Vulvodynia Support
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» Hope to all my suffering ladies
Sex problems confusion with Vulvodynia  EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Sex problems confusion with Vulvodynia  EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Sex problems confusion with Vulvodynia  EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Sex problems confusion with Vulvodynia  EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Sex problems confusion with Vulvodynia  EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Sex problems confusion with Vulvodynia  EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Sex problems confusion with Vulvodynia  EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Sex problems confusion with Vulvodynia  EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Sex problems confusion with Vulvodynia  EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Sex problems confusion with Vulvodynia

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mary jane
lunadaisy
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Post  lunadaisy Wed Oct 30, 2013 10:33 pm

Hi
I have been suffering with the symptoms of vulvo for a long time but did not know what it was. It started years ago and I tried to ignore it. I knew that after I had sex, I would still feel aroused or unfulfilled or just an exaggerated burning feeling in my vulva area... I almost thought I must be "oversexed" but in my head I wasn't. In fact, sex has never been a pleasurable physical thing for me. I would avoid having my partner touch my genital area when ever I could. If they tried to stimulate my clitoris I would cringe in pain it hurt so bad so I would just move their hand away. Instead I would just act like I wanted to please them...to avoid them physically touching me... it was just a natural reaction that I really couldn't explain at the time.
Afterward the sex was over, the throbbing and itching and burning began and made me want to try to climax thinking that since I was aroused during sex but didn't climax then my body wanted to complete the task.. so after my partner was gone or not around I would use a vibrator to try to climax... to get the throbbing and pain to stop...... that was probably the worst thing I could do because it would make the vulvodynia symptoms even worse... and I would try the vibrator again trying to climax thinking that is all I needed to relieve this horrible feeling..... Since I lived alone... sometimes I would try this remedy 4 0r 5 times a day until the symptoms would stop or I would stop thinking about it.... I would also sit in a hot tub of water which did seem to help a little and after a few days eventually my body would settle down... until I had a sexual encounter again... and that whole thing would start over.... So now... I have not had sex in a long time but my acute vulvo has turned into chronic without any sexual stimulus at all... I just hurt, itch burn, feel bloated, and have symptoms of a uti even though I do not have a urinary tract infection and I do not have a yeast infection.....just the symptoms ...and now it is a daily issue. When I am really busy I can some how ignore it but if I am working on the computer, watching tv, or crocheting or anything I do that is not strenuous ... I am uncomfortable, itching and burning and quite irritable. I also feel the pain inside of my vagina too. I have seen a gyn and had a pap smear that hurt like hell ... I felt sorry for the doctor because I was crying while she did that proceedure. I am wondering if that too is a sign of vulvodynia. Anybody else have painful pap smears. Ok... it is a little hard to be so personal but all the women on here have been kind enough to share their very personal stories so I feel I should shed my shyness in describing how I feel. Maybe others can also relate or have some insight as to my story. I am wondering if the vibrator didn't cause more damage to that very tender area too.

lunadaisy

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Join date : 2013-10-29

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Post  mary jane Thu Oct 31, 2013 11:45 am

@lunadaisy

please see a specialist gyn for your problem as soon as possible and try some plevic floor therapy.
Why do you say pap smears hurt you ?
I have the same issue, mine is due to severe vaginismus
mary jane
mary jane

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Join date : 2013-10-05
Location : UK

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Post  Alana3 Thu Oct 31, 2013 1:09 pm

pap smears hurt a lot of people with v.

Alana3

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Post  Kathy100 Thu Oct 31, 2013 2:40 pm

Yes - I had to have my last one under anaesthetic.

Kathy100

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Post  lunadaisy Thu Oct 31, 2013 3:37 pm

Thanks Kathy Good to know they will give you the pap smear with anesthetics because after my last one I swore I would never have another one!! Mary Jane, I don't know why it hurts so bad but it was torture! Maybe the Vulvo is associated with it....a couple of women have responded with the same painful pap smears that have V on this site.
I have an appointment with a urologist in a couple of weeks who works with gyn problems as well... I dread that because he wants to look into my uritha with a camera.... omg that is going to hurt like hell. Which leads me to something else that might have some meaning to someone... when I was 30 I had a lot of uti and kidney infections. My gyn said that she did not want to keep treating it and thought I should see a urologist to find out why I was having these uti/kidney infections so often. So I made the appointment. The urologist said my uritha was too narrow to drain all of the urine in my bladder when I peed and said he was going to "stretch it" ... I was already on the table with my legs spread, and then he took a metal rod and proceeded to stick it up my urita.... omg I almost hit the ceiling in pain and shock... he did not prepare me for such a torture .... I imaged witch hunts... if you scream you must be a witch as they tortured you back in the medival days... who the hell would stick a metal rod in a womans uritha without some kind of anisthtic... after that procedure, I had to go teach a class later in the day. I excused myself from my class to go to the restroom to pee... and omg I had to bite my lip and hold on to the wall as I peed as the pain was even worse than the rod! That lasted over 3 days every time I had to pee. so the urologist decided that I was not a candidate for "stretching torture" so he suggested I have an operation called a urithiatomy or something like that. I was admitted to the hostiptal and under anistesia they cut my urithia to make it wider. The hope was that my bladder would drain more properly and I would not keep getting infections. It took over six months to heal from that but finally I did and stopped having the UTI and kidney infections. However, before I learned about vulvadynia I made the appoint with the urologist becasue my symptoms also extend to my uritha which actually hurts.....I have had two urine test and they came back no bactiria or urinary track infestion, no blood, no sign of any problem with the urine test. So that is why he wants to "take a closer look at the urithia" .....so I told him about the rod issue and he said he would give me a script for one valuim to take before the proceedure(by the way one valium cost me 10 bucks at Walgreens as the drug companies really do rip us off in the United States) Anyway, I still might back out of going back to the urologist as I am so affraid of the pain. Has anyone ever had urinary problems with V? Anyone ever been tortured with a metal rod by a urologist? Any problems at all with the urithia in connection to Vulvadynia by women on this site? I would really like to know if this is also a condition or is a seperate issue. Thanks to everyone who responded to my last letter. Ps I have noticed if I take a motrin it helps sometimes... But the bloating of my belly is driving me crazy as well. I was fine this morning but as I sit here typing... I feel all my syptoms creaping up on me.... yuk

lunadaisy

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Post  Alana3 Thu Oct 31, 2013 4:50 pm

Urinary problems are common with vulovdynia, I had them but as soon as I had my vestibulectomy they all went away. Find a gynecologist who specializes in vulva problems rather than a regular urologist. And valium is 10 dollars no matter what the quantity is I get them single or 50 and they're always 10. But yeah, with my vulvodynia I had urinary issues as well, it sometimes goes hand in hand. If you have no bacteria have they tested you for IC?

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Post  Leslieg Thu Oct 31, 2013 4:54 pm

Luna, I've heard of one case (it may have been o this forum) where a woman had yeast overgrowth in urethra that was the cause of all her V issues.  I believe she was treated with long course of antifungals and was OK.  Maybe ask them to swab/culture urethra at your next appointment?  Just a thought........

Leslieg

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Post  Sarah001 Thu Oct 31, 2013 7:31 pm

Mine is caused by pelvic floor dysfunction and when I clench really badly I get urinary symptoms too so I would definitely consider a Women's Health PT. The previous treatments on your urethra may have set off pelvic floor spasm because of the pain and that in turn can cause V. As for smears, I'm years overdue for one because I can't face the extra pain right now, not sensible but if I had any odd symptoms I would go.
Sarah001
Sarah001

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