Vulvodynia Support
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» Hope to all my suffering ladies
Contraception related? Implant/injection EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Contraception related? Implant/injection EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Contraception related? Implant/injection EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Contraception related? Implant/injection EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Contraception related? Implant/injection EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Contraception related? Implant/injection EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Contraception related? Implant/injection EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Contraception related? Implant/injection EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Contraception related? Implant/injection EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Contraception related? Implant/injection

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Post  morgaan_xo Fri Aug 08, 2014 12:50 pm

This is purely out of interest... Did anyone else start getting symptoms of vulvodynia and pain down there after having the progesteon only implant or injection??

morgaan_xo

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Post  sailor_moon Sun Aug 10, 2014 2:20 am

No, but I definitely believe birth control/hormones plays a part. All my problems started after coming off the pill.
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Post  morgaan_xo Sun Aug 10, 2014 4:16 am

Hmmm, were you on progesteon only pill?

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Post  sailor_moon Sun Aug 10, 2014 4:21 am

No I was on combined. After seeing a new specialist he suspects estrogen may be my problem, whether it be deficiency, too much, or estrogen sensitivity. Or a combination of estrogen and Progesterone. I have to undergo blood tests for every week of the month to see what my hormones are doing. I just started taking Provera (Progesterone) to make me get my period so I can start the blood tests. No period yet.
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Post  morgaan_xo Sun Aug 10, 2014 9:22 am

See I think mines all down to hormones but my gyna won't babe any of it! She did one blood test and said there was nothing wrong... Do you have to so quite a few to see if there is anything going on?

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Post  sailor_moon Sun Aug 10, 2014 9:31 am

Really? One blood test?

I just saw a new doctor on Tuesday who believes it is hormonal related. My I have only had 3 periods since January. And I have other symptoms as well.

He is giving me Provera to take so I will have a period. Then I stop taking it when my period comes. Then, 7 days after my period starts I have to have a blood test, then 7 days after that -on day 14, then day 21 then day 28 to see what my hormone levels are doing, when and whether or not they are rising snd falling, whether I'm even ovulating or not ect. He said a one-off basic blood test will not show hormone imbalance, as the imbalance is often at particular times of the month ect . My symptoms are always worse leading up to and during my period. Even worse if I don't get my period.

Do you have any other symptoms?
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Post  morgaan_xo Sun Aug 10, 2014 9:49 am

Yes one! I'm seeing her again in September so I'll just say that it won't show up on one, doubt she'll like that ahahah

And mine is that I'm having to many they're really irregular and have about a week or two week break, that's only been this year though as my injections wearing off but my symptoms have got worse since my periods have been coming and going. When I was on my injection I didn't bleed at all but I'd have a constant burning pain and was unable to have sex, now my injection is wearing off my pain is worse before and after my period, my skin is physically sore at this time too! This is what makes me thinks it's hormones and yours sounds a lot like mine to be honest!! I think I need to find a different doctor! Your doctor actually sounds interested to sort your problems!!

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Post  sailor_moon Sun Aug 10, 2014 10:06 am

Well there you go then! Obviously if you are having irregular periods like you are there is obviously a hormone problem, whether or not it is related to your V symptoms it still needs to get sorted! They need to see what your hormones are doing to try and sort them out.

Did your problems start while on the injection?

See, I am 26, I went on the pill at 17 to stop my horrible horrible periods. I had vomiting, fainting, diarreah, periods would last for 10 days and be so heavy they looked like chopped liver and were extremely irregular.

So, I was on it for 9 years. And while the pill made my periods regular and shorter, I'd still get diarreah and migraines and all that bad PMS biz.

It was when I came off the pill at the start of last year my problem started. I wonder if I have had a big hormone problem all this time but the pill has masked my symptoms for the past 9 years. My V symptoms started 1 month after I went off the pill.

It has taken 12 doctors to get to the one I have just started seeing. I pray that my tests will show something.

Have you thought about seeing a different doctor?

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Post  sailor_moon Sun Aug 10, 2014 10:08 am

http://m.nativeremedies.com/ailment/symptoms-of-hormone-imbalance.html


Check out this link and scroll down to where you can click and view all the different hormone problems. Very interesting!
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Post  morgaan_xo Sun Aug 10, 2014 4:08 pm

I'm going to address the hormone problem again when I next see her, she only did a blood test because I kept going on and on at her!!

I'm 17 now And my problems started while I was on the implant at the age of 14 because I was bleeding all the time and I developed an over active bladder and bladder pain syndrome, I had the implant taken out at the age of 15 and then they put me on the injection to stop my bleeding and my problems became worse and more noticeable and I thought if I came off the injection it would go but my body still hasn't gone back to normal and it's been almost a year since I stopped having the injection (stopped that at 16) so I think my hormones are still all over the place!! I have had my problems for two and a half years!

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Post  A2015 Fri Aug 14, 2015 10:20 am

I wanted to post about my story to reiterate that there are DEFINITELY cases where VVS is caused by hormonal contraceptives, even when not immediately obvious.
I want to desperately encourage anyone who has VVS to come off hormonal contraceptives if possible.

In 2012, I had unprotected sex and took the morning after pill. I developed vestibule redness/soreness/itchiness. The clinic confirmed a Yeast & BV infection, explaining that this was common after sex (though I had never had any vaginal problems for years before). They also put me on the Pill (Microgynon 30). The infections cleared (tested negative) but my symptoms remained constant.

My symptoms extended beyond vestibule pain. I also had itchiness, redness & subtle inflammation of the whole vestibule (localised to this area), my vestibule skin started to tear during sex, get more inflammed & very regularly develop new infections (Yeast/Bacterial). I also had a lot of discomfort/itchiness in & around my anus.

Firstly, this made me question whether I had VVS because I didn't just have pain of the vestibule, as I kept getting infections too (now I understand that women with VVS are often simply more prone to infections & discomfort of the whole area).
Secondly, I assumed my VVS must have been caused by the infections (proliferation of nerves in the vestibule after infection), because the symptoms I had felt like they were permanent, that the skin itself was not normal anymore & seemed irreparable.

I didn't come off the Pill until mid 2013, when I had read more info about a link. I felt I should just come off it in case it might have been making anything worse.

The reality was (by my complete surprise and total elation) that within a month, my vestibule returned to completely normal and ALL other related symptoms also disappeared — the anal discomfort/itchiness & bring prone to developing infections.

I hadn't thought the Pill could be causing my VVS, because I had developed the infections before I started the Pill (I didn't consider at the time that just before I got the infections, I had taken the morning after pill which is a huge dose of progesterone). I also had no understanding of hormones & no idea how they could cause pain in a specific area of the body like this! Every doctor I asked said there was no way the Pill was relevant, which made me have little hope.

I believe there are 2 main causes for VVS — hormonal or a response to an infection. But there can be an overlap, and I didn't consider the Pill could be the cause because I kept getting the infections. But I was mistaken (and so were over 10 doctors & specialists).

I really hope this can help any women suffering.

As a side point, unfortunately, after being perfectly normal for 18 months, this year I developed infections (no hormones involved) and VVS has fully returned. I feel that my body has learned how it responded to infections when I was on the Pill, and now the nerves are irritated again = VVS Sad

A2015

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