Vulvodynia Support
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» Hope to all my suffering ladies
Dr Attila Thoth, cutting edge treatment /specialist EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Dr Attila Thoth, cutting edge treatment /specialist EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Dr Attila Thoth, cutting edge treatment /specialist EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Dr Attila Thoth, cutting edge treatment /specialist EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Dr Attila Thoth, cutting edge treatment /specialist EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Dr Attila Thoth, cutting edge treatment /specialist EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Dr Attila Thoth, cutting edge treatment /specialist EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Dr Attila Thoth, cutting edge treatment /specialist EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Dr Attila Thoth, cutting edge treatment /specialist EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Dr Attila Thoth, cutting edge treatment /specialist

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Dr Attila Thoth, cutting edge treatment /specialist Empty Dr Attila Thoth, cutting edge treatment /specialist

Post  lavrose Mon Mar 11, 2013 5:54 pm

Like I said, I sincerely believe, we are all dealing with some sort of low grade infection of some kind, that is undetectable, and unacknowledged by the medical community. Here is an article I found on the net a couple years ago, if any of you guys can afford it, go for it, its worth it. I would in a heartbeat, if I had the money..

{{{ "Patients travel from as far away as Europe to visit Attila Toth, MD, a physician in New York who claims his extreme treatment will help infertile women conceive. Couples are going home with babies, but doctors think his methods are far from sound For 10 days straight in the summer of 2010, Samantha*, a lawyer from Greenwich, Connecticut, and her husband came into New York City to visit the office of Attila Toth, MD, a fertility specialist who thought he could solve the mystery of why, at age 28, she couldn't get pregnant.

On the first morning, Toth put in their arms IVs that delivered an antibiotic that they each carried around in a fanny pack for the entire 10 days. He then threaded a catheter into the pinpoint opening of Samantha's cervix so that, for the next hour, a cocktail of four antibiotics, the steroid Medrol, and a large dose of the yeast-infection medication Diflucan could wash out her uterus. The first two mornings, Samantha suffered excruciating cramps from these daily washes, but by the third, the pain had subsided, and she settled into a routine of watching Dr. Phil on the examining-room television until Toth returned to remove the catheter and insert a paste containing a fifth antibiotic that would be absorbed into her body for the next 24 hours. Meanwhile, every other day Toth gave her husband a painkiller and then injected antibiotics through his rectum and into his prostate; twice Toth also injected his seminal vesicles. After their last visits, Toth gave the couple prescriptions for still two more antibiotics that they'd take for a month.

When their treatments were over, Samantha and her husband returned to see Toth, who declared them both "clean," by which he meant they were free of Chlamydia trachomatis, a bacterium that can cause infertility in women and has been linked to recurrent miscarriage, premature labor, ectopic pregnancy, and pelvic inflammatory disease.

Outside of Toth's office, such an elaborate antibiotic assault on chlamydia is practically unheard of. The standard treatment—which health officials say is at least 97 percent effective—is a seven-day course of the antibiotic doxycycline or a single dose of azithromycin. But Toth thinks chlamydia is far harder to detect and treat than most doctors do. In fact, he thinks it may be responsible for a substantial portion of the one third of infertility cases that doctors now classify as "unexplained."

Toth, 72, came up with the idea of administering intrauterine washes (also known as lavages) to patients in the late 1970s after learning about the horse breeder who successfully put the racing legend Secretariat to stud. The breeder would flush out the uteruses of mares with antibiotics to kill the microbacteria that could interfere with conception. Why couldn't humans benefit from such a therapy too? Toth thought. In 1977, he started testing infertile couples for a little-studied bacterium called mycoplasma that had been linked to infertility. He gave men who tested positive an oral antibiotic, and many of their wives soon became pregnant, Toth says.

Around this time, public health officials were becoming increasingly concerned about chlamydia, and his boss at New York Hospital suggested he look into it. "He said, `That's far more important and can do much more damage to the reproductive tract' " than mycoplasma, Toth recalls. Pictures of this were telling: scarred and blocked fallopian tubes, uterine adhesions, blocked epididymides (the coiled ducts that collect sperm). "I thought, This is destroying people's anatomy," he says.

At first, Toth treated people who tested positive for chlamydia with a conventional dose of oral antibiotics. But when cultures from his patients continued to show traces of the bacteria, he lengthened the time to four weeks. He added another anti­biotic. Then he doubled the duration of both medications to eight weeks. "The longer they took them, the faster they got pregnant," he says. In the early '80s, he introduced IVs for men and women; patients would cluster in his office basement while they were hooked up to the then primitive machines and call themselves the "IV League." By the late '80s he had refined his regimen further, introducing the uterine lavages; five years ago he added prostate injections.

