Vulvodynia Support
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» Hope to all my suffering ladies
Side effects amitrimtlyine  EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Side effects amitrimtlyine  EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Side effects amitrimtlyine  EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Side effects amitrimtlyine  EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Side effects amitrimtlyine  EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Side effects amitrimtlyine  EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Side effects amitrimtlyine  EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Side effects amitrimtlyine  EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Side effects amitrimtlyine  EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Side effects amitrimtlyine

+2
cba321
Sunflower82
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Post  Sunflower82 Mon Nov 12, 2012 10:03 pm

I have been taking amitrimtlyine for about a month low does 10mg, side effects of a dry mouth is driving me mad! I work as a teacher and after a ten min lesson my mouth is so dry. I drink and drink but it comes straight back. Any tips ?


Many thanks

Kt

Sunflower82

Posts : 82
Join date : 2012-02-17

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Post  cba321 Tue Nov 13, 2012 9:22 am

I'm not sure if this will work...but perhaps trying a mouth wash specifically for dry mouth like Biotene? I take antriptyline but didn't get dry mouth, i got excessive sweating --> YUK hahaha. Hope it helps

cba321

Posts : 69
Join date : 2012-07-14

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Post  Sarah001 Tue Nov 13, 2012 6:32 pm

I have the same problem and work on a phone! You can get artificial saliva spray from the GP and there are various gels etc online if you google it. I get round it by chewing gum which I know as a teacher you can't. Make sure your dentist knows about it when you next go, mine has caused my enamel to chip off so my dentist repairs bits for me and gave me a prescription toothpaste to use too as a lack of saliva means no enzymes to protect teeth from bacteria.
Sarah001
Sarah001

Posts : 1164
Join date : 2010-06-11
Age : 50
Location : UK

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Post  Alana3 Tue Nov 13, 2012 8:12 pm

Can you try using a compound? It works and there are no side effects since it's being absorbed thru your skin and not your liver!

Alana3

Posts : 1093
Join date : 2012-09-25

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Post  Sunflower82 Fri Nov 16, 2012 6:35 am

Thanks for responding, I see if your suggestions work.

Many thanks kt

Sunflower82

Posts : 82
Join date : 2012-02-17

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Post  katemate Wed Nov 21, 2012 9:09 pm

How long have you been on it for?

I found I had dry mouth and got pretty tired but after a few weeks I was fine..

katemate

Posts : 20
Join date : 2010-12-29

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Post  Sunflower82 Thu Nov 22, 2012 6:33 am

Hi,
I've been taking them for about 6 weeks, but was on a different anti depressant before called doeuspin was taking that for over a year this also gave me a dry mouth but since switching to amitrimtlyine it's a lot worse.

Thanks for your reply

Kt

Sunflower82

Posts : 82
Join date : 2012-02-17

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Post  Kate1981 Thu Nov 22, 2012 9:52 pm

I had a dry mouth at first and tiredness its more my weight now i have put on a few pounds. I am taking 40mg and have been for 4 months pain is much better. Also i take 300mg of pregabalin.

Kate1981

Posts : 88
Join date : 2012-08-17
Location : Manchester, UK

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