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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 7

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci


I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6

Super Happy Pain Nearly Gone

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Super Happy Pain Nearly Gone

Post  Chelsea1991 on Wed Jul 04, 2012 4:20 pm

Hi all Very Happy two days ago went to my hospital and they had a look at me, the pain was 3/10 i didnt feel it much or at all, my doctor who is brilliant said the treatment is working which i am so pleased and when i went on hoilday nearly a week ago i had sex for about three days with hardly no pain, i know i am getting better now and so pleased, i feel everything is getting into place i am losing went i have lost 7 pound in 4 weeks with Weight Watchers yeyey Very Happy and i passed all my law exams with brilliant grades. I am so happy i had this since i was a child and i finally feel like my life can be normal so *Touch wood* Very Happy


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Re: Super Happy Pain Nearly Gone

Post  raquelll on Wed Jul 04, 2012 7:16 pm

Congratulations! So nice to hear a positive story...keep up the good work!


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Post  blessed on Wed Jul 04, 2012 11:32 pm

pain gone???? that seems like a miracle... i have gotten so use to living in pain that i can't imagine being without. i know each woman is different so what works for one may not for the other, but won't you share what helped you??? thanks ...


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Re: Super Happy Pain Nearly Gone

Post  Chelsea1991 on Wed Jul 04, 2012 11:51 pm

Nearly gone it still 3/10 i use Neurontin (Gabapentin) i take that ten times a day like my doctor told me i also use Epaderm cream, i also been giving numming cream on Monday with the pilll my doctor though it would be best to put it on it as i am getting better she gave my anti thrust pill as i am on antibiotics to clear up whatever is wrong with my bladder lol, when she looked at me it didnt really hurt it felt weird when she first had a look as i dont like being touch down there but i relex and realised the pain i had when she first opened me up is gone, then she did a q tip test which she looked at both sides the right was about 2/10 but it didnt really hurt like it did a couple months ago and the left side which has always been a pain was 3/10 and looked somewhere else and that didnt hurt, it felt weird but amazing knowing it didnt hurt. she said the tabs was helping me and she was really impressed she told me to go walking but she seem impressed with being trying to lose weight so i think weight may have a factor on the conditional, i am seeing her novemeber so i am hoping it will be either a 2 or 1/10. (Last year i couldnt even let it go in as the pain felt like someone was killing me) i did have sex on my hoilday around three to four time i think only once it hurt, the pain for the other time went which i was so surprised at. sorry it so long i am super excited Very Happy


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Re: Super Happy Pain Nearly Gone

Post  BpCookie on Fri Jul 06, 2012 8:56 pm

I am ssssoooo very happy for you. I tried to take Gabapentin but it caused severe dry mouth and I didnt notice any pain relief. I was recently put on Lyrica and for about a month and a half my pain was almost gone. But of course it was too good to be true because now Im back to constant pain. ggggggrrrr I want to find that magic med. like you have found.

btw, you said your taking Gaba. 10 times a day? What strength of pill are you taking? I was only taking it once a day.

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Post  Chelsea1991 on Tue Sep 25, 2012 12:56 pm

Sorry i haven't replied quicker been ill anyway I am on 300mg for one tab.
It came back the other day but after two minutes it went I dont know what my body doing right now.
I have an appointment in November Smile So hopefully she say It even more better.
Have you a bit better yet?

xxx Very Happy


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Re: Super Happy Pain Nearly Gone

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