Vulvodynia Support
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» Hope to all my suffering ladies
NEW MEMBER_  Recent Vestibulectomy EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
NEW MEMBER_  Recent Vestibulectomy EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
NEW MEMBER_  Recent Vestibulectomy EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
NEW MEMBER_  Recent Vestibulectomy EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
NEW MEMBER_  Recent Vestibulectomy EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
NEW MEMBER_  Recent Vestibulectomy EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
NEW MEMBER_  Recent Vestibulectomy EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
NEW MEMBER_  Recent Vestibulectomy EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
NEW MEMBER_  Recent Vestibulectomy EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


NEW MEMBER_ Recent Vestibulectomy

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Post  ashley215 Tue Oct 27, 2015 8:23 am

Hello,

I am new to this and I wanted to know if anyone can tell me what to except over the next few weeks.

I had surgery on 9/11 and it has been about six weeks since my surgery. I had a post-op appointment on 10/7( 4-week mark).

He stated that I was healing very well! And that I should not stress every little pain or sensation at that point because it is too early to determine anything. That is a lot easier said than done.

Recently, I have been experiencing a low-grade burning sensation(over the last week) and I'm afraid that this is yet another failed treatment. Is this normal after surgery? Is this a sign of healing? I also still have stitches in some areas( I have dissolveable stitches) .

This is the most stressful thing ever.. recent grad, no job and stitches in my vagina. Oh the joy!


ashley215

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Post  jen007 Tue Oct 27, 2015 4:06 pm

Hi Ashley,

I had a full vestibulectomy about 5 years ago. From what you're saying, it seems like you're doing just fine! Don't let the little pains and burns here and there discourage you. As your doctor said, it's too soon to tell. Just keep doing everything the doctor tells you. The low-grade burning is normal - I had that too! I also started to feel very itchy soon after that. That's just your surgery healing. Trust me, you're ok!

Have you been taking sitz baths? If not, they're very soothing - easier than trying to lower yourself into a tub! I did them about 3-4 times a day to keep it clean and sooth the area. Also, rest as much as possible! Just take it easy! Let your body heal!

Feel free to ask me any questions you may have!

-Jen

jen007

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Post  ashley215 Tue Oct 27, 2015 8:25 pm

That's what people keep saying.. I am currently in week 7 Sad. Sadly, at this point I have no clue how to relax. I just keep picturing myself alone for the rest of my life with a defective vagina.

Question: I thought you were just about fully healed at 6 weeks? I guess I am freaking out because the pain is in the area I had the most trouble..

ashley215

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Post  jen007 Tue Oct 27, 2015 8:55 pm

Ashley,

I felt the same way, but TRUST ME, you're on the right track! Keep resting and taking it easy - it's key to your recovery. Don't exercise or do anything too strenuous.

The healing period after surgery is usually about 2 months - meaning you can start going back to normal activities with caution. Your stitches should be gone by then and you should be able to wear regular clothes again, so on and so forth. It can take up to 8 months to a year from surgery to be fully healed. It just depends on the rate your body heals. It's worth the wait TRUST ME.

Don't lose trust in your body. It will heal! You can't make any conclusions until your body is done healing. You won't be alone forever! I felt the same way. I had set backs at first. Now I have a new guy and we have sex on the regular and it doesn't even hurt. Just wait it out!

-Jen

jen007

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Post  ashley215 Wed Oct 28, 2015 12:22 am

Thanks for replying Jen!

I will TRY my best to kind of relax. It's just stressful when you looking for a job and about to run out of insurance (because I turn 26 in December). I am concerned that the surgery will fail and I won't have a job/insurance (though I have been interviewing a lot) to pay for doctors visits and the costly medications.
Ugh, I just want to get back to normal. I used to be pretty fun lol. I don't know if I will ever see that fun girl again. Plus, when you have a condition like this maintaining friendships can be hard. Mainly, because they don't understand and are just happy that their vagina is not burning or in pain.
Welp, I TRY my best to ignore this burning and pain area.. And stop looking at it in the mirror. I am guiltily of looking at my vagina as soon as I got out of surgery. Crazy I know. lol . I could not help myself. November 17th ( 10 week mark) is my next appt and I hope all of these strange sensations will be gone..

I hope this is coming to a end because I am pretty hopeless at this point. Congrats on being pain free for FIVE YEARS.

ashley215

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