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Gabapentin Gel. or other topical creams
Thu May 10, 2018 9:43 am by Rosie21
Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.
Comments: 2
Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?
Sat Aug 01, 2015 4:17 pm by Fielder
Hi everyone,
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
Comments: 11
An absolute success story- please read!
Fri Mar 08, 2019 10:57 pm by Persevere1990
Dear All,
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
Comments: 0
I'm sorry im rambling
Thu Feb 21, 2019 5:49 am by Jet227
hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …
Comments: 1
New member need advice please
Thu Feb 28, 2019 11:33 pm by PANDORA123
Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.
Thanks
Thanks
Comments: 5
MonaLisa Touch
Fri Feb 08, 2019 7:35 pm by rl2091
Hi All,
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
Comments: 3
Diagnosed Recently
Tue Jan 08, 2019 3:55 pm by flissyg
Hi All,
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
Comments: 4
New and need advice and help
Wed Dec 05, 2018 3:26 pm by Cin124
Hi everyone,
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
Comments: 6
New here would very much appreciate advice at the end of my rope
Wed Jan 09, 2019 9:09 pm by Jma990o
This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
Comments: 3
In desperate need of suggestions for natural remedies
3 posters
Page 1 of 1
In desperate need of suggestions for natural remedies
Hi, everyone i am new to this forum but not to vulvodynia i have had this condition seince i was 6 yrs. old on and off it turned into a cronic condition after the birth of my first child when i was 17 i am now in my mid. thirties i have delt with condition every day seince i have been to numerous Dr.'s over this condition and have been put on many different antidepressants they have helped somewhat for the pain but they all cause me to have horrible heart burn and have had to stop taking them i told my current Dr. about this and she just shrugged it off and told my to try antiacids which don't really help much.So my question is has anyone ever tried St. John's wort for vulvodynia i was reading it is supposed to be comparible to prozac i am on nothing but lidocain ointment to dull the pain please if anyone has some natural remedies that really worked for them i would be greatful if you would share any suggestion's i am in really bad pain it feels like burning acid down there constantly .Thanks
Becca36- Posts : 1
Join date : 2015-01-12
Age : 46
Location : Saginaw,Mi.
Re: In desperate need of suggestions for natural remedies
Hi, sounds like you need to find a proper vulva specialist. Can I ask if you have had your hormones tested over a month, testing your levels every week of your cycle? It may be hormonal, especially seeing as it has gotten worse after having a child. I have had this for 2 years, and 14 doctors later, a good doctor finally did a proper hormone test, which showed my estrogen is low, FSH and LH are too high and I have Polycystic Ovaries. And possible endometriosis on top of that. Unfortunately for me, endometriosis feeds and grows on estrogen so I can't have HRT until I undergo an operation to see if I have endo and remove it if it's there, along with any other problems that may be causing my vulvodynia. Have you been to see a good naturopath? Lidocaine gel is the only thing that gives me any relief.
sailor_moon- Posts : 222
Join date : 2014-07-06
Location : Australia
Go alkaline!
Hi Becca!
I've been dealing with this for 6 years. Tried most everything. Stumbled on a post about pH and urine testing. Sure enough, my urine is VERY acidic. So i started being my own guinea pig and testing my urine as I tried different foods, supplements. I am absolutely helped by adding alkaline foods and reducing acidic foods. I can even have full days with no pain. And as soon as I eat chocolate or pasta, etc. the burning comes back. So, perhaps this is something you should give a try. There is lots of good info out there. I like the website alkalinesisters dot com, tho I don't take my diet to their extreme (maybe I should!).
I don't eat much meat or dairy anyway, but I love carbs, coffee and chocolate. So, I have reduced intake of these things and increased veggies and green drinks. I add SuperFood (herbdoc dot com) to my Pea Protein (Nutrasumma) shake. I take Spirulina capsules with meals. And CUCUMBERS are super alkalizing, so I try to eat them often.
It's worth a shot. I wish you relief!! -Oh! Another easy way to reduce acidity is to take a little baking soda in water (1/2 tsp) but this you need to do AWAY from food, a few hours away. Good luck to you! I hope this is helpful!
Lulu
I've been dealing with this for 6 years. Tried most everything. Stumbled on a post about pH and urine testing. Sure enough, my urine is VERY acidic. So i started being my own guinea pig and testing my urine as I tried different foods, supplements. I am absolutely helped by adding alkaline foods and reducing acidic foods. I can even have full days with no pain. And as soon as I eat chocolate or pasta, etc. the burning comes back. So, perhaps this is something you should give a try. There is lots of good info out there. I like the website alkalinesisters dot com, tho I don't take my diet to their extreme (maybe I should!).
I don't eat much meat or dairy anyway, but I love carbs, coffee and chocolate. So, I have reduced intake of these things and increased veggies and green drinks. I add SuperFood (herbdoc dot com) to my Pea Protein (Nutrasumma) shake. I take Spirulina capsules with meals. And CUCUMBERS are super alkalizing, so I try to eat them often.
It's worth a shot. I wish you relief!! -Oh! Another easy way to reduce acidity is to take a little baking soda in water (1/2 tsp) but this you need to do AWAY from food, a few hours away. Good luck to you! I hope this is helpful!
Lulu
Lulu- Posts : 2
Join date : 2014-12-22
Similar topics
» I saw an interesting book on V- with natural remedies
» This 3 year nightmare.
» Cured from vulvodynia - no really
» This 3 year nightmare.
» Cured from vulvodynia - no really
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Fri Oct 23, 2020 12:04 am by ringostarr26
» Please tell me this can get better
Sat Jul 18, 2020 7:38 pm by sammykramer
» By no means cured, but doing much better!
Mon Mar 16, 2020 1:26 pm by tinkerbelle2
» How I cured my Vulvodynia!
Sat Dec 07, 2019 11:54 am by Millie
» 7 months since the diagnosis
Wed Aug 14, 2019 2:38 am by agtoronto
» Gabapentin Gel. or other topical creams
Sat Jun 15, 2019 5:22 pm by mary jane
» IMPORTANT FOR UK SUFFERERS
Sat Jun 15, 2019 5:21 pm by mary jane
» Help New Diagnosis
Sat Jun 15, 2019 5:07 pm by mary jane
» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Tue Jun 11, 2019 12:56 am by VVSSufferer