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» Finally found a place for me...
Today at 4:08 am by mtsp

» UK Vulvodynia Clinics
Yesterday at 9:58 am by katycrawford

» 8 years and struggling
Thu May 17, 2018 11:22 pm by Kezz

» Vestibulectomy recovery question!
Thu May 17, 2018 11:11 pm by Kezz

» Gabapentin Gel. or other topical creams
Thu May 17, 2018 11:55 am by Rosie21

» What has been helping ME (much less pain over time!!)
Wed May 16, 2018 3:43 am by leoscc

» There is hope after all!!
Wed May 16, 2018 2:50 am by Cbrimer28

» Getting to the point of wanting to End Everything ADVICE NEEDED
Mon May 14, 2018 6:49 pm by fairlight10

» Looking for advice!
Thu May 10, 2018 8:50 pm by KB365

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

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What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 5

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14


Relief !!!! Finally - I can help you

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Relief !!!! Finally - I can help you

Post  Ar77070 on Fri Sep 27, 2013 6:36 pm

I'm 19 years old and have gone through hell for the last year and a half. It started last summer with a urinary tract infection, and the doctors also noticed a dangerously high count of protein in my urine. A few weeks later I got yet another UTI and took antibiotics to treat it again. Then in September I had a mirena put in which is a form of birth control that blocks semen from going to your Fallopian tubes and traveling to your ovaries. This caused many problems for me: decreased sex drive, terrible mood swings, painful sex, etc so I had it removed a few months later. Prior to having it removed, I had yet another urinary tract infection. I started to get really worried that I had kidney problems but every doctor I went to told me everything looked fine. Then in march I had my most recent urinary tract infection which was so severe I had to go to an emergency room at 1 am and they said I had so many things including blood and minerals in my urine that I probably had a kidney problem. My protein count in my urine was also high still, and at this point I was experiencing the burning of vulvodynia every day, which began around the time I had my mirena put in. After blood work and more doctors they still couldn't tell me what was going on. At this point I had stopped having sex all together because the pain was so unbearable. I had so much trauma occurring to my poor lady areas that I could find no relief. I also had switched to the pill for birth control so I was taking hormones again. For the past four years I also was prescribed minocycline for acne which I took daily and only now realize how damaging that was to my immune system and body. So fast forward a few months and I have no more UTIS but still consistent vulvodynia burning and pain. I was suggested anti depressants but I knew that was a path I didn't want to go down. So here's where my story can help you. I decided that all the chemicals (antibiotics for years, hormones) were actually hurting and destroying my immune system, throwing off my pH balance, and causing hell for my sex life.

My holistic approach that I carefully compiled together from various websites that has finally given me seven days and counting of complete pain free living is as follows:

1) go without sex for two months. Your nerves are sensitive and damaged, they need to recover in peace
2) stretching!! I belief this had this biggest help by far. Stretch everyday!!!!!Regular work out stretches , especially that work your upper legs, glutes, and abdominal area help strengthen your muscles which most likely are weakened and having spasms your are unaware of that cause pain
3) eat a decently healthy diet, love your body!! It will do wonderful things and help regenerate and heal
4) when you feel the burning , tighten your vaginal muscles and release , repeat many times.. It ended up actually reducing burning quickly for me
5) extremely hot baths with oatmeal powder or baking soda give relief for flare ups
6) completely stopping all medication (birth control , anti depressants , antibiotics)
7) buy cotton tampons - available at heb in organic section
Cool sleep without underwear- this tremendously reduced my burning at night
9) once a month put baking soda suppositories up your vagina before bed for pH balance
10) avoid anything bumping against or hitting vaginal nerves
11) on weekend nights when I was drinking a few beers I noticed the pain was less intensified -- do not recommend relying on alcohol to ease pain
12) do this simple routine for atleast three months and I hope you can experience relief like I have. I have suffered and now your pain, I hope to help as many of you out as I can. Please try this holistic approach before further damaging your bodies with more medicine and treatments.

Stay strong, in time your body will heal itself if you let it!












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Re: Relief !!!! Finally - I can help you

Post  tinkerbelle2 on Thu Oct 03, 2013 1:24 pm


Are you still pain-free? I will definitely try out the things you mentioned such as the baking soda and oatmeal baths.
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Re: Relief !!!! Finally - I can help you

Post  Takver on Wed Oct 09, 2013 7:59 am

I'm so glad you found things that work for you. I'm taking notes of the ones I hadn't heard of. I'd never have thought of the technique for tightening and releasing muscles during a pain flare, for instance.

I wouldn't recommend tampons! Washable cloth menstrual pads are the way to go. You don't mention contraception: what are you using? I have a copper IUD. They're wonderful things, 99.6% effective and no hormones at all, but if you have heavy/painful periods they usually make them a bit worse, so they're not for everyone. Although an Omega 3 supplement really helped reduce the heavier periods for me.

Also please don't give out blanket suggestions to strangers to go off their medication. They probably need it, and you have no idea what other medical conditions they have.
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Re: Relief !!!! Finally - I can help you

Post  mary jane on Thu Oct 10, 2013 10:12 pm

go without sex for two months. Your nerves are sensitive and damaged, they need to recover in peace
.
And do you have less painful intercourse afterwards if you respect this rule ?
I'd wait 6 months for them to heal, anything !
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Re: Relief !!!! Finally - I can help you

Post  Alana3 on Fri Oct 11, 2013 2:54 pm

Haha or you could just get surgery and be cured. I cannot get off birth control that's bad advice and not the reason I got vulvodynia. And for a lot of women tightening vagina muscles is a horrible idea. I'm glad it worked for you but don't say you can fix everyone half the stuff you listed I wad told never to try...

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Re: Relief !!!! Finally - I can help you

Post  mary jane on Fri Oct 11, 2013 3:02 pm

@ alana 3,
surgery does work but not always, it might leave you with even more nerve damage.
Alas, it depends on the doctor you have
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Re: Relief !!!! Finally - I can help you

Post  Alana3 on Fri Oct 11, 2013 3:28 pm

My point was just because going off all thqt stuff helped her my surgery helped me. Everyone's different I'm cured but I cant do half that stuff and recommendations of going off medication is maddening because I can't.

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Re: Relief !!!! Finally - I can help you

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