Vulvodynia Support
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» Hope to all my suffering ladies
NEED ADVISE EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
NEED ADVISE EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
NEED ADVISE EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
NEED ADVISE EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
NEED ADVISE EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
NEED ADVISE EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
NEED ADVISE EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
NEED ADVISE EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
NEED ADVISE EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


NEED ADVISE

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Post  Mubhaus Wed Dec 24, 2014 6:56 pm

I HAD A HYSTERCTOMY IN APRIL OF THIS YEAR, IM 46 AND ATER THE FRIST TIME WE HAS INTERCOUSE ALMOSY 3MONTH LATER I STARTED HAVE BURNING . I WAS TREAT FOR A FEMALE INFECTION, AND THAT DID NOT WORK. I M MARRIED TO WONDERFUL MAN WHO IS UNDERSTANTING, BUT I'M SICK OF THIS. MY DOCTOR LISTENED TO ME AND GAVE SOME CREAM FOR PAIN AND A ANTIDRESSANT WITH PAIN MEDS. I STILL HAVE FLAIR UP'S.

Mubhaus

Posts : 1
Join date : 2014-12-24

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Post  JulesB Fri Jan 16, 2015 8:08 am

See my post - "what worked for me". Also, as you are 46 and had a hysterectomy it may be due to drop in oestrogen levels which causes the vaginal tissue to because less elastic, thinner, and more fragile and also causes reduction in you own natural lubrication. Oestrogen cream or pessaries is t he usual cure for this - it should return you vaginal tissue to its normal moisture, elasticity and toughness. If you cannot use oestrogen or it doesn't agree with you, there are several vaginal lubricants and moisturisers on the market that help the tissues return to normal, e.g. Yes water based lubricant, Sylk, Woohoo, Balance Activ Menopause, Pegaso IntiNorm, Lubrigyn Cream. Be sure to choose one that has natural ingredients and no chemical nasties. All those I have listed are natural and match vaginal PH, several contain hyaluronic acid which is the same chemical in your body that keeps cells moist. am in the process of going through these to find one that doesn't sting me - I have had vulvodynia for 2 years which has left the skin around my vaginal opening very sensitive to products. Now I have vaginal dryness due to menopause (dropping oestrogen levels), and want a nice natural vaginal moisturiser. All those products I have listed can be bought on Amazon, except Woohoo which is from Boots. Some are available on prescription (Yes, Sylk). My GP gave me hyalofemme which she said many find good, but it stung me (chemicals). You need to find what works for you and doesn't irritate. Try the oestrogen cream / pessary - these give some people sideveffects, which is why I am holding back from trying that unless all else fails.

JulesB

Posts : 22
Join date : 2015-01-14

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