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Gabapentin Gel. or other topical creams
Thu May 10, 2018 9:43 am by Rosie21
Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.
Comments: 2
Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?
Sat Aug 01, 2015 4:17 pm by Fielder
Hi everyone,
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
Comments: 11
An absolute success story- please read!
Fri Mar 08, 2019 10:57 pm by Persevere1990
Dear All,
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
Comments: 0
I'm sorry im rambling
Thu Feb 21, 2019 5:49 am by Jet227
hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …
Comments: 1
New member need advice please
Thu Feb 28, 2019 11:33 pm by PANDORA123
Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.
Thanks
Thanks
Comments: 5
MonaLisa Touch
Fri Feb 08, 2019 7:35 pm by rl2091
Hi All,
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
Comments: 3
Diagnosed Recently
Tue Jan 08, 2019 3:55 pm by flissyg
Hi All,
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
Comments: 4
New and need advice and help
Wed Dec 05, 2018 3:26 pm by Cin124
Hi everyone,
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
Comments: 6
New here would very much appreciate advice at the end of my rope
Wed Jan 09, 2019 9:09 pm by Jma990o
This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
Comments: 3
Q-Tip Test?
5 posters
Page 1 of 1
Q-Tip Test?
Hey everyone. I went to the doctor on Monday. I discussed my issues with him and he gave me a Q-tip test. He said I don't have vulvodynia or vulvar vestibules because there isn't any pain in a localized area. I also don't feel that uncomfortable when I have physical examinations. There is just a generalized pain that stays at the same level throughout the day and gets worse with sex. This makes no sense! Does anyone know what this is? Do you have to have a positive result on a Q-tip test to have vulvodynia? Thanks!
katie220- Posts : 17
Join date : 2012-09-30
Re: Q-Tip Test?
I know when I had v I would react horribly to a qtip test it would hurt so bad. Maybe yours is more vaginismus or pfd than vulvodynia but omg qtips used to hurt like crazy!
Alana3- Posts : 1093
Join date : 2012-09-25
Re: Q-Tip Test?
You dont have to have a positive q-tip test to have vulvodynia. A positive test is more common in women who have a type of V called vulvar vestibulitis. Their pain is localized to the vestibule(entrance to the vagina) . Pain with vestibulitis occurs upon penetration or inserting a tampon or speculum or contact with tight clothing or certain activities.. They have the most success with the surgery. Another type of V is Dyesthetic Vulvodynia in which a woman feels burning, rawness, irritaiton, itching anywhere on the vulva. Some have constant pain all the time and sometimes there are brief periods of relief. Some have pain with sex or exams and some dont. You can also have both types of V which I do. I have burning, swelling, all the time. Sometimes I feel a stinging or a poking near the clitoris or labia. Sex is very painful upon entry but then subsides. The pain is worse (THE absolute worse for me) the day after and for several days. Once in a while I will feel almost normal for a few hours but it always returns. For this reason I stopped having intercourse. I figure my body is trying to tell me something if the pain is that bad. I feel I need to give myself time to heal before trying again. There are several good books out there that explain Vulvodynia. One is 'The Vulvodynia Survival Guide" by Howard Glazer. Another is "The V Book" by Elizabeth Stewart and "Ending Female Pain" by Isa Herrera. I have read them all. The self help measures that have given me the most relief are Aveeno Colloidal Oatmeal baths, spraying myself off with cool water after urinating (using an irrigation bottle - like you get after delivery) and the stretching exercises. The most surprising thing that has helped is learning how to breathe using your diaphragm while stretching/exercising and taking the time to deep breathe many times throughout the day to relax. stress makes everything worse. I wish you well!
Delilah1- Posts : 55
Join date : 2013-04-24
Re: Q-Tip Test?
Hi Katie, unprovoked vulvodynia does not respond to a q tip test unless there's an element of provoked mixed in (often can be) so yes you could have unprovoked generalised vulvodynia, google it and see if it sounds like what you are experiencing.
Sarah001- Posts : 1164
Join date : 2010-06-11
Age : 50
Location : UK
RE:
Thanks for the replies! That's kind of what I was thinking. I don't think it's right to judge whether someone has vulvodynia or not from a Q-tip. For the pain my doctor is thinking of giving me Gabapentin. Have you guys ever tried that? My pain goes away when I take xanax so he was thinking gabapentin would be my best bet.
katie220- Posts : 17
Join date : 2012-09-30
Re: Q-Tip Test?
I used it as a topical it didn't work for me, I didn't want to deal with the side effects of a pill. But maybe orally it would work better?
Alana3- Posts : 1093
Join date : 2012-09-25
Re: Q-Tip Test?
I have read many articles on vulvodynia..........there are 2 kinds........one could be a q-tip test, however the other is not!! They are totally different.........
The 2nd kind is burning inside the vulva...........these doctors need to get informed!
The 2nd kind is burning inside the vulva...........these doctors need to get informed!
allforone- Posts : 3
Join date : 2013-04-11
Similar topics
» completely miserable
» Question About Symptoms
» Q Tip test was not painful /but stil DX with vulvodynia?
» Question About Symptoms
» Q Tip test was not painful /but stil DX with vulvodynia?
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Fri Oct 23, 2020 12:04 am by ringostarr26
» Please tell me this can get better
Sat Jul 18, 2020 7:38 pm by sammykramer
» By no means cured, but doing much better!
Mon Mar 16, 2020 1:26 pm by tinkerbelle2
» How I cured my Vulvodynia!
Sat Dec 07, 2019 11:54 am by Millie
» 7 months since the diagnosis
Wed Aug 14, 2019 2:38 am by agtoronto
» Gabapentin Gel. or other topical creams
Sat Jun 15, 2019 5:22 pm by mary jane
» IMPORTANT FOR UK SUFFERERS
Sat Jun 15, 2019 5:21 pm by mary jane
» Help New Diagnosis
Sat Jun 15, 2019 5:07 pm by mary jane
» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Tue Jun 11, 2019 12:56 am by VVSSufferer