Merry Christmas your ass!!!

Merry Christmas everyone! I hope you have fabulous holidays.

My all time favourite Christmas song is the the Pogues Fairytale of New York. Check it out. We sing this at Christmas lunch - oh dear!

https://www.youtube.com/watch?v=HXfd5ATIogc&feature=fvst

Thank you mouse..hope you had a good Christmas too xx

My new years resolution is to try every damn treatment under the sun till I get some relif! Gonna drive my drs mental!! Mwahaha!!

I had a fab Christmas. I did lunch for my husbands family and we ate in the garden - lovely!

Yes let's make this the year of the cure! I've already pestered my doc for a physio referral and one to a womens health Dr. She is very expensive though and already booked through to March! The initial appointment(if I break my fictional piggy bank or sell one of my children)is for 2 hours so I anticipate quite thorough. I also tried for a referral to the therapist I already see because then it would be funded, no such luck. It's costing a bloody fortune and not covered under my health insurance ggrrrr. Have I mentioned she's the only person keeping me sane?

If I see the new Doc I'm going to be looking at hormone levels?

I suggest the selling one of the children option!

Let us know how the consultations go. Its a shame its not covered under your insurance is there anyway you can get round that? I dont know much about insurance as we have the NHS even though it can be well crappy its free. Although I do pay for my own therapist to keep me sane! sod all mental health help on the NHS.

I know which child I would pick at the minute as well!

I discovered a few months ago that I have a family member with vaganismus (diagnosed by me) - funny how things make sense after this journey. She's never used tampons and it only occurred to me recently to ask if she could have sex... a resounding NO and she thought that was normal because it's never been pain free. Anyway she's yet to find a the right specialist (I know a good one but has been referred to a therapist so that was free. My Doc just looked confused when I mentioned it.

Sebby have you thought about starting a group on FB? You can make a private group. There are a few already, it would be fun to see peoples cute little faces as well.

Naimo made a private group called ladies will la la problems lol I think just me and her joined!

Thats a good idea though except facebook changed the group settings so instead of inviting people to join you just click on them and they are kinda forced to join! lol most people dont seem to like that so I wouldnt go down that road!

It would be good to look into a private group though as the ones I have seen on facebook are not private and I feel that puts alot of people off.

I also had and have Vaganismus and I feel its linked to the eventual Vulvodynia like a precurser to it. There is a good site she can look at

http://www.vaginismus.com/

Owww well the one I've just joined (for my other little problem), the admin asked ppl to send their email addresses and she then added them. It's great because it doesn't post on your wall I think people can unlike if they are not keen as well.

Thanks for the info, her pelvic floor shuts down completely so I guess physio is going to help with that. I'm hoping not the surgery route.

I'm going to look that group up now!

Hey! I've just created the facebook page..its a secret group Shhh lol its called Vulvodynia Support Facebook

Fanx Mouse.. oh and please join

Owwww exciting!!! Can you post the link? I just tried it and came up with the another one called vulvodynia support.

https://www.facebook.com/home.php?sk=group_142536492467765

Here is the link...

ok small glitch that just takes me to my homepage. You may need to invite people? My email is thelifeofriley@xtra.co.nz