Vulvodynia Support
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» Hope to all my suffering ladies
Recent diagnosis-provoked localized vestobulodynia EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Recent diagnosis-provoked localized vestobulodynia EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Recent diagnosis-provoked localized vestobulodynia EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Recent diagnosis-provoked localized vestobulodynia EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Recent diagnosis-provoked localized vestobulodynia EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Recent diagnosis-provoked localized vestobulodynia EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Recent diagnosis-provoked localized vestobulodynia EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Recent diagnosis-provoked localized vestobulodynia EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Recent diagnosis-provoked localized vestobulodynia EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Recent diagnosis-provoked localized vestobulodynia

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Post  kalinikta77 Mon Nov 05, 2012 2:36 am

I'm a 21-year-old college student from Ohio. I lost my virginity about 10 months ago. It hurt, but I expected that. I didn't have sex again for another 5 or 6 months until I started dating my current boyfriend. It still hurt, but I thought it was because I was still inexperienced, and my friends assured me it would get better as time went on. It didn't. After a few months, I knew something was wrong. I consulted my gynocologist. After a few visits, she gave up and recommended I see a sex therapist as they frequently specialize in sexual dysfunction. Fortunately, there was a specialist at a nearby hospital. She performed a simple test-gently stroking me with a moist q-tip-and instantly diagnosed me with provoked localized vestobulodynia, a form of vulvodynia. She's narrowed it down to three possible causes: hormonal, muscular, or congenital; however, the only way to figure out which it is is to treat me for all three. To combat hormonal issues, she took me off my birth control (I was on beyaz, which is often associated with this disorder). To combat muscular possibilities, she recommended a physical therapist. So at the end of this month, I will begin pelvic floor rehabilitation. Yes, there are physical therapists who work with vaginas to help deal with sexual dysfunction. No, I have no idea what vaginal physical therapy entails. I'll keep you posted. If neither of those options work, the cause will be deemed congenital, meaning I was born with too many pain nerves in my vestibule. In that case, I could need surgery to have those nerves removed. Honestly, I don't care what the cause or cure is. I'm so happy and relieved to have been diagnosed with something that can be treated. My advice to anyone suffering-skip the gyno and go straight to a sex therapist. They're not just shrinks who read a lot of Cosmo and pour out tips for hot sex-they're doctors with a lot of knowledge that your run-of-the-mill gyno may not have. Keep searching until you find a doctor who gives you answers. Good luck!

kalinikta77

Posts : 7
Join date : 2012-11-05

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