Vulvodynia Support
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» Hope to all my suffering ladies
amitriptyline/elavil EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
amitriptyline/elavil EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
amitriptyline/elavil EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
amitriptyline/elavil EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
amitriptyline/elavil EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
amitriptyline/elavil EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
amitriptyline/elavil EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
amitriptyline/elavil EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
amitriptyline/elavil EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


amitriptyline/elavil

4 posters

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amitriptyline/elavil Empty amitriptyline/elavil

Post  kateelizabeth Wed Aug 17, 2011 10:59 am

I have been taking this for 3 weeks, working up to 30mg with no relief.
Does anyone know how long it takes to have effect/or from experience?
My doctor said it will take months, but from the internet I have read most people get relief in the first month. I know doctors aren't that well informed with vulvodynia, so I am really skeptical.

I am so scared this won't work, I can't live like this anymore.
Thank you in advance for your time.
Love and peace

x

kateelizabeth

Posts : 13
Join date : 2011-07-29

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amitriptyline/elavil Empty Re: amitriptyline/elavil

Post  Remi88 Wed Aug 17, 2011 1:09 pm

It's hard to say whether or not it will work for you, but I know from experience, it does take time. I started taking amitriptyline in May. It probably look around 6 weeks before the pain dissapeared. I had gradually gone up to 50mg. Although it is tough, try not to be impatient. I was pain free until just in the last few weeks it has started creeping back. There are also a few different drugs that do the same thing. I was originally taking Endep, and since that stopped working and had nasty side effects (dehydration and urinary retention) I am not on Allegron or Nortriptyline. Unfortunately this medication does not work for everyone, hopefully that won't be the case for you. Hang in there Smile

Remi88

Posts : 6
Join date : 2011-03-22
Age : 36
Location : melbourne

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amitriptyline/elavil Empty Re: amitriptyline/elavil

Post  noni Tue Aug 30, 2011 4:26 am

Hey girl

I am 75mg Ami... i started in January of this year and saw results at around 50mg...it takes weeks to build up dosage and then weeks for it to build up in your system to see results.

Coffee and tea dont work well with Ami... also avoid citrus fruits. Grapefruit is a HUGE no-no.

noni
noni

Posts : 242
Join date : 2011-01-10
Age : 36
Location : Ontario

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amitriptyline/elavil Empty Re: amitriptyline/elavil

Post  Sarah001 Tue Aug 30, 2011 7:42 pm

I got up to 50mg and I'm still on it but for fibro as it didn't help my V, some women get results at a very, very low dose and others don't respond well to it. I get more relief from releasing the muscles in the pelvic floor to be honest.
Sarah001
Sarah001

Posts : 1164
Join date : 2010-06-11
Age : 50
Location : UK

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