Vulvodynia Support
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» Hope to all my suffering ladies
Super Happy Pain Nearly Gone EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Super Happy Pain Nearly Gone EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Super Happy Pain Nearly Gone EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Super Happy Pain Nearly Gone EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Super Happy Pain Nearly Gone EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Super Happy Pain Nearly Gone EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Super Happy Pain Nearly Gone EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Super Happy Pain Nearly Gone EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Super Happy Pain Nearly Gone EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Super Happy Pain Nearly Gone

4 posters

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Post  Chelsea1991 Wed Jul 04, 2012 4:20 pm

Hi all Very Happy two days ago went to my hospital and they had a look at me, the pain was 3/10 i didnt feel it much or at all, my doctor who is brilliant said the treatment is working which i am so pleased and when i went on hoilday nearly a week ago i had sex for about three days with hardly no pain, i know i am getting better now and so pleased, i feel everything is getting into place i am losing went i have lost 7 pound in 4 weeks with Weight Watchers yeyey Very Happy and i passed all my law exams with brilliant grades. I am so happy i had this since i was a child and i finally feel like my life can be normal so *Touch wood* Very Happy

Chelsea1991

Posts : 20
Join date : 2012-01-24

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Post  raquelll Wed Jul 04, 2012 7:16 pm

Congratulations! So nice to hear a positive story...keep up the good work!

raquelll

Posts : 14
Join date : 2012-07-01
Age : 36
Location : USA

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Super Happy Pain Nearly Gone Empty PLEASE SHARE...

Post  blessed Wed Jul 04, 2012 11:32 pm

pain gone???? that seems like a miracle... i have gotten so use to living in pain that i can't imagine being without. i know each woman is different so what works for one may not for the other, but won't you share what helped you??? thanks ...

blessed

Posts : 10
Join date : 2012-03-09

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Post  Chelsea1991 Wed Jul 04, 2012 11:51 pm

Nearly gone it still 3/10 i use Neurontin (Gabapentin) i take that ten times a day like my doctor told me i also use Epaderm cream, i also been giving numming cream on Monday with the pilll my doctor though it would be best to put it on it as i am getting better she gave my anti thrust pill as i am on antibiotics to clear up whatever is wrong with my bladder lol, when she looked at me it didnt really hurt it felt weird when she first had a look as i dont like being touch down there but i relex and realised the pain i had when she first opened me up is gone, then she did a q tip test which she looked at both sides the right was about 2/10 but it didnt really hurt like it did a couple months ago and the left side which has always been a pain was 3/10 and looked somewhere else and that didnt hurt, it felt weird but amazing knowing it didnt hurt. she said the tabs was helping me and she was really impressed she told me to go walking but she seem impressed with being trying to lose weight so i think weight may have a factor on the conditional, i am seeing her novemeber so i am hoping it will be either a 2 or 1/10. (Last year i couldnt even let it go in as the pain felt like someone was killing me) i did have sex on my hoilday around three to four time i think only once it hurt, the pain for the other time went which i was so surprised at. sorry it so long i am super excited Very Happy

Chelsea1991

Posts : 20
Join date : 2012-01-24

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Post  BpCookie Fri Jul 06, 2012 8:56 pm

I am ssssoooo very happy for you. I tried to take Gabapentin but it caused severe dry mouth and I didnt notice any pain relief. I was recently put on Lyrica and for about a month and a half my pain was almost gone. But of course it was too good to be true because now Im back to constant pain. ggggggrrrr I want to find that magic med. like you have found.

btw, you said your taking Gaba. 10 times a day? What strength of pill are you taking? I was only taking it once a day.
BpCookie
BpCookie

Posts : 209
Join date : 2012-01-25
Location : Arizona

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Super Happy Pain Nearly Gone Empty Hey

Post  Chelsea1991 Tue Sep 25, 2012 12:56 pm

Sorry i haven't replied quicker been ill anyway I am on 300mg for one tab.
It came back the other day but after two minutes it went I dont know what my body doing right now.
I have an appointment in November Smile So hopefully she say It even more better.
Have you a bit better yet?

xxx Very Happy

Chelsea1991

Posts : 20
Join date : 2012-01-24

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