Vulvodynia Support
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» Hope to all my suffering ladies
Lifelong sufferer and new member -- need advice/support EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Lifelong sufferer and new member -- need advice/support EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Lifelong sufferer and new member -- need advice/support EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Lifelong sufferer and new member -- need advice/support EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Lifelong sufferer and new member -- need advice/support EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Lifelong sufferer and new member -- need advice/support EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Lifelong sufferer and new member -- need advice/support EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Lifelong sufferer and new member -- need advice/support EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Lifelong sufferer and new member -- need advice/support EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Lifelong sufferer and new member -- need advice/support

2 posters

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Lifelong sufferer and new member -- need advice/support Empty Lifelong sufferer and new member -- need advice/support

Post  huigensa Sun Dec 23, 2012 12:35 am

Hello everybody,
I've never written in a forum like this before, so I'm not quite sure how this goes. I guess I'll start with my background so that I can reach out to anyone who's like me and has found relief.
I have localized pain that only happens when it's provoked by some kind of penetration, whether it be a finger, penis or a tampon. My clitoris only feels pain when it's touched directly, as long as just the hood is stroked I'm fine. Semen also leaves me with a severe stinging sensation, but I've heard that this is relatively normal. My vagina has been this way for as long as I can remember. I started having sex with men when I was fifteen and continued to do so for about three years until I admitted the pain to myself and to my female partner at the time. I thought that I was normal and that that was the reason why women screamed in porn/movies. I thought I was feeling the intensity in a normal way because I never talked about it.
Since then, I've been very honest with my sexual partners who have, thankfully, been very understanding and patient. I wish I could find the right word to describe the emotional and mental pain that go along with this condition. Penetration always hurts at the beginning, but sometimes it can almost completely go away if I'm wet enough and I have orgasms regularly, but the mental stress is always there no matter what. I long to be close to my partners, but sex just makes me sick to my stomach at this point. I feel very anxious, depressed, frustrated and scared after (and sometimes during) intercourse, whether it be with a man or a woman. I cry after sex regularly, and have had to throw up on multiple occasions. I feel totally isolated and lonely even when I'm with someone who is very loving and supportive. Everyone on this forum seems really upbeat and humorous, so I'm sorry for being such a drag, but I just don't know what to do anymore.
I've tried talking to a counselor at school (I'm a college student in Wisconsin) but it didn't do much good. After three sessions of me talking about this chronic problem, he suggested that I "might just be too small." My gynecologist gave me lidocaine, but it just stung terribly and numbed me to a pointless extent. I was just wondering if therapy has worked for anyone who feels the same as me, and if there is such a thing as vulvadynia specialists. Or if someone knows any holistic remedies that work to lessen pain. I don't really like the idea of numbing medication, but I'm probably just being too picky.
Thanks for reading this, I would really appreciate any feedback.

huigensa

Posts : 7
Join date : 2012-12-23
Location : WI, USA

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Lifelong sufferer and new member -- need advice/support Empty Re: Lifelong sufferer and new member -- need advice/support

Post  cba321 Tue Dec 25, 2012 5:34 am

Hi huigensa

I know exactly how you feel, gone through a similar thing. If you haven't seen a physiotherapist I would really recommend doing that. Only go to a physio who specialises in pelvic floor disorders, pain disorders if possible - google search for one in your area. I have also tried Chiro which has helped a small amount with nerve sensitivity as I don't want to take pain/nerve tablets for that.

Take care xoxox

cba321

Posts : 69
Join date : 2012-07-14

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