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Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22


Newbie here: Want to learn more about experiences with vestibulectomy. Also Looking for people who go to a Louisville, KY clinic

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Newbie here: Want to learn more about experiences with vestibulectomy. Also Looking for people who go to a Louisville, KY clinic

Post  Fingerscrossed on Tue Sep 17, 2013 5:48 am

Hi! My name is Lacey, married since last December (newlywed) and I live in Kentucky for graduate school. I have been suffering from vulvodynia and pelvic floor dysfunction for nearly four years. This issue has been going on for so long that I have lost an exact count. I had back surgery when I was twelve for kyphosis and I wonder if that led to my issues--maybe poked a nerve or something. I've never been able to use tampons and I have always had pain with pelvic exams. When my husband (then boyfriend) and I first had sex prior to the issues coming up, it always hurt upon beginning sex but went away after a short time. About a year and a half later, the pain got to the point that I lost my libido and sex was always painful. I no longer desired to be touched sexually and did not feel an urge. I tried to seek some guidance with my undergrad college's gynecology wing, but they did not really understand and told me to use dilators.

In March of this year, I finally started getting treatment at the Pelvic Pain Center in Louisville, KY. I've been doing weekly appointments there since the middle of May. I'm currently taking amitriptyline (25mg), baclofen (20mg x 3 a day), zovirax cream, Amitriptyline HCl/Baclofen/Gabapentin cream, and testosterone to restore my libido. I was just placed on Lyrica on Friday at my request. I have gotten better through muscle work with the nurse practitioner, but the vulvodynia/nerve pain is not. My doctor and nurse practitioner have both recommended that I get a vestibulectomy. I'm mostly wondering what happens next after you have it and it doesn't work. Do you use botox for the rest of your life? Meds? None of those sound appealing and nerve blocks don't even work on me. I only have pain with penetration of any kind, but it has still affected my life in a negative way. I wish my sex life was not defined by these problems.

Fingerscrossed

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Join date : 2013-09-17
Age : 27
Location : Kentucky

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Re: Newbie here: Want to learn more about experiences with vestibulectomy. Also Looking for people who go to a Louisville, KY clinic

Post  Alana3 on Tue Sep 17, 2013 6:13 am

First I lived in Lexington for 4 years! I had a vestibulectomy and can have sex with absolutely no problems and never had botox. Just pt. Not on any meds either in my case ir worked for me and I'm glad I went thru with it but everyone is different. Let me know if you have any questions about it really worth it in my opinion! Smile

Alana3

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