Vulvodynia Support
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» Hope to all my suffering ladies
guys point of view?  EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
guys point of view?  EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
guys point of view?  EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
guys point of view?  EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
guys point of view?  EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
guys point of view?  EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
guys point of view?  EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
guys point of view?  EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
guys point of view?  EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


guys point of view?

2 posters

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Post  liamab Sat Jun 13, 2015 11:36 pm

I don't really know where to turn & have just stumbled upon this forum while looking for advice/therapy... I don't even know.

Long story short, have come out of a long term relationship where she suffered extremely badly from vulvo/vesp and everything that goes with that is terrible...

I am now into my first 'relationship' since, and we haven't had intercourse (6 weeks in) and it would be my first since the above experience... I just can't face it? I have a constant fear that I am just going to both physically/mentally hurt this new girl I am seeing.

She totally understands and is great, 'well work it out together' But i generally don't know what to do and I'm almost at the point where I want to end what we have because I feel so bad for her (were only in our 20s) .... I can't imagine how you have to deal with both the physical/mental damage these conditions cause but is there anything you have had to overcome/do with your bf/husbands to 'get by'?

liamab

Posts : 2
Join date : 2015-06-13

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Post  sailor_moon Sun Jun 14, 2015 9:45 am

At least you care enough to post here seeking help, that's a great start as it shows you really are a genuine nice guy who is just after sex. She should consider herself lucky she is with a guy who is not just trying to get in her pants! I take my hat off to you.

I think in any relationship the biggest things is communication, honesty and trust on both parts, as long as she and you are both upfront and honest with each other on how you feel and are SUPPORTIVE of one another you will be fine.

Sex shouldn't be priority in a relationship, all the above traits are what build the foundations of a stable relationship. Without these, regardless of whether there is sex or not, any relationship will fail.

I hope everything works out for you! Vulvodynia is an extremely hard road mentally for both women and the men that are with them.
sailor_moon
sailor_moon

Posts : 222
Join date : 2014-07-06
Location : Australia

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Post  liamab Sat Jun 20, 2015 7:40 am

Thanks for all the above ^^^

But yeh, she's been away with her friends. long story short she's fucked up getting drunk etc you can guess the rest.

I hope for everyone on here these conditions work out for you i really do... as for me, i give up.

liamab

Posts : 2
Join date : 2015-06-13

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