Log in

I forgot my password

Latest topics
» Just Diagnosed with Vulvadynia
Today at 1:57 am by angelique2016

» Vulvadynia
Yesterday at 7:45 am by mary jane

» Constant pain, I want to die.
Sat Jul 22, 2017 9:41 pm by Meggiemay

» What is Vulvodynia?
Sat Jul 22, 2017 9:21 pm by mary jane

» Will I ever be able to wear jeans?
Wed Jul 19, 2017 11:02 pm by jungleclover

» Looking for a friend IRL; LA/OC
Wed Jul 19, 2017 10:58 pm by jungleclover

» Anyone else get this from yeast infections? (new member)
Wed Jul 19, 2017 10:37 pm by jungleclover

» Owner of vulvodyniSuppoet.com
Wed Jul 19, 2017 10:28 pm by LaurenVV

» anyone from southern california in here?
Tue Jul 18, 2017 2:38 am by crypticcalico

Just Diagnosed with Vulvadynia

Tue Aug 02, 2016 9:11 pm by CherryTree23

Well, I was just diagnosed today, yay...my symptoms are just burning pain in vaginal opening. This all came about after taking Bactrim, Monistat, Clindomycin and Diflucan. This doctor was extremely confident I have Vulvadynia. Also told me my vaginal skin isn't red. Yes, it is, mine isn't typically electric red. He prescribed Ampytripline (sp) said, I have a very mild case, and worse case …

Comments: 7

Vulvadynia

Fri Jul 21, 2017 11:53 pm by Linda Williams

I am 68 years old and a year ago was diagnosed with vestibulitis, then vulvadynia. I have a history of chinchilla bladder infections, have had major bladder repair, hysterectomy, mid 30's, an auto immune disease. I take a daily antibiotic to keep UTI's at bay. My doctor has done the Quip test which was uncomfortable but did not test anything. I use Premarin vaginal cream 2 times a week. These …

Comments: 3

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 21

Looking for a friend IRL; LA/OC

Tue Jul 18, 2017 2:51 am by crypticcalico

Hello!

I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.

Comments: 1

Owner of vulvodyniSuppoet.com

Wed Jul 19, 2017 10:28 pm by LaurenVV

Hi, I started vulvodyniasupport.com at the age of 28.
I was a leader when there was no help, no forums etc.

As I went on my path, I found acupuncture, herbs and time helped me recover.
Most never do.

I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.

I have moved on from the support world and found a career that allowed
Me to bring my …

Comments: 0

anyone from southern california in here?

Tue Jul 12, 2011 6:43 pm by Melissa777

Hi Im just wondering if anyone here is from so cal- USA
I am in san diego- but from LA!!!

Comments: 6

Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

Tue Jul 04, 2017 9:01 am by Tired89

Hello everyone. It's been quite a long time since I've posted. I've been extremely depressed and bottling it all up. I've been seeing a pelvic floor therapist (it's only been 4 visits) for my provoked vestibulodynia and the only reason she can get inside of me to do myofascial release and to use the dilators is because I use BLT (benzocaine, lidocaine, tetracaine) ointment on my vestibule prior …

Comments: 2

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12


Newbie here: Want to learn more about experiences with vestibulectomy. Also Looking for people who go to a Louisville, KY clinic

View previous topic View next topic Go down

Newbie here: Want to learn more about experiences with vestibulectomy. Also Looking for people who go to a Louisville, KY clinic

Post  Fingerscrossed on Tue Sep 17, 2013 5:48 am

Hi! My name is Lacey, married since last December (newlywed) and I live in Kentucky for graduate school. I have been suffering from vulvodynia and pelvic floor dysfunction for nearly four years. This issue has been going on for so long that I have lost an exact count. I had back surgery when I was twelve for kyphosis and I wonder if that led to my issues--maybe poked a nerve or something. I've never been able to use tampons and I have always had pain with pelvic exams. When my husband (then boyfriend) and I first had sex prior to the issues coming up, it always hurt upon beginning sex but went away after a short time. About a year and a half later, the pain got to the point that I lost my libido and sex was always painful. I no longer desired to be touched sexually and did not feel an urge. I tried to seek some guidance with my undergrad college's gynecology wing, but they did not really understand and told me to use dilators.

In March of this year, I finally started getting treatment at the Pelvic Pain Center in Louisville, KY. I've been doing weekly appointments there since the middle of May. I'm currently taking amitriptyline (25mg), baclofen (20mg x 3 a day), zovirax cream, Amitriptyline HCl/Baclofen/Gabapentin cream, and testosterone to restore my libido. I was just placed on Lyrica on Friday at my request. I have gotten better through muscle work with the nurse practitioner, but the vulvodynia/nerve pain is not. My doctor and nurse practitioner have both recommended that I get a vestibulectomy. I'm mostly wondering what happens next after you have it and it doesn't work. Do you use botox for the rest of your life? Meds? None of those sound appealing and nerve blocks don't even work on me. I only have pain with penetration of any kind, but it has still affected my life in a negative way. I wish my sex life was not defined by these problems.

Fingerscrossed

Posts : 25
Join date : 2013-09-17
Age : 27
Location : Kentucky

View user profile

Back to top Go down

Re: Newbie here: Want to learn more about experiences with vestibulectomy. Also Looking for people who go to a Louisville, KY clinic

Post  Alana3 on Tue Sep 17, 2013 6:13 am

First I lived in Lexington for 4 years! I had a vestibulectomy and can have sex with absolutely no problems and never had botox. Just pt. Not on any meds either in my case ir worked for me and I'm glad I went thru with it but everyone is different. Let me know if you have any questions about it really worth it in my opinion! Smile

Alana3

Posts : 1086
Join date : 2012-09-25

View user profile

Back to top Go down

View previous topic View next topic Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum