Vulvodynia Support
Would you like to react to this message? Create an account in a few clicks or log in to continue.
Log in

I forgot my password

Latest topics
» Hope to all my suffering ladies
Some questions about HBC EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Some questions about HBC EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Some questions about HBC EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Some questions about HBC EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Some questions about HBC EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Some questions about HBC EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Some questions about HBC EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Some questions about HBC EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Some questions about HBC EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Some questions about HBC

3 posters

Go down

Some questions about HBC Empty Some questions about HBC

Post  lolainslacks Tue May 08, 2012 7:28 pm

I haven't been here in a while, generally things have been pretty good. My pain is not at all gone, but is manageable right now because I have sort of settled into my routine of using the lidocaine and taking amitriptyline. I still have pain with penetration, but the meds have taken it from a 10 to about a 6, and the lidocaine takes most of the rest away so I'm generally okay.

HOWEVER. I was wondering about the connction between HBC and vulvodnia. I have read about this before, and I'm pretty sure it has been mentioned here in the past. I was taking microgynon for years, and it worked brilliantly. I started taking it because my periods were horrific and making me violently ill, and the microgynon made that stop. When I turned 21 though, it stopped working. Every month I would have all of the symptoms you experience before a period -- cramping, lower back pain, really sore boobs -- and this stuff would stay with me all month. So I went to my GP and she said that natural horomonal changes take place in your body when you hit your early twenties and that it can affect the way HBC works so she switched me to Loestrin. Loestrin seemed fine at first, but shortly after starting the same thing happened. Only this time there was breakthrough bleeding that lasted for weeks. I decided to go back to my GP to be switched to something new, but I couldn't get an appointment in time and my withdrawal bleed was due to start on the day of an important interview so I thought "I'll just stack to skip this period, and when I come to the end of this pack I'll go back to the doctor". I figured I could endure the weird symptoms for one more month. But since Loestrin was messing me up way more than the microgynon ever did, and since I had some microgynon left over from before, I decided to just take the microgynon this month

Bad idea. The day after I started, I felt a burning sensation in my vagina. Sort of like when I am having a flare-up after penetration. It has been with me for the past three days now. It is not terribly painful, just an uncomfortable constant burning. This is worrying me, because my pain has never been constant before, it's usually only provoked. Again, it's not severe, and when I'm lying still I'm not really aware of it. It's just an uncomfortable niggling burn that is a little scary because the last thing in the world that I want is for this condition to get worse. I haven't tried any kind of penetration, so I don't know if my prrovoked pain has worsened, but I don't think it has because when I shower and am sort of 'feeling around' down there everything feels normal and I'm not in any more discomfort than usual. Anyway, I stopped taking the pills immediately and have decided to just go HBC free for the next few months to see if my periods have improved since my teens. If I can handle them now, then I'm staying off HBC for good.

I was just wondering if anyone knows more about the HBC/vulvodynia connction? I know I have heard that for some women their pain began when they started taking HBC, or was worsened. Is that something that is permanent? Or does it go away if you stop taking the pills? My vulvodynia definitely was not caused by HBC, it started way before that. But this burning is worrying me.

lolainslacks

Posts : 115
Join date : 2011-04-18

Back to top Go down

Some questions about HBC Empty Re: Some questions about HBC

Post  smile22 Tue May 08, 2012 9:28 pm

Hi, I can't give a great answer to your questions but I just wanted to say that the first pill I went on was microgynon, then I have also been on 2 others for like a month or 2 at a time (a few years ago), but I haven't been on the pill since I was 16. I am now 19 and I have constant pain that means I'm always stuck in the house with pretty much no life. To my understanding, I think that the pill initially caused a bad bout of thrush, which damaged my nerves and I am now stuck like this (for the time being hopefully no longer!!!!!!!) even though I haven't been on the pill for around 3 years and was only ever on it from age 15-16 anyway. So I would advise you to (if your periods let you!) definitely stay away from the pill, and from reading other womens stories 'flare ups' with provoked pain like yours can last for a few days. So try to steer clear of the pill if possible (maybe ask doc of any other ways to calm periods down?) mine were always awful but since being on the pill, they have never gone back to being as heavy as they were when I was younger, so hopefully the same will happen with you if you come off the pill altogether. Don't worry too much about it being constant pain for a few days, if your problem has always been provoked I would presume that perhaps you changing the pill pattern caused a bit of a change in your bodies balance of 'stuff' (crap with scientific language sorry haha!) and caused this flare up and it should go down soon. But I can't stress enough how much I hate the pill as I do blame it for my pain, and in (sort of) answer to your question about the link, I think it just upsets the balance down there which causes thrush thrush thrush and other probs which then lead to more problems.

Sorry I realise I got a bit carried away there typing away! But overall, I think it would be a great idea to ditch the pill and with any luck, as your pain is usually provoked only, it might go away once the pill is totally out of your system, or atleast go back to being provoked only. These are just my thoughts, but I think lots of people definitely agree that the pill is a no go for us pain sufferers, good luck with everything and I hope it all settles down for you asap! Smile

smile22

Posts : 51
Join date : 2012-02-07
Location : England

Back to top Go down

Some questions about HBC Empty Re: Some questions about HBC

Post  Sarah001 Wed May 09, 2012 9:09 am

I started on Microgynon when a teenager and it stopped working when I hit 21 then it was pill after pill for me and they all caused bleeding until I started on Yasmin which was fine for a few years but then the bleeding started on that too. I haven't been on the pill since my early thirties (I'm now 38) and my V didn't start until I was 36 so I don't really think for me there is a connection but some women are alot better off the pill completely.

My pain started as provoked and while I was waiting for my dermatology appointment it spread and worsened and became generalised unprovoked but it doesn't mean yours will, you have to give it time to see what's happened with all the pill stuff you've recently been through. However I would say if you haven't looked at pelvic floor options I would just in case that's what's happened, if penetration causes pain you may well be tensing and that can take it from provoked only to unprovoked if it gets bad enough so if it has become constant please do look into that angle. My physios (Women's Health) don't think lidocaine and sex are a very good idea because it doesn't stop the tensing up and sex can make the pain worse after the lidocaine has worn off so you then clench because of the extra pain. According to the 3 I've seen it's a very old fashioned method and not recommended if there are any pelvic floor issues.
Sarah001
Sarah001

Posts : 1164
Join date : 2010-06-11
Age : 50
Location : UK

Back to top Go down

Some questions about HBC Empty Re: Some questions about HBC

Post  lolainslacks Wed May 09, 2012 11:49 am

Thank you both for your help. I do intend to stay away from it as long as I can now. I am hoping, like you suggested, that since I was a teenger my periods will have calmed down and will now not be so horrible.

Sarah -- I have been to physio in the past and now have no problem tensing. I used to be really bad and have absolutely no control of the muscles but I saw a physiotherapist for several months and did some biofeedback which taught me how to control them and now it's not an issue for me. When I first started using the lidocaine it would not remove all of my pain because, as you said, it didn't stop the muscles from spasming and contracting, but now that I am able to relax them at will, there is no longer any problem with that. Thaank you for the suggestion though.

lolainslacks

Posts : 115
Join date : 2011-04-18

Back to top Go down

Some questions about HBC Empty Re: Some questions about HBC

Post  Sponsored content


Sponsored content


Back to top Go down

Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum