Can't find anything positive

Why is it when you search "Vulvodynia" you can't find any success stories? I only found one and of course that person is selling a product. I want real success stories!

Sure my pain has stumbled down to a tolerable level but it's still a punch to the ego! I catch myself analyzing women around me thinking "how lucky is she that her crouch isn't on fire". Of course I'm noted terribly for doing that since when I first found out I had HSV-1 I would count 5 people and think "Well there's 1 person in that group just like me". Sure this is manageable and thankfully I'm not knocked out with the pain I dealt with at the beginning but I can't help but think how it felt to feel nothing at all and also sort of "forget" you have a lady part.

Another doctor's appointment Monday, new doctor, new start. I'm going to go crazy if this one can't shed light! Tired of being pushed to the side, I need relief, this problem is real, this pain is real, listen to me! & sometimes your going to have to think outside the box, you should want to fix me not push me along and let me suffer!

I feel for every single lady and their significant other. This condition is hell!

I completely agree with you!!! I look for sucess stories all the time and can never find anything. I am always saying to my best friend how lucky she is because she is comfortable..but I dont think she understands my situation that much I get cold sores from time to time and seriously thought that is the worst thing that could happen to me. I complain so much when I get them...i would honestly LOVE to get rid of this problem I have and I would never complain about a cold sore again lol. When i'm at work I always am looking around thinking..hmm i wonder if anyone else here has a condition like me? I feel like such an outcast -_- and the worst part is not being able to talk openly about it since it's in such an awkward area.

GOOD LUCK at your appointment and post how it went:)

I've found some in the past, you do have to really look for them though but think about it, you get your life back and the V is gone so how many women in that position would report back the success? Not many, they'd be too busy getting on with things. It really depends on the source of the problem as to how it should be treated, remember Vulvodynia isn't really a diagnosis it's just a description of symptoms so search for the cause is my advice.

ilovebaxter1 wrote:I completely agree with you!!! I look for sucess stories all the time and can never find anything. I am always saying to my best friend how lucky she is because she is comfortable..but I dont think she understands my situation that much I get cold sores from time to time and seriously thought that is the worst thing that could happen to me. I complain so much when I get them...i would honestly LOVE to get rid of this problem I have and I would never complain about a cold sore again lol. When i'm at work I always am looking around thinking..hmm i wonder if anyone else here has a condition like me? I feel like such an outcast -_- and the worst part is not being able to talk openly about it since it's in such an awkward area.

GOOD LUCK at your appointment and post how it went:)

I'm glad you understand how I feel, even though it's a sucky thing to feel.

Just went through my e-mail from QualityHealth - Women's Health. Awkwardly there was a link to an article of Vulvodynia.
http://www.qualityhealth.com/news/genital-pain-not-uncommon-among-women-survey-23821?rf=59050&mc=MzY0MDg0Mjc.&emailPID=109999&ct=36921

A recent clinical trial found that one antidepressant, called desipramine (Norpramin), and lidocaine -- used either alone or together -- appeared no better than inactive placebo pills and ointments. On average, women's pain improved over three months whether they got the real treatment or not.

There's hope and I'm thankful that at least someone is writing an article to get this condition out there so I will be sending a thank you note to them asap.