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Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

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Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

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Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

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Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 6

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 3

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 10

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

Cured, my story..

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Cured, my story..

Post  Marylynnreily on Tue May 21, 2013 5:28 pm

Hello ladies,

I was diagnosed with Vulvodynia 8 years ago, Ive been cured for over 2 years and just wanted to let everyone know my story.

Long Story short, I ended up curing myself with Clindesse vaginal antibiotic cream, but about 3 or 4 boxes of it, back to back, so treatment, every night for a little over a month, then Gyne Lotrimin (3 day) like another poster said on here, is awesome stuff. Its not irritating to the vagina like Monistat, and its more effective at curing the yeast issue problem.

The Clindesse takes care of the bacterial, the Gyne Lotrimin, the yeast.

I dont know why Gyne Lotrimin is so much more effective, even more than terazol from the doctor...

also, been on Metrogel, and diflucan pills do nothing..so some products are more effective than others. Longer, stronger courses of things work better.
Ive also gone to the doctor and got prescribed 24 hour ovules, 3 of them, back to back, when I had an intractable yeast infection one time...Ive always had womens problems...I also get chronic UTIs so Im frequently on antibiotics, which cause even more vaginal problems.


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Re: Cured, my story..

Post  Delilah1 on Tue May 28, 2013 2:10 pm

Hello Mary, So glad to hear you found a cure for your vulvodynia. How did it all start for you? How did you convince a doctor to prescribe you such a long course of Clindesse? Were you diagnosed with bacterial vaginosis and do you know what bacteria was associated with it? Again, it's good to hear you are feeling better! Very Happy



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Post  Marylynnreily on Sun Jun 02, 2013 11:35 pm

Hey there..well, I changed Gynos and saw a women that time, and she started me on 14 days worth, and then I begged her for a couple refills, (explaining I have really bad problems, and my husband and I had sex while on treatment, since we hadnt had sex in months and I was feeling so much better)..she was kind, and gave them to me..

You can also try going to different doctors and explaining your problem..I have IC and Ive done this to get more antibiotics since many doctors will not give enough for long enough. I get bladder infections that require at least 10 days worth instead of the typical 7 my body is so used to them, Ive been on TONS of antibiotics..anyway.
I would try seeing your family doctor and making up a story about how you had a vaginal infection a few years back and the only thing that cured you was clindesse, than hand them the squished up tube in a baggy...(lol) say you needed 14 days worth..I have a problem culturing out, Ive done tons of vaginal cultures and nothing would ever come out, finally I got lucky and BV cultured out and she gave me the clindesse that changed my life..2 weeks worth is key here but I did 3!

so, if your good enough at explaining things..and you have had a past history the doctor can look at that shows youve been having a problem and numerous tests for a long long time, I bet you can get them to presrcribe the stuff, even with negative culture..

Its not like your hustling pain pills, your hustling ANTIBIOTICS!!

Its soooo difficult to get them to prescribe anything anymore..and antibiotic along with bacterial and yeasts resistance is a growing problem..

so they are afraid to give you any decent course of antibiotics to cure anything anymore..

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Re: Cured, my story..

Post  EviE°Bee on Sat Oct 12, 2013 7:00 am

Antibiotics cause yeast infections, unfortunately. I saw a Dr who diagnosed me with a yeast infection and she said gynalotramine has steriods in it which is why its more helpful.

Unfortunately, i can't use it! Last time i used it I had a weird reaction to it. Diflucan works for me. So far, anyway.

Evie bee


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Re: Cured, my story..

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