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» 7 months since the diagnosis
Help! Right side Vaginal Pain! EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Help! Right side Vaginal Pain! EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Help! Right side Vaginal Pain! EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Help! Right side Vaginal Pain! EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Help! Right side Vaginal Pain! EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

» Vestibulectomy next week in London!! - questions!!
Help! Right side Vaginal Pain! EmptyWed Apr 24, 2019 8:32 pm by HedvigB

» Dating with Vulvodynia and Vaginismus advice
Help! Right side Vaginal Pain! EmptyFri Apr 19, 2019 10:25 pm by Tartufo

» Research Participants Needed!
Help! Right side Vaginal Pain! EmptyThu Apr 11, 2019 2:09 pm by PelvicPainProject

» Does anyone else have Endometriosis?
Help! Right side Vaginal Pain! EmptyMon Apr 08, 2019 7:54 am by Jo44

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Help! Right side Vaginal Pain!

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Help! Right side Vaginal Pain! Empty Help! Right side Vaginal Pain!

Post  tanyam23xo on Wed May 01, 2013 7:51 pm

Hi everyone.
I am 26 year old female. I have had right side vaginal pain for about 3 years now. Some days it is burning, some days it is pain, some days it is nothing. I dont have any pain durning sex, but after it hurts. I have been to countless doctors. NO ONE KNOWS WHAT IS WRONG!! I recently just had a larproscopy done, and they found PID. They removed the PID, and i still have pain. I am thinking about trying Primose Oil, has anyone tried this? I am on an anti-depressant, that helps but the pain comes back. I use to take gabapintin 3 times a day, but i stopped that. SOMEONE PLEASE HELP ME!!! Any type of advice would be good. I am starting to lose my mind. I am in consent pain every single day. I use to be very active and now I just want to sleep all the time. I can still have sex. Sex doesnt bother me, slightly, but i can deal with the pain. Please help

tanyam23xo

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Post  Sarah001 on Wed May 01, 2013 8:10 pm

Could be trigger points in the pelvic floor or the hip rotators, go and see a womens health physio and have them do an internal examination to see if they can find the spot.
Sarah001
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Post  tanyam23xo on Wed May 01, 2013 8:15 pm

I have been to a pelvic floor therapist. I did therapy for about 5 months. Pain would come back and go away. I even had a steriod injection inserted in my vagina!! I am speechless to what this pain could be. Everything anyone has tried, it doesnt help. I magically don't have pain when I am on my period. But as soon as I am off, the pain is right back. I feel that it is more muscle pain, but I'm not sure on what it could be exactly. Any thoughts?

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Post  Alana3 on Thu May 02, 2013 1:31 pm

Could be nerves along with muscles too... Could be anything have you been to a specialist yet? maybe you could try that?

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Post  tanyam23xo on Thu May 02, 2013 1:46 pm

I havent been to a "Pelvic Floor Specalist" but I have been to an OBYN, about 5 of them. No one knows what is wrong. I just had a laproscopy done, and they found PID. The PID has been removed, but i still have the pain. It hurts to even touch my right side of my vagina. It hurts to walk. I am out of words or ideas at this point. I dont know what to do Sad I am starting to think it is Vulvodynia, but i dont know. I have had ultra sounds, MRIs, blood work etc. NOTHING comes up. I have been on gabapintin, now i am on a anti depressant. I am going on a trip next week. I just want to feel better. When I went to physical therapy, it helped. My pain went away for about 6 months. But it is now back, and it HURTS!

tanyam23xo

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Post  Kate1981 on Thu May 02, 2013 1:58 pm

Hi tanyam
Your pain sounds exactly like mine. I have deep right sided vaginal pain constant every day. Mine started after sex. It's kind of a dull sharp ache in my vagina wall sometimes raw. I have seen everyone gynos urologist dermatologists pain doctors etc but have found what is wrong with pelvic women's health physio. I have trigger points all inside my vagina mainly over the obturator internus muscle which connects with the hip. The trigger points are irritating the pudendal nerve causing the pain. My physio can pin point exactly along the nerve where it hurts. I maybe could have sex but I'm single now which is easier for me. But like you the pain came over the sex. Have a look at pudendal neuralgia.

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Post  tanyam23xo on Thu May 02, 2013 2:02 pm

Hi Kate,
So how what do you do to get rid of it? What kind of doctor do you think i should go to? Are you on any current medications? I dont have pain when I am on my period. No pain at all. I do believe its a muscle/nerve issue as well. Is there anything they can do to make it go away?!

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Post  Alana3 on Thu May 02, 2013 2:28 pm

You're in Ohio? Go to Ohio State Hospital or Cleveland clinic!! Oh, and Go Bucks!

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Post  tanyam23xo on Thu May 02, 2013 2:39 pm

Yes i am in Columbus, Ohio! Smile And yes of course. Go bucks!!
Alana, Do you have this type of pain? I have been to every doctor. I have kind've lost hope.

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Post  Alana3 on Thu May 02, 2013 2:58 pm

I don't I had provoked vestibuldynia. Message me I need to ask you about Columbus (I'm pondering a move). I see a vulvar specialist in South Florida (where I live), he's my hero. Fixed me up like no ones's business, if you have the funds, I def suggest him, but I understand if you cant. He is ALSO affiliated with the Cleveland Clinic (down here) so that's why I thought maybe head into that direction up there, cant hurt right? My entire vag would hurt when I would have sex, touch it with qtip, or tampon use. But I had surgrey in December, which I'm sure you have seen me talk about on here. I have very little pain now, and I have muscular issues now, but it's no way near as horrible as it was back even 6 months ago Smile But I'm not sure what PID is (i know its pelvic inflammatory disease) but I know nothing more than what it's called, clue me in?

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Post  Kate1981 on Thu May 02, 2013 3:07 pm

Hi tanyam
I think you should find a women's health pelvic floor physio who has a good knowledge of the pudendal nerve. If you look on the pudendal hope website there is a list of specialist physios. I think you need someone who can give you a thorough pelvic floor examination to see what's going on. I've been having physio for a good few months and it's definitely helping its hurts at the time and afterwards but my trigger points are loosening inside and outside. I take nortriptyline 40mg and lyrical 300mg per day. My nerve is going crazy why no one seems to know.

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Post  tanyam23xo on Thu May 02, 2013 3:36 pm

Kate, does the therapy help your pain? and does the medication? Seems we are on the same medication!
Alana, sent you a private message:)

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Post  Alana3 on Thu May 02, 2013 4:13 pm

sent you a text

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Post  tanyam23xo on Thu May 02, 2013 4:57 pm

I didn't get it. 614-361-2041

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Post  Kate1981 on Thu May 02, 2013 5:11 pm

The physio therapy is helping with my pain I have had some pain free days. Does your pain feel deep inside your vagina? Mine is probably about 3 inches inside. I'm not sure about the medication I think it just takes the edge of the pain. The really bad burning has gone but I don't know if it is the medication or just time

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Post  tanyam23xo on Thu May 02, 2013 6:46 pm

Yes. Mine is deep inside my vagina on the right side.

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