Vulvodynia Support
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» Hope to all my suffering ladies
Dr. is going to destroy my vulva nerves EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Dr. is going to destroy my vulva nerves EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Dr. is going to destroy my vulva nerves EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Dr. is going to destroy my vulva nerves EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Dr. is going to destroy my vulva nerves EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Dr. is going to destroy my vulva nerves EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Dr. is going to destroy my vulva nerves EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Dr. is going to destroy my vulva nerves EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Dr. is going to destroy my vulva nerves EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Dr. is going to destroy my vulva nerves

+4
Sebby (Admin)
Sarah001
zarli
BpCookie
8 posters

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Dr. is going to destroy my vulva nerves Empty Dr. is going to destroy my vulva nerves

Post  BpCookie Mon Sep 09, 2013 7:36 pm

Hello dahlings, My specialist is going to use some kind of alcohol to destroy my vulva nerves on the 17th. I pray that this works. He did a temporary nerve thumbing procedure, talk about friggin hurting. The needle was longer that Jonny Holmes penis.

Ive had such bad luch with meds, ointments, procedures and even a surgery, nothing has helped. So I wonder if this will even work.

Just wanted to let ya all know what was going on and I will tell ya if it works.

Love and ice packs to all.

Cookie
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Post  zarli Tue Sep 10, 2013 8:53 am

I love reading your posts, I'm new to this forum but have suffered for 6 years, you are positive in a funny way if that's possible. I wish you all the best and will await your post treatment news

zarli

Posts : 182
Join date : 2013-08-11
Location : Australia

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Post  Sarah001 Tue Sep 10, 2013 8:55 pm

Oh Bpcookie I do worry about all the procedures you have done, I wish you good luck for this one and keep us posted. xx
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Post  Sebby (Admin) Wed Sep 11, 2013 9:39 am

Definitely let us know how you get on. It's good to see you can keep your sense of humor. It's not easy sometimes when treatments just frustrate you but we all need to keep marching on and laughing as much as we can. Good luck! x
Sebby (Admin)
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Post  Fingerscrossed Tue Sep 17, 2013 6:15 am

Please post a reply about the treatment. I've been told that I am probably going to have to get a vestibulectomy in December. I would really like to avoid it, but the meds don't seem to be helping with my nerves. Good luck!!!

Fingerscrossed

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Age : 34
Location : Kentucky

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Post  Alana3 Tue Sep 17, 2013 12:26 pm

She isn't getting a vestibulectomy... way different than what you'll have seriously if you don't want to be medicated the rest of your life and have provided pain surgery it's the way to go

Alana3

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Post  tinkerbelle2 Sun Oct 13, 2013 11:19 am

Hi cookie,

How did it go? Hope you're okay.

Belle
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Age : 31
Location : Brighton, England, UK.

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Post  mary jane Sat Oct 26, 2013 5:15 pm

how was it ? please tell, you haven't updated in ages Sad
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Post  tinkerbelle2 Thu Dec 12, 2013 11:30 am

I hope she's okay she hasn't been on in ages!
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Post  Alana3 Thu Dec 12, 2013 11:54 am

Nothing personal but bringing up old posts is kinda pointless most of these.people have moved on

Alana3

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Post  Alana3 Thu Dec 12, 2013 3:47 pm

Although I am curious too if this helped! But most people who don't post on here do so because they got relief (i'm not saying for sure this is what happened to her). I stay on in case I can help someone.

Alana3

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Post  mary jane Sun Dec 15, 2013 3:43 pm

@alana she saw my reply and answered me in a pm....
I sometimes bring up old posts because I still try to find out things.....about this condition
mary jane
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Post  Alana3 Sun Dec 15, 2013 5:04 pm

Good but a lot of people moved on is all in saying hope shes well!

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