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Gabapentin Gel. or other topical creams
Thu May 10, 2018 9:43 am by Rosie21
Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.
Comments: 2
Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?
Sat Aug 01, 2015 4:17 pm by Fielder
Hi everyone,
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
Comments: 11
An absolute success story- please read!
Fri Mar 08, 2019 10:57 pm by Persevere1990
Dear All,
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
Comments: 0
I'm sorry im rambling
Thu Feb 21, 2019 5:49 am by Jet227
hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …
Comments: 1
New member need advice please
Thu Feb 28, 2019 11:33 pm by PANDORA123
Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.
Thanks
Thanks
Comments: 5
MonaLisa Touch
Fri Feb 08, 2019 7:35 pm by rl2091
Hi All,
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
Comments: 3
Diagnosed Recently
Tue Jan 08, 2019 3:55 pm by flissyg
Hi All,
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
Comments: 4
New and need advice and help
Wed Dec 05, 2018 3:26 pm by Cin124
Hi everyone,
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
Comments: 6
New here would very much appreciate advice at the end of my rope
Wed Jan 09, 2019 9:09 pm by Jma990o
This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
Comments: 3
New to this forum
5 posters
Page 1 of 1
New to this forum
[b][i]
Well let me start off by introducing myself, my name is Erica, I am 29 years old and I live in Florida. About 2 years ago all of a sudden it started to burn during intercourse. I thought "Oh great, another yeast infection". Took the yeast infection pill. Didn't help. Started to get worse. So I went to the ER. They told me I had trichomoniasis. Which did not go to well with my husband. Me and my husband have been together for 13 years. Anyways back to what I was saying. I knew I didn't have a STD, there was no way I could. So I went to planned parenthood, I didn't know where else to go because I was waiting for my health insurance to kick in. Well she said it wasn't trich, I thought thank goodness. She said it was my soap. So I stopped using soap down there. Still burning!!! So a few months later my insurance kicked in. Finally!!! I went to a OBGYN and he said that I had a fungal infection. Gave me the gel to put up there. For a few days no burning. Then by the 4th day, ON FIRE. Like acid was being poured down there. I went back to the same OBGYN office to see the same doc, but he wasn't there. So I had to see a different doc. He did some more tests and then told me that he knew what I had, Vulvodynia. Now here is where my experience with everything gets worse. I asked him what it was. He took a piece of paper and wrote down "Vulvodynia" and told me to google it. Like seriously you couldn't explain it. I was torn. How are you going to diagnose someone and be heartless. Not to mention the whole time he is examining me he is to busy joking with the nurse. And every time I would talk he would interrupt me. Anyways, I haven't been back to any other docs since that experience.
So now 2 years later I have noticed a lot with this Vulvodynia THING. Sex is only possible if I am beyond drunk where I can't feel anything. I noticed that I burn when I have discharge, and that I mostly have brown discharge. Has anyone else noticed that they have more brown discharge since having V? I am also starting to think that it is a little related to food and heartburn. And the reason why I say heartburn, is because I burn more when I have heartburn. Does that make any sense to anyone? Also having V has made it very difficult to TTC. can't TTC when you can't have sex. I found this forum through google. I was apart of some facebook groups which I left them due to no one really being that supportive to others. They would only reply to certain members. I hope I have found a good place I can come and blow of some V steam. Talk to you later, hopefully.
Well let me start off by introducing myself, my name is Erica, I am 29 years old and I live in Florida. About 2 years ago all of a sudden it started to burn during intercourse. I thought "Oh great, another yeast infection". Took the yeast infection pill. Didn't help. Started to get worse. So I went to the ER. They told me I had trichomoniasis. Which did not go to well with my husband. Me and my husband have been together for 13 years. Anyways back to what I was saying. I knew I didn't have a STD, there was no way I could. So I went to planned parenthood, I didn't know where else to go because I was waiting for my health insurance to kick in. Well she said it wasn't trich, I thought thank goodness. She said it was my soap. So I stopped using soap down there. Still burning!!! So a few months later my insurance kicked in. Finally!!! I went to a OBGYN and he said that I had a fungal infection. Gave me the gel to put up there. For a few days no burning. Then by the 4th day, ON FIRE. Like acid was being poured down there. I went back to the same OBGYN office to see the same doc, but he wasn't there. So I had to see a different doc. He did some more tests and then told me that he knew what I had, Vulvodynia. Now here is where my experience with everything gets worse. I asked him what it was. He took a piece of paper and wrote down "Vulvodynia" and told me to google it. Like seriously you couldn't explain it. I was torn. How are you going to diagnose someone and be heartless. Not to mention the whole time he is examining me he is to busy joking with the nurse. And every time I would talk he would interrupt me. Anyways, I haven't been back to any other docs since that experience.
