Losing Hope Big Time

Hi, I'm 21 anyway I am losing hope in my treatment i have had at least five tablets none work i am currently on neurontin, I have been on so many stuff i started to lose hope, i dont feel nothing work and worst i feel depressed by this all, i just dont understand how nothing come work, I think i might have ic too which i got another set of tablets, i am thinking about the surgery but scared of it because i am not sure if i can have it as i got provoked vulvodynia, to be truthful i dont even understand that. has anyone had surgery who has provoked vulvodynia or any tablets that work, i am at the stage where i dont want to do how many more tablets can i take as i took around five (It could be four) already. I am getting to the point when i dont want to do them kegel excerises and using my dilators i feel like it no point.

Hi, sorry to hear that you feel so bad. Provoked pain is pain when the area is touched. I have unprovoked pain where it hurts all the time and have tried everything from creams to tablets to injections down there, so I know how you feel having to keep taking things for it all the time, you're not alone. My consultant said to me that often surgery's best candidates are those with provoked pain as it is more effective. I can't explain why because I have forgotten the explanation sorry!! But just wanted to let you know that it might be worth considering surgery as it could help you, but it's generally a last resort and not something to be taken lightly as it holds no guarantees, so the best thing would be to talk through it with a doctor who knows all the facts and can give you proper advice. I have also come across a couple of women that have said that lyrica has helped with their provoked pain. It didn't help me but like I said, mine's different so it might help you if you haven't already tried it. Some also say that tricyclic antidepressants such as amitriptyline helped them, you may have already tried these tablets but if not mention them to your doctor and give them a try. Good luck with finding a solution and don't give up. Also just to let you know that I am 19 and have suffered with this since I was 15, so if like me, you feel that you're too young to be going through this, you really aren't alone. Hope you feel better soon!

Hi,

Have you tried seeing a women's health physiotherapist ? Where abouts are u based ?

Katie

Hello,
Please read my post about seeing a chiropractor: http://www.vulvodyniasupportforum.com/t849-i-am-cured-read-this#5393

I have spoken to my chiropractor about surgery for this condition and she does not recommend it at all. She has been in the medical profession for some years and in many cases surgery only makes women with the condition worse. It can actually worsen the pain and is not worth the cost of treatment or the time wasted being bedridden afterwards.

I'm also relatively young to have had this, I'm almost 19 and the pain started about 2 years ago. I know how horrible it feels, there were days when I didn't get out of bed because I felt so hopeless. I really hope you consider looking into chiropractic treatment because it has been a godsend for me. Please don't give up, you still so young and have so many years of happiness ahead of you. Good luck x

I'm from south wales, when you method in your reply about back pain it triggered a though in my head when i was 15 my knee cap keep coming out of place and when it did that i would fall on the floor and i tried physco they discharged me saying nothing they can do for me, but i think i might got IC too.
Also earlier my boyfriend said i feel tight is there anyway to untight myself if that make sense
Thanks for replying to me
xx

Its interesting, the pain I had was in my left foot mainly and travelled up my leg... it shows that everything is linked so theres a possibility that your pain might come from a mechanical problem too. Definitely worth checking out!
I think if you're tight maybe its down to not being relaxed enough, and if you experience pain then it's not surprising you don't feel relaxed!
x