and good luck!

bCherie

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