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» Vestibulectomy
Fri Aug 18, 2017 12:39 pm by Hopeitworks

» Anyone been to see Dr.Claire Bailey in Birmingham?
Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

» Pain management - what works for me
Sat Aug 12, 2017 9:58 am by sj17

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 0

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0


Relief !!!! Finally - I can help you

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Relief !!!! Finally - I can help you

Post  Ar77070 on Fri Sep 27, 2013 6:36 pm

I'm 19 years old and have gone through hell for the last year and a half. It started last summer with a urinary tract infection, and the doctors also noticed a dangerously high count of protein in my urine. A few weeks later I got yet another UTI and took antibiotics to treat it again. Then in September I had a mirena put in which is a form of birth control that blocks semen from going to your Fallopian tubes and traveling to your ovaries. This caused many problems for me: decreased sex drive, terrible mood swings, painful sex, etc so I had it removed a few months later. Prior to having it removed, I had yet another urinary tract infection. I started to get really worried that I had kidney problems but every doctor I went to told me everything looked fine. Then in march I had my most recent urinary tract infection which was so severe I had to go to an emergency room at 1 am and they said I had so many things including blood and minerals in my urine that I probably had a kidney problem. My protein count in my urine was also high still, and at this point I was experiencing the burning of vulvodynia every day, which began around the time I had my mirena put in. After blood work and more doctors they still couldn't tell me what was going on. At this point I had stopped having sex all together because the pain was so unbearable. I had so much trauma occurring to my poor lady areas that I could find no relief. I also had switched to the pill for birth control so I was taking hormones again. For the past four years I also was prescribed minocycline for acne which I took daily and only now realize how damaging that was to my immune system and body. So fast forward a few months and I have no more UTIS but still consistent vulvodynia burning and pain. I was suggested anti depressants but I knew that was a path I didn't want to go down. So here's where my story can help you. I decided that all the chemicals (antibiotics for years, hormones) were actually hurting and destroying my immune system, throwing off my pH balance, and causing hell for my sex life.

My holistic approach that I carefully compiled together from various websites that has finally given me seven days and counting of complete pain free living is as follows:

1) go without sex for two months. Your nerves are sensitive and damaged, they need to recover in peace
2) stretching!! I belief this had this biggest help by far. Stretch everyday!!!!!Regular work out stretches , especially that work your upper legs, glutes, and abdominal area help strengthen your muscles which most likely are weakened and having spasms your are unaware of that cause pain
3) eat a decently healthy diet, love your body!! It will do wonderful things and help regenerate and heal
4) when you feel the burning , tighten your vaginal muscles and release , repeat many times.. It ended up actually reducing burning quickly for me
5) extremely hot baths with oatmeal powder or baking soda give relief for flare ups
6) completely stopping all medication (birth control , anti depressants , antibiotics)
7) buy cotton tampons - available at heb in organic section
Cool sleep without underwear- this tremendously reduced my burning at night
9) once a month put baking soda suppositories up your vagina before bed for pH balance
10) avoid anything bumping against or hitting vaginal nerves
11) on weekend nights when I was drinking a few beers I noticed the pain was less intensified -- do not recommend relying on alcohol to ease pain
12) do this simple routine for atleast three months and I hope you can experience relief like I have. I have suffered and now your pain, I hope to help as many of you out as I can. Please try this holistic approach before further damaging your bodies with more medicine and treatments.

Stay strong, in time your body will heal itself if you let it!












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Re: Relief !!!! Finally - I can help you

Post  tinkerbelle2 on Thu Oct 03, 2013 1:24 pm


Are you still pain-free? I will definitely try out the things you mentioned such as the baking soda and oatmeal baths.
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Re: Relief !!!! Finally - I can help you

Post  Takver on Wed Oct 09, 2013 7:59 am

I'm so glad you found things that work for you. I'm taking notes of the ones I hadn't heard of. I'd never have thought of the technique for tightening and releasing muscles during a pain flare, for instance.

I wouldn't recommend tampons! Washable cloth menstrual pads are the way to go. You don't mention contraception: what are you using? I have a copper IUD. They're wonderful things, 99.6% effective and no hormones at all, but if you have heavy/painful periods they usually make them a bit worse, so they're not for everyone. Although an Omega 3 supplement really helped reduce the heavier periods for me.

Also please don't give out blanket suggestions to strangers to go off their medication. They probably need it, and you have no idea what other medical conditions they have.
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Re: Relief !!!! Finally - I can help you

Post  mary jane on Thu Oct 10, 2013 10:12 pm

go without sex for two months. Your nerves are sensitive and damaged, they need to recover in peace
.
And do you have less painful intercourse afterwards if you respect this rule ?
I'd wait 6 months for them to heal, anything !
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Re: Relief !!!! Finally - I can help you

Post  Alana3 on Fri Oct 11, 2013 2:54 pm

Haha or you could just get surgery and be cured. I cannot get off birth control that's bad advice and not the reason I got vulvodynia. And for a lot of women tightening vagina muscles is a horrible idea. I'm glad it worked for you but don't say you can fix everyone half the stuff you listed I wad told never to try...

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Re: Relief !!!! Finally - I can help you

Post  mary jane on Fri Oct 11, 2013 3:02 pm

@ alana 3,
surgery does work but not always, it might leave you with even more nerve damage.
Alas, it depends on the doctor you have
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Re: Relief !!!! Finally - I can help you

Post  Alana3 on Fri Oct 11, 2013 3:28 pm

My point was just because going off all thqt stuff helped her my surgery helped me. Everyone's different I'm cured but I cant do half that stuff and recommendations of going off medication is maddening because I can't.

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Re: Relief !!!! Finally - I can help you

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