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Gabapentin Gel. or other topical creams
Thu May 10, 2018 9:43 am by Rosie21
Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.
Comments: 2
Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?
Sat Aug 01, 2015 4:17 pm by Fielder
Hi everyone,
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
Comments: 11
An absolute success story- please read!
Fri Mar 08, 2019 10:57 pm by Persevere1990
Dear All,
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
Comments: 0
I'm sorry im rambling
Thu Feb 21, 2019 5:49 am by Jet227
hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …
Comments: 1
New member need advice please
Thu Feb 28, 2019 11:33 pm by PANDORA123
Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.
Thanks
Thanks
Comments: 5
MonaLisa Touch
Fri Feb 08, 2019 7:35 pm by rl2091
Hi All,
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
Comments: 3
Diagnosed Recently
Tue Jan 08, 2019 3:55 pm by flissyg
Hi All,
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
Comments: 4
New and need advice and help
Wed Dec 05, 2018 3:26 pm by Cin124
Hi everyone,
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
Comments: 6
New here would very much appreciate advice at the end of my rope
Wed Jan 09, 2019 9:09 pm by Jma990o
This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
Comments: 3
Clothes We Can Wear!
+3
londonlady
Sarah001
itchyandscratchy
7 posters
Page 1 of 1
Clothes We Can Wear!
Hey guys, not posted in a while, hope everyone's coping.
I've been thinking about writing a positive post on clothes for a while. Vulvodynia has changed the way I dress completely. When I was first adjusting to this condition I got very stressed and depressed regarding clothes, what used to be a pretty straightforward part of my day became a monumental task when I could no longer just throw on a pair of jeans and a t-shirt.
But by now I've gotten used to working around vulvodynia and actually it's not so bad, in some ways it's forced me to dress more stylishly as I have to put more thought in and plan ahead now! I quite like some of the changes vulvodynia's brought to my wardrobe, so I just thought I'd start this thread to share how I get around restrictive, pain-causing clothes in my life and maybe others could share how they deal with this also. It could be quite a useful resource for newbies as having to change how you dress is one of the many little things can stress you out or depress you when you're getting used to this condition, and it might give them some ideas to try out. Although as always everyone's different with this condition, so what works for one won't necessarily work for another.
So, first off - leggings - these have pretty much taken the place of jeans in my wardrobe, I use them as the base for most outfits as I find them less irritating than jeans (although depends on things like how breathable they are, if anyone knows any particularly good brands for leggings I'm always on the lookout for more). Check the label for a high % of cotton and go for ones that are bit see-through if held up to the light is my only advice here.
Second - skirts/dresses/long t-shirts. Pretty self explanatory, I have a particular new found love for big, poofy swing dresses as they're so unrestrictive!
When leggings are too informal or I want a change I go with stockings or long socks. I had some difficulty finding a good quality suspender that actually keeps stockings up all day at first (most of them are just for decoration clearly!), now I use this one, a little pricey but I've been using it for over a year and can confidently recommend it.
This site has a nice selection of socks and is UK based, this one is like a dream come true for me and is US based (so watch out for excise duty UK customers, I got stung on that one! )
On stockings: I don't actually buy very many stockings as most that I come across are overpriced and/or hold-ups (which I think only very skinny people can wear without them squeezing your legs uncomfortably and slipping down anyway), I just buy tights and cut the top off, they're surprisingly hard-wearing and you get more of a selection that way!
When it comes to underwear I generally don't wear any unless I'm on my period, and then only 100% cotton (sorry if that's TMI for anyone, but I figure there's no such thing on this site!)
So, I hope that's helpful to some of you and I'd love to hear how you guys get around the discomfort clothes can cause for us!
I've been thinking about writing a positive post on clothes for a while. Vulvodynia has changed the way I dress completely. When I was first adjusting to this condition I got very stressed and depressed regarding clothes, what used to be a pretty straightforward part of my day became a monumental task when I could no longer just throw on a pair of jeans and a t-shirt.
But by now I've gotten used to working around vulvodynia and actually it's not so bad, in some ways it's forced me to dress more stylishly as I have to put more thought in and plan ahead now! I quite like some of the changes vulvodynia's brought to my wardrobe, so I just thought I'd start this thread to share how I get around restrictive, pain-causing clothes in my life and maybe others could share how they deal with this also. It could be quite a useful resource for newbies as having to change how you dress is one of the many little things can stress you out or depress you when you're getting used to this condition, and it might give them some ideas to try out. Although as always everyone's different with this condition, so what works for one won't necessarily work for another.
So, first off - leggings - these have pretty much taken the place of jeans in my wardrobe, I use them as the base for most outfits as I find them less irritating than jeans (although depends on things like how breathable they are, if anyone knows any particularly good brands for leggings I'm always on the lookout for more). Check the label for a high % of cotton and go for ones that are bit see-through if held up to the light is my only advice here.