So now 2 years later I have noticed a lot with this Vulvodynia THING. Sex is only possible if I am beyond drunk where I can't feel anything. I noticed that I burn when I have discharge, and that I mostly have brown discharge. Has anyone else noticed that they have more brown discharge since having V? I am also starting to think that it is a little related to food and heartburn. And the reason why I say heartburn, is because I burn more when I have heartburn. Does that make any sense to anyone? Also having V has made it very difficult to TTC. can't TTC when you can't have sex. I found this forum through google. I was apart of some facebook groups which I left them due to no one really being that supportive to others. They would only reply to certain members. I hope I have found a good place I can come and blow of some V steam. Talk to you later, hopefully.
fairymoond84- Posts : 7
Join date : 2013-01-13
Age : 40
Location : FL, United States
Re: New to this forum
Hello Erica! I am so sorry you are also dealing with this. I am new here. You should read my post from last night, where I also talk about brown discharge and feeling like acid has been poured down there. I am not a big drinker at all, and because I am not when I had a few glasses of wine in September I felt frisky and was able tolerate sex with my husband of 12 years. I wonder if it has something to do with the relaxation of muscles, as I am just learning about "pelvic floor dysfunction." Anyway, it doesn't matter if I could have sex or not, the next days afterward were the start of this 4 month issue. I had the worst of it in November and it has calmed down but certainly not gone away.
I didn't put in my original post that at one time 13 years ago I tested postitive for HPV and had some cervical changes but follow up paps have always been normal and no HPV. I have no idea about that. At the time I was having horrendous smelling discharges and recurrent infections so I just accepted that it was HPV. But even when I was a virgin I was succeptible to yeast infections and in my first marriage I just knew my husband was cheating because I pretty much kept non-specific vaginitis and bacterial vaginosis and I always thought they were std's but they never were.
I shutter to think of all the chemicals I used to kill these infections over the years. I have also used spermicides before. I am thinking now that a product designed to "KILL" sperm cannot be good for delicate female tissues. In addition, I had a traumatic delivery at age 18 with my 19 year old son which resulted in 2 full days of pushing and him getting stuck in the birth canal. I know that my episotimy was a mess as well.
Sex with my husband has been hit or miss as far as pain goes. Only a handful of times that I can honestly say it was totally pain free, which is why I always preferred outer stimulation to orgasm instead of intercourse. But now, even that is resulting in spasms and pain and tenderness, including bladder pain, for days afterward.
And I have awful reflux issues too so I think there is a connection.
I didn't put in my original post that at one time 13 years ago I tested postitive for HPV and had some cervical changes but follow up paps have always been normal and no HPV. I have no idea about that. At the time I was having horrendous smelling discharges and recurrent infections so I just accepted that it was HPV. But even when I was a virgin I was succeptible to yeast infections and in my first marriage I just knew my husband was cheating because I pretty much kept non-specific vaginitis and bacterial vaginosis and I always thought they were std's but they never were.
I shutter to think of all the chemicals I used to kill these infections over the years. I have also used spermicides before. I am thinking now that a product designed to "KILL" sperm cannot be good for delicate female tissues. In addition, I had a traumatic delivery at age 18 with my 19 year old son which resulted in 2 full days of pushing and him getting stuck in the birth canal. I know that my episotimy was a mess as well.
Sex with my husband has been hit or miss as far as pain goes. Only a handful of times that I can honestly say it was totally pain free, which is why I always preferred outer stimulation to orgasm instead of intercourse. But now, even that is resulting in spasms and pain and tenderness, including bladder pain, for days afterward.
And I have awful reflux issues too so I think there is a connection.
Last edited by rhiannon75 on Sun Jan 13, 2013 9:07 pm; edited 1 time in total (Reason for editing : left out info)
rhiannon75- Posts : 6
Join date : 2013-01-12
Re: New to this forum
Hey,
I'm from Florida too, where are you located?
