Vulvodynia Support
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» Hope to all my suffering ladies
so depressed and need to vent EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
so depressed and need to vent EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
so depressed and need to vent EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
so depressed and need to vent EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
so depressed and need to vent EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
so depressed and need to vent EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
so depressed and need to vent EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
so depressed and need to vent EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
so depressed and need to vent EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


so depressed and need to vent

4 posters

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so depressed and need to vent Empty so depressed and need to vent

Post  riag Sat Jan 12, 2013 11:44 pm

I am new to this board but i have been on it constantly since ive found it. There is so much information here to digest. I used to go the the vulvodynia website on the ic support website because i didnt know any other boards existed for this condition.

I am just so depressed and so tired of juggling all my illnesses. It seems everytime im feeling better for a while, i get knocked back down. im so tired of going from dr to dr looking for answers and help. I am definitely making an appt with dr goldstein as recommended by some other members on this site. this just adds to my depression as we are experiencing financial difficulties and he doesnt take insurance.

Back in oct, i became suicidal. the only thing that got me thru the night was going to a suicide prevention website. I know my children need me. especially my daughter she suffers from mental illness and i alwys need to be here for her. It just gets so hard. My marraige is on the rocks. I am so lonely its unbearable. then to have all this pain , i just sometimes dont want to go on living anymore.

Tomorrow i am calling a psychologist to make an appt i Know i need help. I just know its going to be the run around again. trying to find a good match. Hopefully the first one i see will. any way, thanks for listening. i just needed and outlet right now because i have no one talk to right now.

riag

Posts : 10
Join date : 2013-01-07

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so depressed and need to vent Empty Re: so depressed and need to vent

Post  carby148 Mon Feb 25, 2013 6:28 am

I'm sorry you are struggling, and I'm sorry nobody has replied until now. You posted a while ago -- did you ever make an appointment with a psychologist? How are you feeling now?
carby148
carby148

Posts : 17
Join date : 2013-02-04
Age : 37
Location : East Bay Area

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so depressed and need to vent Empty Re: so depressed and need to vent

Post  BpCookie Mon Feb 25, 2013 10:37 pm

You poor hun. I hope your still on this board and you haven't given up on us. I havent been a member for very long and I didn't see this post until Carby replied to it. I understand how you feel about not wanting to go on living anymore. I have felt like that on many occasion. But Im so glad that Im still here. I have hope that there is a Dr. out there, some where, who can help me.

Hang in there honey and keep trying to find that one thing that will help you. Don't give up. hugs
BpCookie
BpCookie

Posts : 209
Join date : 2012-01-25
Location : Arizona

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so depressed and need to vent Empty Re: so depressed and need to vent

Post  riag Tue Feb 26, 2013 9:12 pm

thanks to both of you. iwas having a really bad day and really needed to vent. i have ibs, fibro, pelvic floor spasms, and vulvodynia. i found a therapist and have been seeing her for almost a month now. not sure if its helping, but im defiinitely not reaching for a bottle of pills and alcohol anymore. its still really hard. i appreciate the concern. sometimes i feel so alone with all my ailments. i hate juggling all my illnesses and having vulvodynia is the worst. not being able to function as a woman is so difficullt. i had made an appt with dr goldstein but had to cancel. i just cant afford it. so i went to see my old urologist whjo originally diagnosed me and he gave me some new creams, topicals and upped my nortriptlyine dose. just waiting for some results now. I havent been on the board since my original vent. i have just been too depressed. thanks for your support!

riag

Posts : 10
Join date : 2013-01-07

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Post  Alana3 Tue Feb 26, 2013 9:38 pm

where are you located?

Alana3

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Join date : 2012-09-25

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Post  riag Tue Mar 05, 2013 1:37 am

sorry it took so long to reply I had difficulty getting back on the website. The link was not working. Any way , I live in Long Island NY

riag

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Post  Alana3 Mon Mar 11, 2013 11:47 am

Hope you're feeling better! I live in Florida was gonna offer My doc but I guess you're too far Sad

Alana3

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