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    » 7 months since the diagnosis
    Please Help. Almost 10 weeks post vestibulectomy and still in pain EmptyWed Aug 14, 2019 2:38 am by agtoronto

    » Gabapentin Gel. or other topical creams
    Please Help. Almost 10 weeks post vestibulectomy and still in pain EmptySat Jun 15, 2019 5:22 pm by mary jane

    » IMPORTANT FOR UK SUFFERERS
    Please Help. Almost 10 weeks post vestibulectomy and still in pain EmptySat Jun 15, 2019 5:21 pm by mary jane

    » Help New Diagnosis
    Please Help. Almost 10 weeks post vestibulectomy and still in pain EmptySat Jun 15, 2019 5:07 pm by mary jane

    » 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
    Please Help. Almost 10 weeks post vestibulectomy and still in pain EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

    » Vestibulectomy next week in London!! - questions!!
    Please Help. Almost 10 weeks post vestibulectomy and still in pain EmptyWed Apr 24, 2019 8:32 pm by HedvigB

    » Dating with Vulvodynia and Vaginismus advice
    Please Help. Almost 10 weeks post vestibulectomy and still in pain EmptyFri Apr 19, 2019 10:25 pm by Tartufo

    » Research Participants Needed!
    Please Help. Almost 10 weeks post vestibulectomy and still in pain EmptyThu Apr 11, 2019 2:09 pm by PelvicPainProject

    » Does anyone else have Endometriosis?
    Please Help. Almost 10 weeks post vestibulectomy and still in pain EmptyMon Apr 08, 2019 7:54 am by Jo44

    Gabapentin Gel. or other topical creams

    Thu May 10, 2018 9:43 am by Rosie21

    Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

    Comments: 2

    Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

    Sat Aug 01, 2015 4:17 pm by Fielder

    Hi everyone,

    I'm a newbie.  I live in the UK.  

    I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

    I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

    Comments: 11

    An absolute success story- please read!

    Fri Mar 08, 2019 10:57 pm by Persevere1990

    Dear All,

    I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

    I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

    Comments: 0

    I'm sorry im rambling

    Thu Feb 21, 2019 5:49 am by Jet227

    hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

    Comments: 1

    New member need advice please

    Thu Feb 28, 2019 11:33 pm by PANDORA123

    Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

    Thanks

    Comments: 5

    MonaLisa Touch

    Fri Feb 08, 2019 7:35 pm by rl2091

    Hi All,

    I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

    Comments: 3

    Diagnosed Recently

    Tue Jan 08, 2019 3:55 pm by flissyg

    Hi All,

    I’m so glad I’ve found a place where there are others who understand how I feel!

    So this is my story:-

    I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

    Comments: 4

    New and need advice and help

    Wed Dec 05, 2018 3:26 pm by Cin124

    Hi everyone,

    About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

    Comments: 6

    New here would very much appreciate advice at the end of my rope

    Wed Jan 09, 2019 9:09 pm by Jma990o

    This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
    So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

    Comments: 3


    Please Help. Almost 10 weeks post vestibulectomy and still in pain

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    Please Help. Almost 10 weeks post vestibulectomy and still in pain Empty Please Help. Almost 10 weeks post vestibulectomy and still in pain

    Post  Summer1 on Tue May 30, 2017 2:15 am

    I had a vestibulectomy with vaginal advancement performed on March 24th for my provoked vestibulodynia. My surgeon told me she had only performed 15 vestibulectomy, but as a urogynecologist that performs many pelvic reconstructive surgeries a vestibulectomy was a piece of cake. Thererfore, I had her perform the surgery and now almost 10-weeks later I regret having the surgery because I feel worse than pre-surgery.

    I initially had the burning and cutting feeling only when I had penetration. Now, without any penetration I am experiencing a hot/burning feeling along with a pricking feeling (like tooth picks stabbing me or little cuts) on my vestibule. I occasionally have this feeling like I have something stuck in my vagina (almost like a compact dry tampon) and I can't wear tight clothes without irritation. Also, I am able to sit, but I still have to position myself to a degree where my vagina isn't completely on my seat, as it causes soreness and a dull pain. And when I have been sexually aroused the pain is unbearable.

    I am terrified by what I am experiencing and have been crying the last week because I have read that by week 8, your pain should be gone and week 8 determines if your surgery was a success. Yet, here I go on 9 1/2 weeks and it feels like I just had surgery. Because my doctor hasn't performed many vestibulectomy, I wasn't given detailed post-op instructions, so a few days ago, I tried inserting my dialtor and was in extreme pain and I don't know if I made things worse by using my dialtor. I also resumed exercising at week 7  (i.e. burpees, squats, mountain climbing)

    Should I be in panic mode? Has anyone experienced pain at this point post-surgery or does it sound like I got a botch job and I should make an appointment with Dr. Goldstein to see if he can correct my problem. My doctor is nice, but because she hasn't done many vestibulectomy she hasn't given me that best post-op instructions. I even told her I was dry down there and did she cover my bratholin gland and she wasn't sure. (Yikes) At my 6 week post-surgery check up she said everything looked good, I still had stitches that needed to dissolve and follow up with her after week 10.

