Thu May 10, 2018 9:43 am by Rosie21
Sat Aug 01, 2015 4:17 pm by Fielder
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
Fri Mar 08, 2019 10:57 pm by Persevere1990
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
Thu Feb 21, 2019 5:49 am by Jet227
Thu Feb 28, 2019 11:33 pm by PANDORA123
Fri Feb 08, 2019 7:35 pm by rl2091
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
Tue Jan 08, 2019 3:55 pm by flissyg
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
Wed Dec 05, 2018 3:26 pm by Cin124
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
Wed Jan 09, 2019 9:09 pm by Jma990o
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
- Posts : 1
Join date : 2012-06-09
I had these symptoms for around 8 months when one gyno suggested I stopped the pill. My symptoms vaninshed within a couple of weeks and I was perfectly normal for a good 5 months. Sadly they returned with a vengeance and I went another 18 months before having 3 months off.
The pill definitely plays a massive role in this for some people I'm sure, but I've been off all birth control for about 13 months now and am still in pain.
- Posts : 107
Join date : 2011-12-03
Age : 30
Location : Staffordshire, UK
What birth control were you on? I'm curious... because I know that in the US, Yaz has gotten into a lot trouble for making women sick...
- Posts : 23
Join date : 2011-11-10
Location : Philadelphia, PA, USA
Has anyone found a good one they can use that doesn't make their symptoms worse, or can even make them better?
- Posts : 107
Join date : 2011-12-03
Age : 30
Location : Staffordshire, UK
I will never go on the pill again, it does not fix problems just masks them!!!! Why would anyone want to suppress a bodys natural function, your shutting down your overies for gods sake, it's beyond me why so many people are on this stuff without knowing the function behind it or without trying other methods.. I used acupuncture to help with the painful periods - sisterawake - give it ago. I found it helped a lot, I have a few friends over on the ICNetwork forum with fibriomyalgia so I am sorry to hear you suffer with that. .
- Posts : 230
Join date : 2011-03-15
Age : 31
Location : Queensland, Australia
- Posts : 54
Join date : 2012-07-19
Location : US
- Posts : 7
Join date : 2012-11-05
- Posts : 69
Join date : 2012-07-14
- Posts : 1093
Join date : 2012-09-25
Therefore I was referred to a specialist family clinic where a lady who specialised in the pill put me on the microgynon permanently I am still currently using it and was told at the time I would not require a break at all throughout this time. I had rare break through bleeding and my periods eventually stopped.
I then got into a long term relationship in which I discovered I couldn't cope with the agony of sex I went to a gynaecologist in Cambridge uk who diagnosed me of vulvodynia they said mine was quite bad as it affecting all around the opening and inside.
I only recently made the connection on here of the long term use of my pill being possible for the pain I experience inside.
I have no idea what to do I am 23 and have been in a 5year relationship in which we haven't had sex for 3.5 years. I can't come off the pill but I fear it will worsen if I don't.
Many thanks for reading.
- Posts : 2
Join date : 2012-11-26
- Posts : 3
Join date : 2012-11-29
I want to desperately encourage anyone who has VVS to come off hormonal contraceptives if possible.
In 2012, I had unprotected sex and took the morning after pill. I developed vestibule redness/soreness/itchiness. The clinic confirmed a Yeast & BV infection, explaining that this was common after sex (though I had never had any vaginal problems for years before). They also put me on the Pill (Microgynon 30). The infections cleared (tested negative) but my symptoms remained constant.
My symptoms extended beyond vestibule pain. I also had itchiness, redness & subtle inflammation of the whole vestibule (localised to this area), my vestibule skin started to tear during sex, get more inflammed & very regularly develop new infections (Yeast/Bacterial). I also had a lot of discomfort/itchiness in & around my anus.
Firstly, this made me question whether I had VVS because I didn't just have pain of the vestibule, as I kept getting infections too (now I understand that women with VVS are often simply more prone to infections & discomfort of the whole area).
Secondly, I assumed my VVS must have been caused by the infections (proliferation of nerves in the vestibule after infection), because the symptoms I had felt like they were permanent, that the skin itself was not normal anymore & seemed irreparable.
I didn't come off the Pill until mid 2013, when I had read more info about a link. I felt I should just come off it in case it might have been making anything worse.
The reality was (by my complete surprise and total elation) that within a month, my vestibule returned to completely normal and ALL other related symptoms also disappeared — the anal discomfort/itchiness & bring prone to developing infections.
I hadn't thought the Pill could be causing my VVS, because I had developed the infections before I started the Pill (I didn't consider at the time that just before I got the infections, I had taken the morning after pill which is a huge dose of progesterone). I also had no understanding of hormones & no idea how they could cause pain in a specific area of the body like this! Every doctor I asked said there was no way the Pill was relevant, which made me have little hope.
I believe there are 2 main causes for VVS — hormonal or a response to an infection. But there can be an overlap, and I didn't consider the Pill could be the cause because I kept getting the infections. But I was mistaken (and so were over 10 doctors & specialists).
I really hope this can help any women suffering.
As a side point, unfortunately, after being perfectly normal for 18 months, this year I developed infections (no hormones involved) and VVS has fully returned. I feel that my body has learned how it responded to infections when I was on the Pill, and now the nerves are irritated again = VVS
- Posts : 53
Join date : 2015-05-21
I am without having sex for 9 months now, I. Better than in the beggining but I can't seat more than one hour and I can't touch the place where it hurts. I start to do Chinese medicine and I'm seeing a physicist. I tried coconut oil and vitamin B of course. I want to have hope but I don't have so much left, I hope I could manage this. Thank you in advance
- Posts : 1
Join date : 2018-07-15