Vulvodynia Support
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» Hope to all my suffering ladies
Newly Diagnosed, I have been suffering now for 6 months. EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Newly Diagnosed, I have been suffering now for 6 months. EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Newly Diagnosed, I have been suffering now for 6 months. EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Newly Diagnosed, I have been suffering now for 6 months. EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Newly Diagnosed, I have been suffering now for 6 months. EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Newly Diagnosed, I have been suffering now for 6 months. EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Newly Diagnosed, I have been suffering now for 6 months. EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Newly Diagnosed, I have been suffering now for 6 months. EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Newly Diagnosed, I have been suffering now for 6 months. EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Newly Diagnosed, I have been suffering now for 6 months.

2 posters

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Newly Diagnosed, I have been suffering now for 6 months. Empty Newly Diagnosed, I have been suffering now for 6 months.

Post  OBRN2007sms Tue Feb 10, 2015 4:21 am

I am 45 have recently moved to another state; under a lot of stress because we cannot sell our house and are carrying two mortgages. Three days before I started to have problems with this I went to my orthopedic and had a steroid shot in my hip but something went wrong and the injection went into my sciatica nerve and I and a reaction to the lidicaine I ended up in a wheel chair because I was essentially paralyzed for ten hours after this. Then BOOM I have not been normal since I don't know if one has to do with the other but this has ruined my life!!! And my husbands!!!! I first thought I had a yeast infection that wouldn't go away but the cultures would come back negative and then I got some type of inflammation in my vagina one doctor said I was allergic to something then another said I had herpes but those tests came back negative; I would keep coming back and they would just say keep rubbing premin cream on it and it should get better but that never happened. So finally I was referred to the Vagina God I was told; I have been going for six weeks now I am maybe 50% better than I was, I have good days and bad days.

OBRN2007sms

Posts : 12
Join date : 2015-02-10
Age : 55
Location : Alabama

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Newly Diagnosed, I have been suffering now for 6 months. Empty Re: Newly Diagnosed, I have been suffering now for 6 months.

Post  meelie Tue Feb 24, 2015 4:20 am

If he let a student do this I would most definitely be talking to a mal practice lawyer. No way in hell would a I let anyone but an MD or qualified DO do this. I too am an RN. I am so sorry about what you are going through. I had a PA almost cost me my life way back in the early 1980s by thinking he was a Dr. and once more I trusted one in 2002 and I almost bled to death. No way will ever let anyone but a Doctor do any procedures on me from now on.

meelie

Posts : 136
Join date : 2013-01-09
Location : Barnesville, Ga

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