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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 8

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35


Cured, my story..

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Cured, my story..

Post  Marylynnreily on Tue May 21, 2013 5:28 pm

Hello ladies,

I was diagnosed with Vulvodynia 8 years ago, Ive been cured for over 2 years and just wanted to let everyone know my story.

Long Story short, I ended up curing myself with Clindesse vaginal antibiotic cream, but about 3 or 4 boxes of it, back to back, so treatment, every night for a little over a month, then Gyne Lotrimin (3 day) like another poster said on here, is awesome stuff. Its not irritating to the vagina like Monistat, and its more effective at curing the yeast issue problem.

The Clindesse takes care of the bacterial, the Gyne Lotrimin, the yeast.

I dont know why Gyne Lotrimin is so much more effective, even more than terazol from the doctor...

also, been on Metrogel, and diflucan pills do nothing..so some products are more effective than others. Longer, stronger courses of things work better.
Ive also gone to the doctor and got prescribed 24 hour ovules, 3 of them, back to back, when I had an intractable yeast infection one time...Ive always had womens problems...I also get chronic UTIs so Im frequently on antibiotics, which cause even more vaginal problems.

Mary
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Re: Cured, my story..

Post  Delilah1 on Tue May 28, 2013 2:10 pm

Hello Mary, So glad to hear you found a cure for your vulvodynia. How did it all start for you? How did you convince a doctor to prescribe you such a long course of Clindesse? Were you diagnosed with bacterial vaginosis and do you know what bacteria was associated with it? Again, it's good to hear you are feeling better! Very Happy

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Hey

Post  Marylynnreily on Sun Jun 02, 2013 11:35 pm

Hey there..well, I changed Gynos and saw a women that time, and she started me on 14 days worth, and then I begged her for a couple refills, (explaining I have really bad problems, and my husband and I had sex while on treatment, since we hadnt had sex in months and I was feeling so much better)..she was kind, and gave them to me..

You can also try going to different doctors and explaining your problem..I have IC and Ive done this to get more antibiotics since many doctors will not give enough for long enough. I get bladder infections that require at least 10 days worth instead of the typical 7 my body is so used to them, Ive been on TONS of antibiotics..anyway.
I would try seeing your family doctor and making up a story about how you had a vaginal infection a few years back and the only thing that cured you was clindesse, than hand them the squished up tube in a baggy...(lol) say you needed 14 days worth..I have a problem culturing out, Ive done tons of vaginal cultures and nothing would ever come out, finally I got lucky and BV cultured out and she gave me the clindesse that changed my life..2 weeks worth is key here but I did 3!

so, if your good enough at explaining things..and you have had a past history the doctor can look at that shows youve been having a problem and numerous tests for a long long time, I bet you can get them to presrcribe the stuff, even with negative culture..

Its not like your hustling pain pills, your hustling ANTIBIOTICS!!

Its soooo difficult to get them to prescribe anything anymore..and antibiotic along with bacterial and yeasts resistance is a growing problem..

so they are afraid to give you any decent course of antibiotics to cure anything anymore..
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Re: Cured, my story..

Post  EviE°Bee on Sat Oct 12, 2013 7:00 am

Antibiotics cause yeast infections, unfortunately. I saw a Dr who diagnosed me with a yeast infection and she said gynalotramine has steriods in it which is why its more helpful.

Unfortunately, i can't use it! Last time i used it I had a weird reaction to it. Diflucan works for me. So far, anyway.

Evie bee

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Re: Cured, my story..

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