I'm from Florida too, where are you located?
Alana3- Posts : 1093
Join date : 2012-09-25
Re: New to this forum
Hey I am new on here too
I was recently diagnosed with vulvodynia. I was really scared about what was wrong with me for a long time and so it took me around 3 years to actually ask for help and go to my doctor. After reading other people's posts on here and on other information sites I think I have been quite lucky. I had very understanding doctors who listened to me which was so reassuring, I was worried it was all in my head. I have never bee able to have sex. I have a high pain threshold but it is just not a pain I can power through. I am 20 and from the first time I tried to have sex guys weren't that understanding of what it was like for me. I had pretty much surrendered to the idea that I would never be able to have sex and given up on relationships when I met my current boyfriend. He is so understanding and he even came with me to the doctor's appointment when I got diagnosed.
I have been given anesthetic cream to try but I am still really nervous. I know my boyfriend is really understanding but I don't want a repeat of previous situations. It's reassuring to realize I'm not the only one to go through this. It is difficult to talk about it with friends who don't know what it is like.
I was recently diagnosed with vulvodynia. I was really scared about what was wrong with me for a long time and so it took me around 3 years to actually ask for help and go to my doctor. After reading other people's posts on here and on other information sites I think I have been quite lucky. I had very understanding doctors who listened to me which was so reassuring, I was worried it was all in my head. I have never bee able to have sex. I have a high pain threshold but it is just not a pain I can power through. I am 20 and from the first time I tried to have sex guys weren't that understanding of what it was like for me. I had pretty much surrendered to the idea that I would never be able to have sex and given up on relationships when I met my current boyfriend. He is so understanding and he even came with me to the doctor's appointment when I got diagnosed.
I have been given anesthetic cream to try but I am still really nervous. I know my boyfriend is really understanding but I don't want a repeat of previous situations. It's reassuring to realize I'm not the only one to go through this. It is difficult to talk about it with friends who don't know what it is like.
Chloe4- Posts : 1
Join date : 2013-01-14
maca, supplements
Since it started with an infection, it sounds like an infection. So many people Ive read on different forums all say their IC and VV started with a really bad yeast or bladder infection. I know how you feel, when I was having serious problems, I had to get drunk too, to have sex, it was a searing, burning pain, and you just couldnt wait to get it over.
If your having brown discharge it sounds like your hormones may be oof balance and adding to feeling"off" down there, I know vaginal dryness was another one of my major problems too, before I started taking herbal supplements.
I would start with Dong Quai herb, and Maca powder supplements. The Maca you need to put in a smoothie, like a TBSP every morning. Please google and research, its wonderful.
I put mine in a rice milk, yogurt, strawberry banana, raq honey smoothie every morning, (I freeze the bananas and strawberries).
It so worth it, you will get your sex life, and a healthy libido back too.
If your having brown discharge it sounds like your hormones may be oof balance and adding to feeling"off" down there, I know vaginal dryness was another one of my major problems too, before I started taking herbal supplements.
I would start with Dong Quai herb, and Maca powder supplements. The Maca you need to put in a smoothie, like a TBSP every morning. Please google and research, its wonderful.
I put mine in a rice milk, yogurt, strawberry banana, raq honey smoothie every morning, (I freeze the bananas and strawberries).
It so worth it, you will get your sex life, and a healthy libido back too.
lavrose- Posts : 152
Join date : 2012-04-28
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Fri Oct 23, 2020 12:04 am by ringostarr26
» Please tell me this can get better
Sat Jul 18, 2020 7:38 pm by sammykramer
» By no means cured, but doing much better!
Mon Mar 16, 2020 1:26 pm by tinkerbelle2
» How I cured my Vulvodynia!
Sat Dec 07, 2019 11:54 am by Millie
» 7 months since the diagnosis
Wed Aug 14, 2019 2:38 am by agtoronto
» Gabapentin Gel. or other topical creams
Sat Jun 15, 2019 5:22 pm by mary jane
» IMPORTANT FOR UK SUFFERERS
Sat Jun 15, 2019 5:21 pm by mary jane
» Help New Diagnosis
Sat Jun 15, 2019 5:07 pm by mary jane
» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Tue Jun 11, 2019 12:56 am by VVSSufferer