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» Can you guys tell me your experiences with diflucan/Fluconazole?
Today at 1:29 am by ryn207

» So frustrating!!
Today at 1:25 am by ryn207

» Looking for suggestions or encouragement
Today at 1:19 am by ryn207

» Looking for a friend..... and new problems
Yesterday at 10:00 pm by VVSSufferer

» Vestibulectomy recovery question!
Sun Jan 14, 2018 11:37 pm by Kezz

» Prescription creams that work!
Sun Jan 14, 2018 4:46 am by Mintaherb

» Struggling
Sun Jan 14, 2018 4:29 am by Mintaherb

» Went Away and Came Back
Sat Jan 13, 2018 10:56 am by mary jane

» Amitriptyline given for vulvodyina pain
Sat Jan 13, 2018 1:39 am by ryn207

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad

Comments: 5

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules


I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

It it or isn't it? Ignored for two years.....

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It it or isn't it? Ignored for two years.....

Post  mass_hysteria_x on Wed Jun 27, 2012 9:21 am

Hi new here and I'm not sure if I have this or not but hopefully will be finding out soon and any opinions would be helpful x
It all started two years ago I had one of the worst bladder infections I have ever experienced that lasted for a month of feeling like I really needed to pee! After two courses of antibiotics this finally subsided and then came the ITCH and stinging and burning Mad So I went to a clinic got told i had thrush, tried cream nothing happened, went to my doctors was told I had thrush and some swabs taken came back negative and I was left alone and every time I went to see my doctor I was told it was all in my head. No matter how many times I went all i got was thrush treatment even though it came back negative! I was even in tears with the doctor begging him to help to no avail.
So after a while the cuts started appearing and I couldn't even go to the toilet it hurt that much. Went to the clinic again and guess what I was told? THRUSH! So months went by and i was in pain and itching and burning and sore almost constantly. No
Anyway I got a new partner and went to the clinic to be tested at this point I had one of my little cuts which was apparently thrush so while there she swabbed it. Few weeks later I got a letter saying i had herpes type 2. pale (This was 4 months ago) It was scary but I thought hey maybe this was the cause of all my problems and I can finally get it sorted and move on!! So I went to the clinic were they very reluctantly gave me medication. Honestly they were just going to leave me! I had to beg them for medication! They gave me four months worth and said the itching burning and sores would stop. So I'm near the end of my meds now and the only thing that has changed is that I no longer get sores. Which is good I suppose but still I sting daily and burning.
I have changed doctors now two years later and she actually listened to me and gave me some medication (tricyclic antidepressants) to try and said to come back in a months time and I can see a gynecologist.
I hope I am getting to the bottom of this! I don't get dressed most days as wearing anything that goes in-between my legs sets the pain off badly I already suffered from severe depression which has become 100x worse and I have even felt suicidal. I want constant pain gone! I have only had very few days pain free in two years and I am only 21 and just want to live my life! Even daily activities are hard walking can trigger it such as walking or moving in a certain way. Sometimes I just sit here and the pangs of pain come. Some days I am scared to move. It is always in the same place near the opening on the outter labia sometimes but very rarely can be on the inner labia. Anyway hopefuly i should have my diagnosis soon. About to ring for an appointment now wish me luck girls I need some help! Does this sound like vulvodynia to you?
Also on a side note I notice much more irritation when I have pubic hair and tend to keep it hair free through waxing (shaving is not an option was done once and the pain and irritation is caused was out of this world!) anyone else have this?


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Re: It it or isn't it? Ignored for two years.....

Post  bCherie on Thu Jul 12, 2012 10:47 am

First I'm no expert.
Second god that sounds so similar to my story.
I was diagnosed with genital warts and had 'them' (the lesions) burnt off then got told I didn't have it at all. Ask your GP to do a blood test to double check you actually have this problem. (if you do, it could just be a coincidence too)

my personal experience is after having pretty much the symptoms you described and more for 5 and a half years a dermatologist who is an expert in this field in australia told me this...

the last few vertebra in your spine control all the nerve endings in your pelvis region. If you have bad posture (from slouching at your desk or caused by big boobs) and/or are overweight the vertebra at the bottom of your spine can go out of alignment and/or become compressed.This causes the nerve endings to send out 'pain' messages. This is called pain referral. A lot like when someone is told the RSI in their wrist is caused by their bad back/posture when they sit!!

The cure is to loose weight (A MUST if you are big) see a physio (with a specialization in pilates) to get your posture fixed and do physio guided pilates.

I only JUST found this out but I'm very hopeful it will work and start treatment next week! My doctor told me she has helped a lot of women with this problem successfully and she said I will be pain free within a year!

There are a lot of causes of vulvadynia and this may not be your answer but I am telling everyone I find with similar symptoms to mine as in my 5 years of research I NEVER heard this treatment before! If you want to stay in touch to see how I go let me know! Smile and good luck!


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