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Gabapentin Gel. or other topical creams
Thu May 10, 2018 9:43 am by Rosie21
Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.
Comments: 2
Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?
Sat Aug 01, 2015 4:17 pm by Fielder
Hi everyone,
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
Comments: 11
An absolute success story- please read!
Fri Mar 08, 2019 10:57 pm by Persevere1990
Dear All,
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
Comments: 0
I'm sorry im rambling
Thu Feb 21, 2019 5:49 am by Jet227
hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …
Comments: 1
New member need advice please
Thu Feb 28, 2019 11:33 pm by PANDORA123
Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.
Thanks
Thanks
Comments: 5
MonaLisa Touch
Fri Feb 08, 2019 7:35 pm by rl2091
Hi All,
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
Comments: 3
Diagnosed Recently
Tue Jan 08, 2019 3:55 pm by flissyg
Hi All,
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
Comments: 4
New and need advice and help
Wed Dec 05, 2018 3:26 pm by Cin124
Hi everyone,
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
Comments: 6
New here would very much appreciate advice at the end of my rope
Wed Jan 09, 2019 9:09 pm by Jma990o
This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
Comments: 3
Trying to have a Positive Attitude!
2 posters
Page 1 of 1
Trying to have a Positive Attitude!
Hello, I have had vulvadynia (unknowingly) for 5-6 years. I have read alot of posts from other people who have suffered or still suffering from it. Its been so interesting to see the simalarities in alot of peoples cases! I have had an almost constant internal burning, numb-like feeling down below since the age of 12. I am recently turned 18. At first, like many I think, I was convinced the pain was a water infection or thrush, when the pain continued and results came up negative, I was put on a bit of a downer! I visited doctor after doctor, all telling me it will calm down in a few days. I listened to the doctors and believed the pain was temporary, even though doctors never gave me an answer. As the pain continued and slowly felt worse and more intense, I had more trips to the doctors- all hope still there!!! I was given loads of advice: wear cotton knickers, avoid fragranced products, dont overly clean down there (as am sure you will agree, it can really make you feel unclean), etc etc. I clung onto the advice and followed it to the T. As I got to around 14 the pain still there, I was sent for vaginal examinations at least 4 times that year. Which all concluded I was healthy. You would think it was a relief but I just wanted to know what was wrong with me! As I started to grow more frustrated with being sent from one dr to the other, with no answers. A year passed and I had tried all creams in the book. I was sent for scans which revealed I had polycystic ovaries, I was reassured this wasnt causing my pain. Doctors then tried me on microgynon the contraceptive pill, and later Femodette. Both made me very ill so I stopped taking them. This was to control my hormones however they did not make a change. I was prescribed Gabapentin, which I was reluctant to try. After a few years, I was put in to have investigative surgery as the pain was intense and effecting my mental health and wellbeing. The results came back that I was healthy. At first I was relieved- thinking of disasters that they might tell me. But then the pain set in and so did my disappointment! Still no answers! Before my op, my gynacolagist muttered around the word 'vulvadynia' and said it could possibly be my condition. I have to be honest and say positivity around this subject isnt my strong point and Ive found that difficult! I have had acupunture, physiotherapy to no avail. my doctor said it is unusual for women my age group to suffer with vulvadynia. I am currently going back on Gabapentin and seeing a specialist in January. I have had enough of this awful condition. My head and my body are fed up! I have booked myself a appointment to try attend cognitive behavioural therapy which helps you manage the way you deal with situations. I was skeptical after turning down physco sexual conselling I was offered by my gynaecologist(seem to think its all in your head?), but I would definitely recommend. Thank you.for reading my story. I would love feedback to my massive rant, a big weight has just been lifted!!!
aajoycex- Posts : 2
Join date : 2013-11-21
Re: Trying to have a Positive Attitude!
1. systemic yeast?
2. it could be pudendal neuralgia
3. ever had a biopsy taken?
4. does your vulva hurt at all?
5. where is the numbness you talk about?
6. you poor thing, so young! I can relate
7. how bad is the pain on a scale from 1 to 10?
2. it could be pudendal neuralgia
3. ever had a biopsy taken?
4. does your vulva hurt at all?
5. where is the numbness you talk about?
6. you poor thing, so young! I can relate
7. how bad is the pain on a scale from 1 to 10?
mary jane- Posts : 345
Join date : 2013-10-05
Location : UK
Re: Trying to have a Positive Attitude!
I know what you mean about positive attitude, I'm in my 20s and was so eager to start dating again after a break up from hell
and now this pain happened.
I have vibrating pain, spasms, stabbing, aching. Hoorah !! sometimes it feel as if I had invasive surgery of my labia
and now this pain happened.
I have vibrating pain, spasms, stabbing, aching. Hoorah !! sometimes it feel as if I had invasive surgery of my labia
mary jane- Posts : 345
Join date : 2013-10-05
Location : UK
Similar topics
» My journey - believe it or not it's a fairly positive one!
» Positive affirmations...
» feeling :( any positive words please?
» Positive affirmations...
» feeling :( any positive words please?
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Fri Oct 23, 2020 12:04 am by ringostarr26
» Please tell me this can get better
Sat Jul 18, 2020 7:38 pm by sammykramer
» By no means cured, but doing much better!
Mon Mar 16, 2020 1:26 pm by tinkerbelle2
» How I cured my Vulvodynia!
Sat Dec 07, 2019 11:54 am by Millie
» 7 months since the diagnosis
Wed Aug 14, 2019 2:38 am by agtoronto
» Gabapentin Gel. or other topical creams
Sat Jun 15, 2019 5:22 pm by mary jane
» IMPORTANT FOR UK SUFFERERS
Sat Jun 15, 2019 5:21 pm by mary jane
» Help New Diagnosis
Sat Jun 15, 2019 5:07 pm by mary jane
» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Tue Jun 11, 2019 12:56 am by VVSSufferer