Vulvodynia Support
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» Hope to all my suffering ladies
Lidocaine -- will it stop working? EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Lidocaine -- will it stop working? EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Lidocaine -- will it stop working? EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Lidocaine -- will it stop working? EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Lidocaine -- will it stop working? EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Lidocaine -- will it stop working? EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Lidocaine -- will it stop working? EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Lidocaine -- will it stop working? EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Lidocaine -- will it stop working? EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Lidocaine -- will it stop working?

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Lidocaine -- will it stop working? Empty Lidocaine -- will it stop working?

Post  lolainslacks Fri Jan 06, 2012 12:36 am

I was talking to someone recently (another vulvodynia sufferer) who told me that lidocaine is pretty much garunteed to stop working after about a year, and can even make things worse. Is this true? Lidocaine has been a godsend for me, as when I use it it completely removes my pain and I can have totally pain free sex. NOTHING ELSE WORKS. I am still trying meds with no success. The amitriptyline has taken the edge off, but hardly at all and I'm still nowhere close to pain free sex with just these pills. Raising the dosage has done nothing and I'm pretty much as high as I can go.

Do you think that if the lidocaine works so well with someone in the beginning, that it can still fail later? Or that persistent use can cause damage? I am only using 2% it seems like such a small amount. And only every three days or so at the very most. And when I use it I don't feel any burning like some women do.

Do you think that maybe this failure/damage only happens with women who apply it twice every single day? Because that's how my gyn suggested I use it. She said it would sort of train the nerves or kill them or something, and eventually they would stop hurting so much. But I didn't like doing that so I stopped very quickly and now only use it for pentration.

Please, your thoughts? Does anyone know of women who have had success with lidocaine and for whom it didn't stop working? I am so afraid now, I can't stop worrying.

lolainslacks

Posts : 115
Join date : 2011-04-18

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Post  Sarah001 Fri Jan 06, 2012 1:30 pm

I've seen online conversations between women about this and some have long term results without it stopping working and others find it just stops helping out of the blue. Although it's easier said than done it really isn't something you can worry about because there's no way of knowing if it will stop working, it doesn't seem to be to do with frequency of use or strength of the ointment it's just down to whether your body gets used to it. It's the same with meds, some women find they can get full relief at a really low dose and others get relief for a while followed by their bodies geting used to that dose and having to increase and add other meds so it's one of those things you can't possibly guess about. My last WH Physio said it's a really outdated method and the best thing to do is try and figure out why you have the V in the first place or any factors that may be keeping the pain going such as PFD etc and working on those while it's helping if it does help. Sorry I can't be more help but there really is no way of knowing if it will continue to work or not.
Sarah001
Sarah001

Posts : 1164
Join date : 2010-06-11
Age : 50
Location : UK

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Post  lolainslacks Fri Jan 06, 2012 3:17 pm

Oh God that's so scary. I am having a tough time dealing with this disorder on an emotional level at the moment. I don't understand why this is happening to me. Why do we have to deal with this? Its so cruel. And why aren't my meds working? My gyn won't see me again until June! So I'll have to wait until then to try something else. I can't stand the thought of lidocaine failing me.

EDIT: God I just read this back. It sounds so whiny, I'm sorry.

lolainslacks

Posts : 115
Join date : 2011-04-18

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Post  Sarah001 Sat Jan 07, 2012 8:05 pm

It's ok to be a bit worried but don't let it take over your life. I personally found 300mg of Pregabalin a day helped quite a bit for a while then went to bed pleased about it and woke up the following day with it no longer working so I can understand exactly how anxious you might be. I upped the dose and again it's helping to a degree but I'm very aware of the fact I'm one dose away from the maximum so I'm putting alot of effort into physiotherapy in the hope I won't need to add more medication and perhaps could reduce the amount I'm on. I think if something works then great but don't forget to cover all angles and possible causes so hopefully we can dispense with whatever we're using.
Sarah001
Sarah001

Posts : 1164
Join date : 2010-06-11
Age : 50
Location : UK

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