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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

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I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

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Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

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Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist

after having a vestibulectomy with no success, I decided to visit …

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New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

Comments: 9

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

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Can A Cut In Vestibule cause Vulvodynia?

Thu Mar 01, 2018 1:07 am by rockylife

Can a cut in the vestibule area cause vulvodynia? Is it possible that some nerve a were damaged that’s why I feel this pain in my area without visible lesions?

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Anyone from New Jersey

Thu Feb 22, 2018 10:47 pm by LindafromNJ

Looking to maybe talk to someone from NJ to see if there are any support groups in this state.

Comments: 3

It it or isn't it? Ignored for two years.....

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It it or isn't it? Ignored for two years.....

Post  mass_hysteria_x on Wed Jun 27, 2012 9:21 am

Hi new here and I'm not sure if I have this or not but hopefully will be finding out soon and any opinions would be helpful x
It all started two years ago I had one of the worst bladder infections I have ever experienced that lasted for a month of feeling like I really needed to pee! After two courses of antibiotics this finally subsided and then came the ITCH and stinging and burning Mad So I went to a clinic got told i had thrush, tried cream nothing happened, went to my doctors was told I had thrush and some swabs taken came back negative and I was left alone and every time I went to see my doctor I was told it was all in my head. No matter how many times I went all i got was thrush treatment even though it came back negative! I was even in tears with the doctor begging him to help to no avail.
So after a while the cuts started appearing and I couldn't even go to the toilet it hurt that much. Went to the clinic again and guess what I was told? THRUSH! So months went by and i was in pain and itching and burning and sore almost constantly. No
Anyway I got a new partner and went to the clinic to be tested at this point I had one of my little cuts which was apparently thrush so while there she swabbed it. Few weeks later I got a letter saying i had herpes type 2. pale (This was 4 months ago) It was scary but I thought hey maybe this was the cause of all my problems and I can finally get it sorted and move on!! So I went to the clinic were they very reluctantly gave me medication. Honestly they were just going to leave me! I had to beg them for medication! They gave me four months worth and said the itching burning and sores would stop. So I'm near the end of my meds now and the only thing that has changed is that I no longer get sores. Which is good I suppose but still I sting daily and burning.
I have changed doctors now two years later and she actually listened to me and gave me some medication (tricyclic antidepressants) to try and said to come back in a months time and I can see a gynecologist.
I hope I am getting to the bottom of this! I don't get dressed most days as wearing anything that goes in-between my legs sets the pain off badly I already suffered from severe depression which has become 100x worse and I have even felt suicidal. I want constant pain gone! I have only had very few days pain free in two years and I am only 21 and just want to live my life! Even daily activities are hard walking can trigger it such as walking or moving in a certain way. Sometimes I just sit here and the pangs of pain come. Some days I am scared to move. It is always in the same place near the opening on the outter labia sometimes but very rarely can be on the inner labia. Anyway hopefuly i should have my diagnosis soon. About to ring for an appointment now wish me luck girls I need some help! Does this sound like vulvodynia to you?
Also on a side note I notice much more irritation when I have pubic hair and tend to keep it hair free through waxing (shaving is not an option was done once and the pain and irritation is caused was out of this world!) anyone else have this?


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Re: It it or isn't it? Ignored for two years.....

Post  bCherie on Thu Jul 12, 2012 10:47 am

First I'm no expert.
Second god that sounds so similar to my story.
I was diagnosed with genital warts and had 'them' (the lesions) burnt off then got told I didn't have it at all. Ask your GP to do a blood test to double check you actually have this problem. (if you do, it could just be a coincidence too)

my personal experience is after having pretty much the symptoms you described and more for 5 and a half years a dermatologist who is an expert in this field in australia told me this...

the last few vertebra in your spine control all the nerve endings in your pelvis region. If you have bad posture (from slouching at your desk or caused by big boobs) and/or are overweight the vertebra at the bottom of your spine can go out of alignment and/or become compressed.This causes the nerve endings to send out 'pain' messages. This is called pain referral. A lot like when someone is told the RSI in their wrist is caused by their bad back/posture when they sit!!

The cure is to loose weight (A MUST if you are big) see a physio (with a specialization in pilates) to get your posture fixed and do physio guided pilates.

I only JUST found this out but I'm very hopeful it will work and start treatment next week! My doctor told me she has helped a lot of women with this problem successfully and she said I will be pain free within a year!

There are a lot of causes of vulvadynia and this may not be your answer but I am telling everyone I find with similar symptoms to mine as in my 5 years of research I NEVER heard this treatment before! If you want to stay in touch to see how I go let me know! Smile and good luck!


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