    I don't know what to do. Any advice or input I would greatly appreciate. I feel like pulling my hair out because I feel like I am in a worse position than before. At 10-weeks can what I am experiencing be normal? Or is my panicking justified? Should I make an appointment with a more seasoned surgeon (like Dr. Goldstein) or once you have this surgery there is no way to correct a problem?


    Thank you

    Summer1

    Posts : 1
    Join date : 2017-05-30

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    Please Help. Almost 10 weeks post vestibulectomy and still in pain Empty Re: Please Help. Almost 10 weeks post vestibulectomy and still in pain

    Post  mary jane on Thu Jun 01, 2017 9:30 pm

    Summer1 wrote:I had a vestibulectomy with vaginal advancement performed on March 24th for my provoked vestibulodynia. My surgeon told me she had only performed 15 vestibulectomy, but as a urogynecologist that performs many pelvic reconstructive surgeries a vestibulectomy was a piece of cake. Thererfore, I had her perform the surgery and now almost 10-weeks later I regret having the surgery because I feel worse than pre-surgery.

    I initially had the burning and cutting feeling only when I had penetration. Now, without any penetration I am experiencing a hot/burning feeling along with a pricking feeling (like tooth picks stabbing me or little cuts) on my vestibule. I occasionally have this feeling like I have something stuck in my vagina (almost like a compact dry tampon) and I can't wear tight clothes without irritation. Also, I am able to sit, but I still have to position myself to a degree where my vagina isn't completely on my seat, as it causes soreness and a dull pain. And when I have been sexually aroused the pain is unbearable.

    I am terrified by what I am experiencing and have been crying the last week because I have read that by week 8, your pain should be gone and week 8 determines if your surgery was a success. Yet, here I go on 9 1/2 weeks and it feels like I just had surgery. Because my doctor hasn't performed many vestibulectomy, I wasn't given detailed post-op instructions, so a few days ago, I tried inserting my dialtor and was in extreme pain and I don't know if I made things worse by using my dialtor. I also resumed exercising at week 7  (i.e. burpees, squats, mountain climbing)

    Should I be in panic mode? Has anyone experienced pain at this point post-surgery or does it sound like I got a botch job and I should make an appointment with Dr. Goldstein to see if he can correct my problem. My doctor is nice, but because she hasn't done many vestibulectomy she hasn't given me that best post-op instructions. I even told her I was dry down there and did she cover my bratholin gland and she wasn't sure. (Yikes) At my 6 week post-surgery check up she said everything looked good, I still had stitches that needed to dissolve and follow up with her after week 10.

    I don't know what to do. Any advice or input I would greatly appreciate. I feel like pulling my hair out because I feel like I am in a worse position than before. At 10-weeks can what I am experiencing be normal? Or is my panicking justified? Should I make an appointment with a more seasoned surgeon (like Dr. Goldstein) or once you have this surgery there is no way to correct a problem?


    Thank you


    Hello,

    I have never had a vestibulectomy, however what you are describing is what I had a long time ago.. it's just nerves being irritated or maybe some minor nerve damage in one of the areas. I would not panic, stay calm and ask for nerve pain medication to control the symptoms. In time you will be able to wean off them and you should go back to normal. Lyrica is considered to be the best. It has been over 2 months and you shouldn't feel this pain. I doubt the surgery was poorly done, it;s just that any type of surgery can have a minor risk of nerve damage. Even labiaplasty. Nerves do grow back at a rate of 1 mm per day so in time you should be healed. I have had countless surgeries for my bartholin glands and even with my most invasive one in 8 weeks I was back to normal. Can you also apply some topical lidocaine 5% ointment ?
    the feeling of tampon stuck or inflammation when there is none is nerves sending wrong signals.
    Again, this can sometimes happen and is no cause for panic. the solution lies in medication, pelvic therapy and topical numbing gels.

    mary jane
    mary jane

    Posts : 345
    Join date : 2013-10-05
    Location : UK

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    Please Help. Almost 10 weeks post vestibulectomy and still in pain Empty Re: Please Help. Almost 10 weeks post vestibulectomy and still in pain

    Post  mary jane on Thu Jun 01, 2017 9:33 pm

    I doubt it was a botch job. Do NOT under any circumstance have any other surgeries just yet.
    ANY surgery on the face of the planet has a very small tiny risk of nerve damage. Nerves do grow back or stop sending pain signals. You can act now and do gradual desensitiziation, take medication and when ready, you can try pelvic therapy.
    mary jane
    mary jane

    Posts : 345
    Join date : 2013-10-05
    Location : UK

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    Please Help. Almost 10 weeks post vestibulectomy and still in pain Empty Re: Please Help. Almost 10 weeks post vestibulectomy and still in pain

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