Vulvodynia Support
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» Hope to all my suffering ladies
new member EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
new member EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
new member EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
new member EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
new member EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
new member EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
new member EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
new member EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
new member EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


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Post  JW2012 Sat Dec 15, 2012 2:54 am

Hello everyone!

So happy to have found this forum. I have hardly told anyone what I am going through and when I do, no one quite gets it.

This whole thing started almost a year ago now. I have never told anyone, even my doctors, how it happened. I went on a trip to Vegas, drank to much and was sexually assaulted basically. I was in some pain down there like the man injured me. The next day I went swimming and fell asleep in my swimsuit, woke up and felt this awful awful burning. I was sure I was getting herpies.

I became obsessed with checking myself all of the time. The pain was unbearable so I knew there was something wrong. I went to my gyno, in tears and she was a bit rude. Said herpies was not a big deal at all. Well I thought if it feels like this it is a HUGE deal. She checked me out and said she was sure that was not it. I was treated for a yeast infection like many others. She did a test for herpies anyway, both swab and blood because my whole vulva looked raw and irritated. It came back negative but the pain came back in full force.

I went back to see another gyno because mine was unavailable. So happy because she was a life saver. She examined me, had another gynecologist look as well as a dermatologist. They could see that it was very irritated and that it didn't look like an STD. Tested me again and came back clean. Ointments did not help so they sent me to a pelvic pain clinic that is special to my hospital. So blessed and lucky to have had these specialists at my local doctor's office.

Now I am going to PT with a therapist that is amazing. She also suffers from similar issues so she actually understands what I am going through. They say my muscles are extremely tight. They aren't sure why. I assume it was the injury mixed with chlorine and possible yeast infection from swimming. Not quite sure. Maybe a mix of things. The PT is not relaxing the muscles as much as hoped so I am going for a botox treatment in january. My doctor also suggests a nerve block but I am nervous for that so just going for botox first. Has anyone had either one? What was it like? Did they put you to sleep?

Overall I am happy because the pain i felt for the first 4-5 months was unbearable. I thought about and contemplated suicide daily. My work and school suffered. I am in a much better place now. It still is irritating and the pain comes and goes but nothing like what i originally experienced. I have a fear that it may one day return to what it was, especially if I attempt to have sex. I guess I have to take it one day at a time and deal with that day if it comes.

Sorry this is so long! Needed to share my situation with someone.

JW2012

Posts : 5
Join date : 2012-12-12

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Post  cba321 Sat Dec 15, 2012 5:21 am

Hi,
I'm glad to hear you have found some good help.

I have done the botox treatment. I had my injection in Aug this year. It has helped heaps, the muscle pain is gone, i'm just left with nerve sensitivity. I have had to do a lot of dialator work post the botox, but I am now up to the largest dialator 45mins a day. Whether my ability to use that large dialator post botox remains, we will see!

I was put to sleep for the injections, it was painful for a day and then it was gone. It felt very weird to run for a bit, but that is now gone as well.

Overall has been a good experience so far...

cba321

Posts : 69
Join date : 2012-07-14

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