Vulvodynia Support
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» Hope to all my suffering ladies
vestibulectomy - Page 3 EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
vestibulectomy - Page 3 EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
vestibulectomy - Page 3 EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
vestibulectomy - Page 3 EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
vestibulectomy - Page 3 EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
vestibulectomy - Page 3 EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
vestibulectomy - Page 3 EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
vestibulectomy - Page 3 EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
vestibulectomy - Page 3 EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


vestibulectomy

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Alana3
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Post  Alana3 Tue Dec 04, 2012 8:48 pm

last minute pep talk please!

Alana3

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Post  jen007 Wed Dec 05, 2012 3:43 am

Aw thanks Alana! I really enjoy talking to you here.

Ok pep talk....You're going to do GREAT! I swear! You're going to walk in there, they'll put you in a gown and then you go to sleep. The anesthesia is awesome btw, best sleep of your life. It'll feel like you blinked and it'll be over.

I'm sorry I'm responding so late! I hope you see this before you go into surgery! I know you'll be fine! Try not to worry so much if you can. I don't know how I managed to not pass out before I went in...I'm always a panicky mess, haha. I'll be thinking of you tomorrow! If you can/ feel up to it tomorrow let me know how it went! I'll be anxious to check the forum!

Good Luck!!!!! Very Happy

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Post  Alana3 Wed Dec 05, 2012 10:31 am

I saw it thank you so much Smile I'll let you know!

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Post  Alana3 Wed Dec 05, 2012 6:26 pm

Home!

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Post  Alana3 Wed Dec 05, 2012 8:17 pm

Did you pee a lot after surgery

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Post  Alana3 Wed Dec 05, 2012 9:08 pm

Did you pee a lot after surgery

Alana3

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Post  jen007 Wed Dec 05, 2012 11:33 pm

How did it go ?? How are you feeling ?? And yes I did pee a lot after. I made the stupid decision to not go before surgery... Big mistake haha. I peed like 100 times haha.

jen007

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Post  Alana3 Wed Dec 05, 2012 11:59 pm

He thinks he got all of it. I threw up after but it's more muscle pain and one stitch is mimicking vv which im not gonna lie id really annoying. Yeah I thought I had a uti because of how much im peeing but I guess it's normal. Originally it looked like I got shot but the blood is going away. Im able to sit pee and eat and walk by myself to ths potty so I guess im ok. It feels more like muscle pain than anything tho

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Post  jen007 Thu Dec 06, 2012 12:30 am

See it wasn't so bad Smile. I'm glad you're able to walk and sit and mostly feel comfortable. The stitches are so annoying but it'll get better. The more you soak them the fast they'll dissolve. They'll start to get itchy in a few weeks, which sucks. Your I've pack will be your best friend haha.

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Post  Alana3 Thu Dec 06, 2012 1:12 am

He doesn't want me soak for a bit. Probably not til my two week he just called me lol

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Post  jen007 Thu Dec 06, 2012 3:32 am

Oh great! It's good that he keeps in contact with you.

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Post  Alana3 Thu Dec 06, 2012 4:28 am

Yeah it is. I ended Yup being allergic to drug but realized after I spoke with him thankfully dads a doc so he wrote me new. Then I thought I pulled a stitch out but I guess I didn't. Good news is the bleeding is already spotting but now instead of vulvodynia pain I have surgical pain n how long til it goes away? I'm scared to poop too Lol (I'm on softener but I threw up and it hurt so bad because of those muscles)

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Post  Alana3 Thu Dec 06, 2012 1:34 pm

Im afraid to poo

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Post  Loulou Thu Dec 06, 2012 4:00 pm

Alana - if you can bear it drink lots of prune juice. That should help keep things running smoothly if you see what i mean!

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Post  Alana3 Thu Dec 06, 2012 4:28 pm

Lol I def see what you mean! Im taking stool softeners but im still afraid lol did you get one too? Omg the painkillers are making me so loopy haha

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Post  Loulou Thu Dec 06, 2012 4:40 pm

No Alana i haven't had surgery (my vvd is more generalised so it wouldn't work for me) but i got very bunged up in the early days of my vvd when i was taking loads of painkillers.

Good luck with your recovery. Feeling loopy sounds fun?!

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Post  Alana3 Thu Dec 06, 2012 4:57 pm

Loopy is terrible I can't do anything but lay in bed. But for now that's all I need I guess. Yeah im more afraid that it's gonna hurt I could go now but im scared to

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Post  Loulou Thu Dec 06, 2012 5:11 pm

Aw sorry hun - in that case loopy is NOT good. But laying in bed, although frustrating, probably is what your body needs right now. As for 'going' - might be better to go before it builds up even more? (the things we talk about here lol!)

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Post  jen007 Thu Dec 06, 2012 5:46 pm

Alana,

You should be good to go. Prune juice is so gross but I drank it after my surgery to help. I also ate prunes and took a fiber supplement. Don't be scared! It'll be just fine. Just try not to push too hard, haha. I hated those pills they made me so stupid. I only took them before bed for the first 2 days. That pain you're feeling should go away with in 2 to 3 weeks. It really depends on what toe of healer you are. Like I healed petty quickly. If you want to feel less loopy you could take naproxen or Advil. It's strong enough to help the pain if its just that muscle ache feeling.

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Post  Alana3 Thu Dec 06, 2012 6:12 pm

Yeah I switched to Advil I think im gonna poo soon but im still scared. 2 to 3 weeks what the?! And I've been walking a bit it gets easier but damn this is uncomfortable lol

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Post  jen007 Thu Dec 06, 2012 11:50 pm

Like I said it just depends on what type of healer you are. It could be less than that. And good, you should go poo haha!

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Post  Alana3 Fri Dec 07, 2012 12:03 am

I still can't poo lmao ugh! I stopped taking pain killers tho

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Post  jen007 Fri Dec 07, 2012 12:34 am

Aw Neutral , you will don't worry. The pain pills can constipate you.

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Post  Alana3 Fri Dec 07, 2012 12:38 am

Did u have pain that felt like vulvodynia pain at all Im flipping out because it started feeling like that again

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Post  jen007 Fri Dec 07, 2012 2:32 am

Not really, but everyones healing experiences are different. I've read from other women that they had vuvlodynia like pain after surgery, but it went away. I'd say it's perfectly normal to still feel some of the pain. Don't stress about every pain. It's most likely going to go away within the next few weeks.

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