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» Can you guys tell me your experiences with diflucan/Fluconazole?
Yesterday at 1:29 am by ryn207

» So frustrating!!
Yesterday at 1:25 am by ryn207

» Looking for suggestions or encouragement
Yesterday at 1:19 am by ryn207

» Looking for a friend..... and new problems
Mon Jan 15, 2018 10:00 pm by VVSSufferer

» Vestibulectomy recovery question!
Sun Jan 14, 2018 11:37 pm by Kezz

» Prescription creams that work!
Sun Jan 14, 2018 4:46 am by Mintaherb

» Struggling
Sun Jan 14, 2018 4:29 am by Mintaherb

» Went Away and Came Back
Sat Jan 13, 2018 10:56 am by mary jane

» Amitriptyline given for vulvodyina pain
Sat Jan 13, 2018 1:39 am by ryn207

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 5

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1


Newbie here: Want to learn more about experiences with vestibulectomy. Also Looking for people who go to a Louisville, KY clinic

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Newbie here: Want to learn more about experiences with vestibulectomy. Also Looking for people who go to a Louisville, KY clinic

Post  Fingerscrossed on Tue Sep 17, 2013 5:48 am

Hi! My name is Lacey, married since last December (newlywed) and I live in Kentucky for graduate school. I have been suffering from vulvodynia and pelvic floor dysfunction for nearly four years. This issue has been going on for so long that I have lost an exact count. I had back surgery when I was twelve for kyphosis and I wonder if that led to my issues--maybe poked a nerve or something. I've never been able to use tampons and I have always had pain with pelvic exams. When my husband (then boyfriend) and I first had sex prior to the issues coming up, it always hurt upon beginning sex but went away after a short time. About a year and a half later, the pain got to the point that I lost my libido and sex was always painful. I no longer desired to be touched sexually and did not feel an urge. I tried to seek some guidance with my undergrad college's gynecology wing, but they did not really understand and told me to use dilators.

In March of this year, I finally started getting treatment at the Pelvic Pain Center in Louisville, KY. I've been doing weekly appointments there since the middle of May. I'm currently taking amitriptyline (25mg), baclofen (20mg x 3 a day), zovirax cream, Amitriptyline HCl/Baclofen/Gabapentin cream, and testosterone to restore my libido. I was just placed on Lyrica on Friday at my request. I have gotten better through muscle work with the nurse practitioner, but the vulvodynia/nerve pain is not. My doctor and nurse practitioner have both recommended that I get a vestibulectomy. I'm mostly wondering what happens next after you have it and it doesn't work. Do you use botox for the rest of your life? Meds? None of those sound appealing and nerve blocks don't even work on me. I only have pain with penetration of any kind, but it has still affected my life in a negative way. I wish my sex life was not defined by these problems.

Fingerscrossed

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Age : 28
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Re: Newbie here: Want to learn more about experiences with vestibulectomy. Also Looking for people who go to a Louisville, KY clinic

Post  Alana3 on Tue Sep 17, 2013 6:13 am

First I lived in Lexington for 4 years! I had a vestibulectomy and can have sex with absolutely no problems and never had botox. Just pt. Not on any meds either in my case ir worked for me and I'm glad I went thru with it but everyone is different. Let me know if you have any questions about it really worth it in my opinion! Smile

Alana3

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