Second - skirts/dresses/long t-shirts. Pretty self explanatory, I have a particular new found love for big, poofy swing dresses as they're so unrestrictive!
When leggings are too informal or I want a change I go with stockings or long socks. I had some difficulty finding a good quality suspender that actually keeps stockings up all day at first (most of them are just for decoration clearly!), now I use this one, a little pricey but I've been using it for over a year and can confidently recommend it.
This site has a nice selection of socks and is UK based, this one is like a dream come true for me and is US based (so watch out for excise duty UK customers, I got stung on that one! )
On stockings: I don't actually buy very many stockings as most that I come across are overpriced and/or hold-ups (which I think only very skinny people can wear without them squeezing your legs uncomfortably and slipping down anyway), I just buy tights and cut the top off, they're surprisingly hard-wearing and you get more of a selection that way!
When it comes to underwear I generally don't wear any unless I'm on my period, and then only 100% cotton (sorry if that's TMI for anyone, but I figure there's no such thing on this site!)
So, I hope that's helpful to some of you and I'd love to hear how you guys get around the discomfort clothes can cause for us!
itchyandscratchy- Posts : 36
Join date : 2011-04-11
Age : 34
Location : UK
Re: Clothes We Can Wear!
You are full of information today! I wear leggings occasionally, most of the time at home I'm in yoga pants because I'm lucky enough to work from home so nobody cares what I wear and I can hop on the swiss ball for a few exercises without the hassle of changing. I actually bought some stretch jeans from Peacocks last year, they're nowhere near as stiff as standard jeans and are very stretchy so more like trousers that look like jeans, I can wear those for a couple of hours as long as there's very little sitting involved, I was so impressed I bought 4 pairs. I think it was a range called 24/7 or something like that, haven't been back in for ages so no idea if they still sell them. Anyone buying them try them though, I was a size 10 when I bought mine (not now thanks to the f&^*@$#g tablets) but needed a 12 for crotch room. Like you though it has forced me out of jeans and into wide leg trousers with a nice loose crotch etc. I've looked at skirts but I'm not a skirt person and the closest I get is a knitted dress over leggings.
Sarah001- Posts : 1164
Join date : 2010-06-11
Age : 50
Location : UK
Re: Clothes We Can Wear!
You are full of information today!
Yeah, now it'll be back to months of nothing again though. =P
I'm the same with jeans, can wear lighter stretchy ones for a couple of hours. Been meaning to invest in some light, loose, linen-y trousers for a while also, but given the season I think I'll have to wait till next spring to get those.
itchyandscratchy- Posts : 36
Join date : 2011-04-11
Age : 34
Location : UK
Re: Clothes We Can Wear!
I got some cotton mix linen trousers from George at Asda and wore them most of the summer, I got lots of compliments and they only cost me £10 a pair. Again I bought several pairs so my wardrobe is starting to look like I'm a bit mentally unstable and will only wear certain items!!
Sarah001- Posts : 1164
Join date : 2010-06-11
Age : 50
Location : UK
Re: Clothes We Can Wear!
my wardrobe is starting to look like I'm a bit mentally unstable and will only wear certain items!!
Lol well that is a risk when you find something that's both comfy and fashionable, with this condition you're liable to pick up a couple of pairs just in case one gets damaged or something...
itchyandscratchy- Posts : 36
Join date : 2011-04-11
Age : 34
Location : UK
Re: Clothes We Can Wear!
**Update**
I find the leggings they're selling in Topshop the now for £12 very comfortable, despite the fact they're viscose/elastane mix, weirdly!
I find the leggings they're selling in Topshop the now for £12 very comfortable, despite the fact they're viscose/elastane mix, weirdly!
itchyandscratchy- Posts : 36
Join date : 2011-04-11
Age : 34
Location : UK
Re: Clothes We Can Wear!
thanks for starting this stream!
sometimes I get so frustrated not being able to wear my dream combo of skinny (or any) jeans and a pretty print shirt, or a tighter fitting dress, so its actually nice to hear people sharing positive stories!
I have become an almost complete dress, or or maxi skirt or leggings lady. I now have some lovely dresses ( i try and buy ones which are tighter at the top and flattering, with a kick out skirt), and get some nice complements about always wearing pretty ones.
I sometimes feel self concious in case people work out that I actually never ever wear trousers/jeans but if they have, no one has ever said anything so I think I need to stop worrying!
as much as I have my fingers crossed that at some time in my life I will be able to wear even a baggy pair of jeans again, I think I will remain a dress fan for a long time!
xxx
sometimes I get so frustrated not being able to wear my dream combo of skinny (or any) jeans and a pretty print shirt, or a tighter fitting dress, so its actually nice to hear people sharing positive stories!
