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Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 12

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 1

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 1

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

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Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist

after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

Comments: 9

Newbie here: Want to learn more about experiences with vestibulectomy. Also Looking for people who go to a Louisville, KY clinic

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Newbie here: Want to learn more about experiences with vestibulectomy. Also Looking for people who go to a Louisville, KY clinic

Post  Fingerscrossed on Tue Sep 17, 2013 5:48 am

Hi! My name is Lacey, married since last December (newlywed) and I live in Kentucky for graduate school. I have been suffering from vulvodynia and pelvic floor dysfunction for nearly four years. This issue has been going on for so long that I have lost an exact count. I had back surgery when I was twelve for kyphosis and I wonder if that led to my issues--maybe poked a nerve or something. I've never been able to use tampons and I have always had pain with pelvic exams. When my husband (then boyfriend) and I first had sex prior to the issues coming up, it always hurt upon beginning sex but went away after a short time. About a year and a half later, the pain got to the point that I lost my libido and sex was always painful. I no longer desired to be touched sexually and did not feel an urge. I tried to seek some guidance with my undergrad college's gynecology wing, but they did not really understand and told me to use dilators.

In March of this year, I finally started getting treatment at the Pelvic Pain Center in Louisville, KY. I've been doing weekly appointments there since the middle of May. I'm currently taking amitriptyline (25mg), baclofen (20mg x 3 a day), zovirax cream, Amitriptyline HCl/Baclofen/Gabapentin cream, and testosterone to restore my libido. I was just placed on Lyrica on Friday at my request. I have gotten better through muscle work with the nurse practitioner, but the vulvodynia/nerve pain is not. My doctor and nurse practitioner have both recommended that I get a vestibulectomy. I'm mostly wondering what happens next after you have it and it doesn't work. Do you use botox for the rest of your life? Meds? None of those sound appealing and nerve blocks don't even work on me. I only have pain with penetration of any kind, but it has still affected my life in a negative way. I wish my sex life was not defined by these problems.


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Age : 28
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Re: Newbie here: Want to learn more about experiences with vestibulectomy. Also Looking for people who go to a Louisville, KY clinic

Post  Alana3 on Tue Sep 17, 2013 6:13 am

First I lived in Lexington for 4 years! I had a vestibulectomy and can have sex with absolutely no problems and never had botox. Just pt. Not on any meds either in my case ir worked for me and I'm glad I went thru with it but everyone is different. Let me know if you have any questions about it really worth it in my opinion! Smile


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