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» Anyone been to see Dr.Claire Bailey in Birmingham?
Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Vestibulectomy
Sun Aug 13, 2017 9:54 am by infinitelywondering

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

» Pain management - what works for me
Sat Aug 12, 2017 9:58 am by sj17

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering


I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 0

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0

Super Happy Pain Nearly Gone

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Super Happy Pain Nearly Gone

Post  Chelsea1991 on Wed Jul 04, 2012 4:20 pm

Hi all Very Happy two days ago went to my hospital and they had a look at me, the pain was 3/10 i didnt feel it much or at all, my doctor who is brilliant said the treatment is working which i am so pleased and when i went on hoilday nearly a week ago i had sex for about three days with hardly no pain, i know i am getting better now and so pleased, i feel everything is getting into place i am losing went i have lost 7 pound in 4 weeks with Weight Watchers yeyey Very Happy and i passed all my law exams with brilliant grades. I am so happy i had this since i was a child and i finally feel like my life can be normal so *Touch wood* Very Happy


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Re: Super Happy Pain Nearly Gone

Post  raquelll on Wed Jul 04, 2012 7:16 pm

Congratulations! So nice to hear a positive story...keep up the good work!


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Post  blessed on Wed Jul 04, 2012 11:32 pm

pain gone???? that seems like a miracle... i have gotten so use to living in pain that i can't imagine being without. i know each woman is different so what works for one may not for the other, but won't you share what helped you??? thanks ...


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Re: Super Happy Pain Nearly Gone

Post  Chelsea1991 on Wed Jul 04, 2012 11:51 pm

Nearly gone it still 3/10 i use Neurontin (Gabapentin) i take that ten times a day like my doctor told me i also use Epaderm cream, i also been giving numming cream on Monday with the pilll my doctor though it would be best to put it on it as i am getting better she gave my anti thrust pill as i am on antibiotics to clear up whatever is wrong with my bladder lol, when she looked at me it didnt really hurt it felt weird when she first had a look as i dont like being touch down there but i relex and realised the pain i had when she first opened me up is gone, then she did a q tip test which she looked at both sides the right was about 2/10 but it didnt really hurt like it did a couple months ago and the left side which has always been a pain was 3/10 and looked somewhere else and that didnt hurt, it felt weird but amazing knowing it didnt hurt. she said the tabs was helping me and she was really impressed she told me to go walking but she seem impressed with being trying to lose weight so i think weight may have a factor on the conditional, i am seeing her novemeber so i am hoping it will be either a 2 or 1/10. (Last year i couldnt even let it go in as the pain felt like someone was killing me) i did have sex on my hoilday around three to four time i think only once it hurt, the pain for the other time went which i was so surprised at. sorry it so long i am super excited Very Happy


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Re: Super Happy Pain Nearly Gone

Post  BpCookie on Fri Jul 06, 2012 8:56 pm

I am ssssoooo very happy for you. I tried to take Gabapentin but it caused severe dry mouth and I didnt notice any pain relief. I was recently put on Lyrica and for about a month and a half my pain was almost gone. But of course it was too good to be true because now Im back to constant pain. ggggggrrrr I want to find that magic med. like you have found.

btw, you said your taking Gaba. 10 times a day? What strength of pill are you taking? I was only taking it once a day.

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Post  Chelsea1991 on Tue Sep 25, 2012 12:56 pm

Sorry i haven't replied quicker been ill anyway I am on 300mg for one tab.
It came back the other day but after two minutes it went I dont know what my body doing right now.
I have an appointment in November Smile So hopefully she say It even more better.
Have you a bit better yet?

xxx Very Happy


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Re: Super Happy Pain Nearly Gone

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