I have become an almost complete dress, or or maxi skirt or leggings lady. I now have some lovely dresses ( i try and buy ones which are tighter at the top and flattering, with a kick out skirt), and get some nice complements about always wearing pretty ones.
I sometimes feel self concious in case people work out that I actually never ever wear trousers/jeans but if they have, no one has ever said anything so I think I need to stop worrying!
as much as I have my fingers crossed that at some time in my life I will be able to wear even a baggy pair of jeans again, I think I will remain a dress fan for a long time!
xxx
londonlady- Posts : 12
Join date : 2012-05-04
Re: Clothes We Can Wear!
When it comes to clothes its pretty easy for me. I strictly wear skirts or dresses because pants or shorts cause way too much pain. Most of the time I dont wear underwear. If I have to wear panties I wear big granny panties, inside out because the seam on the panties cause irritation. I buy my clothes at any shop that has a sale going on. I love to find cute clothes that didnt cost me an arm and a leg. I even buy clothes from the dollar store. I have found the best bra's and granny panties and the dollar store. I also buy skirts and shirts there as well. I put bling bling on the shirts and when Im done, they look like they cost a lot more. Oh g/f's, dont get me started on talking about clothes. lol
Take care all. hugs
Take care all. hugs
BpCookie- Posts : 209
Join date : 2012-01-25
Location : Arizona
Re clothes we can wear!
Hi,
Oh it is so nice to hear other people who also have to think about the clothes they wear! It drives me insane, over the last 6 months I've resorted to wearing baggy tracks bottoms the cotton ones, I a sense I'm like because I work with kids and I can get away with it, but I'd love to wear my jeans again, they just sit there on the rail and never get worn. I did get some cotton looking jeans from debenhams however had to go for a size up do they were baggy between my legs, then everyone says they look to big! Pants always cotton sloggi make are good but expensive!
Good luck everyone!
Oh it is so nice to hear other people who also have to think about the clothes they wear! It drives me insane, over the last 6 months I've resorted to wearing baggy tracks bottoms the cotton ones, I a sense I'm like because I work with kids and I can get away with it, but I'd love to wear my jeans again, they just sit there on the rail and never get worn. I did get some cotton looking jeans from debenhams however had to go for a size up do they were baggy between my legs, then everyone says they look to big! Pants always cotton sloggi make are good but expensive!
Good luck everyone!
Sunflower82- Posts : 82
Join date : 2012-02-17
question and suggestions
I am new to the forums and fairly new to vulvodynia. I have been dealing with it for a year now. Here is my question. I am more of a tomboy so dresses and leggings aren't really an option. Has anyone found any jeans that are able to be worn if even for a short time? I wear scrubs and that is pretty painful by the end of the day and I have to wear jeans for work twice a month. Any suggestions on the jeans or any kind of pants that work for anyone that isn't gurlie would be a great help. Also, for anyone who is having underwear issues... I have found that boy briefs (I actually buy them in the boys section) work wonders because of the way they are made they are breathable and for the most part super comfy.
dinda06- Posts : 2
Join date : 2013-02-18
Age : 36
Location : USA
Clothes we can wear
Hi,
The only jeans I have found that are can wear are really light cotton ones, they look like jean material but are not as heavy had to buy a bigger size so they were baggy. All my other jeans are far to uncomfortable. My other option is cobat trousers, which are ok if they are baggy.
Not sure if this helps.
The only jeans I have found that are can wear are really light cotton ones, they look like jean material but are not as heavy had to buy a bigger size so they were baggy. All my other jeans are far to uncomfortable. My other option is cobat trousers, which are ok if they are baggy.
Not sure if this helps.
Sunflower82- Posts : 82
Join date : 2012-02-17
Re: Clothes We Can Wear!
Renewing this old post, I came across this link today w w w .vpants.com/
i have not tried the jeans yet but it
seems like VV is becoming more widely known!
i have not tried the jeans yet but it
seems like VV is becoming more widely known!
tinkerbelle2- Posts : 303
Join date : 2013-09-28
Age : 31
Location : Brighton, England, UK.
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Fri Oct 23, 2020 12:04 am by ringostarr26
» Please tell me this can get better
Sat Jul 18, 2020 7:38 pm by sammykramer
» By no means cured, but doing much better!
Mon Mar 16, 2020 1:26 pm by tinkerbelle2
» How I cured my Vulvodynia!
Sat Dec 07, 2019 11:54 am by Millie
» 7 months since the diagnosis
Wed Aug 14, 2019 2:38 am by agtoronto
» Gabapentin Gel. or other topical creams
Sat Jun 15, 2019 5:22 pm by mary jane
» IMPORTANT FOR UK SUFFERERS
Sat Jun 15, 2019 5:21 pm by mary jane
» Help New Diagnosis
Sat Jun 15, 2019 5:07 pm by mary jane
» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Tue Jun 11, 2019 12:56 am by VVSSufferer