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Yesterday at 11:20 pm by Faezeh

» a video for you guys
Yesterday at 2:53 am by lavrose

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Yesterday at 2:45 am by lavrose

» New and need some help
Fri Feb 23, 2018 1:12 pm by fairlight10

» Acupuncture gave me my life back!
Thu Feb 22, 2018 11:25 pm by Bx11

» Anyone from New Jersey
Thu Feb 22, 2018 10:47 pm by LindafromNJ

» vaginal cream
Thu Feb 22, 2018 10:46 pm by LindafromNJ

» Acupuncture advice please
Thu Feb 22, 2018 2:25 am by ryn207

» Please tell me this can get better
Mon Feb 19, 2018 2:10 am by anon99

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

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Anyone from New Jersey

Thu Feb 22, 2018 10:47 pm by LindafromNJ

Looking to maybe talk to someone from NJ to see if there are any support groups in this state.

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vaginal cream

Thu Feb 22, 2018 10:46 pm by LindafromNJ

I have been given ABC cream to start using for my condition. This is gabapentin, amitriptyline and baclofen cream. Has anyone tried this. Also has anyone used lidocaine. My doctor told me not to use it. It is so sore at the vaginal opening. Has anyone used it there. Please respond!!

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Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist

after having a vestibulectomy with no success, I decided to visit …

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Sat Feb 10, 2018 12:18 am by rockylife


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Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad

Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

Super Happy Pain Nearly Gone

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Super Happy Pain Nearly Gone

Post  Chelsea1991 on Wed Jul 04, 2012 4:20 pm

Hi all Very Happy two days ago went to my hospital and they had a look at me, the pain was 3/10 i didnt feel it much or at all, my doctor who is brilliant said the treatment is working which i am so pleased and when i went on hoilday nearly a week ago i had sex for about three days with hardly no pain, i know i am getting better now and so pleased, i feel everything is getting into place i am losing went i have lost 7 pound in 4 weeks with Weight Watchers yeyey Very Happy and i passed all my law exams with brilliant grades. I am so happy i had this since i was a child and i finally feel like my life can be normal so *Touch wood* Very Happy


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Re: Super Happy Pain Nearly Gone

Post  raquelll on Wed Jul 04, 2012 7:16 pm

Congratulations! So nice to hear a positive story...keep up the good work!


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Post  blessed on Wed Jul 04, 2012 11:32 pm

pain gone???? that seems like a miracle... i have gotten so use to living in pain that i can't imagine being without. i know each woman is different so what works for one may not for the other, but won't you share what helped you??? thanks ...


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Re: Super Happy Pain Nearly Gone

Post  Chelsea1991 on Wed Jul 04, 2012 11:51 pm

Nearly gone it still 3/10 i use Neurontin (Gabapentin) i take that ten times a day like my doctor told me i also use Epaderm cream, i also been giving numming cream on Monday with the pilll my doctor though it would be best to put it on it as i am getting better she gave my anti thrust pill as i am on antibiotics to clear up whatever is wrong with my bladder lol, when she looked at me it didnt really hurt it felt weird when she first had a look as i dont like being touch down there but i relex and realised the pain i had when she first opened me up is gone, then she did a q tip test which she looked at both sides the right was about 2/10 but it didnt really hurt like it did a couple months ago and the left side which has always been a pain was 3/10 and looked somewhere else and that didnt hurt, it felt weird but amazing knowing it didnt hurt. she said the tabs was helping me and she was really impressed she told me to go walking but she seem impressed with being trying to lose weight so i think weight may have a factor on the conditional, i am seeing her novemeber so i am hoping it will be either a 2 or 1/10. (Last year i couldnt even let it go in as the pain felt like someone was killing me) i did have sex on my hoilday around three to four time i think only once it hurt, the pain for the other time went which i was so surprised at. sorry it so long i am super excited Very Happy


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Re: Super Happy Pain Nearly Gone

Post  BpCookie on Fri Jul 06, 2012 8:56 pm

I am ssssoooo very happy for you. I tried to take Gabapentin but it caused severe dry mouth and I didnt notice any pain relief. I was recently put on Lyrica and for about a month and a half my pain was almost gone. But of course it was too good to be true because now Im back to constant pain. ggggggrrrr I want to find that magic med. like you have found.

btw, you said your taking Gaba. 10 times a day? What strength of pill are you taking? I was only taking it once a day.

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Post  Chelsea1991 on Tue Sep 25, 2012 12:56 pm

Sorry i haven't replied quicker been ill anyway I am on 300mg for one tab.
It came back the other day but after two minutes it went I dont know what my body doing right now.
I have an appointment in November Smile So hopefully she say It even more better.
Have you a bit better yet?

xxx Very Happy


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Re: Super Happy Pain Nearly Gone

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