Toth, a man whose bear-hug personality endears him to his patients, now sees some 150 couples a year for infertility, a third of whom, he estimates, are referred by gynecologists, urologists, or fertility specialists who are at a loss as to how to help them. Gideon G. Panter, MD, a Manhattan-based gynecologist and infertility specialist, has sent Toth 40 to 50 patients, he says, and "always with the same story," of unsuccessful IVF cycles, including one couple who traveled from Europe after four had failed. "Toth has been saying this stuff for 20 years," Panter says. "But fertility medicine is big business. Doctors don't stop to think, Wait! My patient's IVF cycle failed twice. Something else must be going on. Toth's treatments cut into the economic overhead of infertility treatment. He's ahead of his time."

After finishing medical school in Hungary in the late '60s, Toth emigrated to the U.S., where he received a fellowship at the Cleveland Clinic and finished a residency in pathology at The Mount Sinai Hospital before opening up a private practice at New York Hospital in 1977. Fifteen years later, he moved his practice to the Upper East Side townhouse where he remains today. A tall man with a mustache, a full head of sandy brown hair, and a thick accent, he avoids conferences and has published infrequently. He says he encountered such cynical resistance from the medical community early in his career that he retreated to his office and relied on his evangelistic patients' word of mouth to grow his practice. "I just became frustrated by the lack of interest in the role of infections on fertility, no matter what ideas I put forward," he explains. "So I treat my patients according to my best understanding, and my reward is seeing them get pregnant."

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lavrose
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Post  lavrose Mon Mar 11, 2013 5:56 pm

Last name TOTH, not Thoth, excuse me, sorry Smile
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Dr Attila Thoth, cutting edge treatment /specialist Empty Dr Marjorie Crandall

Post  lavrose Mon Mar 11, 2013 6:00 pm

She is also of the belief that this is a low grade yeast infection, article as follows:::

Dr. Marjorie Crandall: Yeast Infections, Candida Allergy, and Vulvodynia

By Marjorie Crandall, Ph.D.

The typical woman with vulvar pain recently had yeast vaginitis and was treated with an antifungal for a short time. After her severe symptoms of itching and vaginal discharge resolved, she was left with vulvar redness and burning.

I propose that this residual inflammation can be due to yeasts remaining in vulvar and vaginal tissues.

During an active infection, yeasts invade underlying tissues and penetrate inside epithelial cells, where they stop growing, but continue to release yeast digestive enzymes and toxic metabolic products that cause chronic tissue irritation. I coined the phrase latent intracellular yeast infection for this condition.


The medical term for this low grade yeast infection is chronic atrophic erythematous candidiasis, in which atrophic means not feeding, not growing; and erythematous means red tissue. The textbook example is the red, burning gums of people with false teeth, called denture stomatitis. Such an inactive yeast infection can also account for the red, burning vulvas in women with vulvodynia or vulvar vestibulitis.

You are probably wondering how to diagnose this latent intracellular yeast infection. Since yeasts are in the tissues and not on the surface, vulvar and vaginal swabs will give negative results when tested by microscopy or culture. Furthermore, there are too few yeasts to show up in biopsies. Hence, the diagnosis of the red form of yeast infection is based strictly on clinical signs and symptoms, history of vaginal yeast infections, and risk factors that cause candidiasis.


• long term, daily treatment with a systemic antifungal
• hydrocortisone cream for vulvar burning
• testing and treatment for Candida allergy
• avoiding all risk factors for yeast infections such as antibiotics, estrogen, etc.
• lifestyle changes to avoid contact dermatitis caused by spermicides, deodorants, etc.

Your recovery from vulvodynia after following all my recommendations will confirm your diagnosis of an inactive yeast infection.
lavrose
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Post  lavrose Mon Mar 11, 2013 6:01 pm

If only we had these treatments options available to us. It would be awesome.
lavrose
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Dr Attila Thoth, cutting edge treatment /specialist Empty Toth sees and treats V and IC patients

Post  lavrose Thu Mar 14, 2013 3:07 am

Just want to add that Toth treats IC and Vulvodynia patients aswell, and this same treatment has cured people. Read about it on some womens health forums on the net, please google and research, thank you
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