Vulvodynia Support
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» Hope to all my suffering ladies
Advice on Surgery EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Advice on Surgery EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Advice on Surgery EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Advice on Surgery EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Advice on Surgery EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Advice on Surgery EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Advice on Surgery EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Advice on Surgery EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Advice on Surgery EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Advice on Surgery

2 posters

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Advice on Surgery Empty Advice on Surgery

Post  Cheryl82 Tue May 15, 2012 7:07 pm

I'm new to this site and have had vulvodynia for 2.5yrs. It all started after the birth of my son, I tore so badly. Since, I have gone to a new practice, but all doctors swear child birth was not the cause. I went through physical therapy, then found a new doctor how has been amazing at trying to work with me. I have tried, Lidocaine, Desipramine, Gabapentine compound, and now I'm just taking Zoloft for my depression with it. I'm at my ropes end and just want off this roller coaster! My husband and I have been trying to conceive, but with now luck, probably because you have to have sex to get pregnant, lol! When we do have sex it is not good, it's me laying stif and my husband trying to hurry up with out hurting me Sad My doctor always thought I might benefit from surgery because my pain is so localized. It is near my peri area at the bottom of the vaginal opening, on the out/inner part, that's it. I can feel my husbands in and on the sides and it's "good" but the pain is like a razor blade with every move. I shut down and get kinda mean to him, in hopes that he'll just leave me alone, so sad. QUESTION IS: has anyone had any surgery to correct their vulvodynia and did it work for you? Would you recommend it? I read one girls story that was posted a few years ago. I try Googleing and nothing really comes up either.

Cheryl82

Posts : 1
Join date : 2012-05-15
Age : 41

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Advice on Surgery Empty Re: Advice on Surgery

Post  amtali Fri Jun 08, 2012 4:17 pm

Hi Cheryl,

I am getting surgery this month. I have had vestibulodynia for almost 5 years. It started at the 7 o'clock area for a while, then spread to 3 o'clock, and now I have a reoccurring fissure at 11 0'oclock. Long story short, after trying SEVERAL treatments, surgery was my last and only option. It took about 3 years before my symptoms got worse, and I would hate for that to happen to you as well. With the surgery now-a-days, they usually remove all of the vestibule tissue, even if you only have a specific area of pain, so that it doesn't happen somewhere else later. As invasive and tedious as it is, surgery might be worth considering. I will try to let you know about my recovery post-surgery. Hopefully I can provide some hope for you and others. I'm not sure where you're located, but Dr. Libby Edwards in NC is a specialist for this. Dr. Hope Heafner in Michigan is supposed to be top-notch for surgery.

amtali

Posts : 19
Join date : 2012-05-29

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