Vulvodynia Support
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» Hope to all my suffering ladies
Relief !!!! Finally - I can help you  EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Relief !!!! Finally - I can help you  EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Relief !!!! Finally - I can help you  EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Relief !!!! Finally - I can help you  EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Relief !!!! Finally - I can help you  EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Relief !!!! Finally - I can help you  EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Relief !!!! Finally - I can help you  EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Relief !!!! Finally - I can help you  EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Relief !!!! Finally - I can help you  EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Relief !!!! Finally - I can help you

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Post  Ar77070 Fri Sep 27, 2013 6:36 pm

I'm 19 years old and have gone through hell for the last year and a half. It started last summer with a urinary tract infection, and the doctors also noticed a dangerously high count of protein in my urine. A few weeks later I got yet another UTI and took antibiotics to treat it again. Then in September I had a mirena put in which is a form of birth control that blocks semen from going to your Fallopian tubes and traveling to your ovaries. This caused many problems for me: decreased sex drive, terrible mood swings, painful sex, etc so I had it removed a few months later. Prior to having it removed, I had yet another urinary tract infection. I started to get really worried that I had kidney problems but every doctor I went to told me everything looked fine. Then in march I had my most recent urinary tract infection which was so severe I had to go to an emergency room at 1 am and they said I had so many things including blood and minerals in my urine that I probably had a kidney problem. My protein count in my urine was also high still, and at this point I was experiencing the burning of vulvodynia every day, which began around the time I had my mirena put in. After blood work and more doctors they still couldn't tell me what was going on. At this point I had stopped having sex all together because the pain was so unbearable. I had so much trauma occurring to my poor lady areas that I could find no relief. I also had switched to the pill for birth control so I was taking hormones again. For the past four years I also was prescribed minocycline for acne which I took daily and only now realize how damaging that was to my immune system and body. So fast forward a few months and I have no more UTIS but still consistent vulvodynia burning and pain. I was suggested anti depressants but I knew that was a path I didn't want to go down. So here's where my story can help you. I decided that all the chemicals (antibiotics for years, hormones) were actually hurting and destroying my immune system, throwing off my pH balance, and causing hell for my sex life.

My holistic approach that I carefully compiled together from various websites that has finally given me seven days and counting of complete pain free living is as follows:

1) go without sex for two months. Your nerves are sensitive and damaged, they need to recover in peace
2) stretching!! I belief this had this biggest help by far. Stretch everyday!!!!!Regular work out stretches , especially that work your upper legs, glutes, and abdominal area help strengthen your muscles which most likely are weakened and having spasms your are unaware of that cause pain
3) eat a decently healthy diet, love your body!! It will do wonderful things and help regenerate and heal
4) when you feel the burning , tighten your vaginal muscles and release , repeat many times.. It ended up actually reducing burning quickly for me
5) extremely hot baths with oatmeal powder or baking soda give relief for flare ups
6) completely stopping all medication (birth control , anti depressants , antibiotics)
7) buy cotton tampons - available at heb in organic section
Cool sleep without underwear- this tremendously reduced my burning at night
9) once a month put baking soda suppositories up your vagina before bed for pH balance
10) avoid anything bumping against or hitting vaginal nerves
11) on weekend nights when I was drinking a few beers I noticed the pain was less intensified -- do not recommend relying on alcohol to ease pain
12) do this simple routine for atleast three months and I hope you can experience relief like I have. I have suffered and now your pain, I hope to help as many of you out as I can. Please try this holistic approach before further damaging your bodies with more medicine and treatments.

Stay strong, in time your body will heal itself if you let it!












Ar77070

Posts : 2
Join date : 2013-09-27

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Post  tinkerbelle2 Thu Oct 03, 2013 1:24 pm


Are you still pain-free? I will definitely try out the things you mentioned such as the baking soda and oatmeal baths.
tinkerbelle2
tinkerbelle2

Posts : 303
Join date : 2013-09-28
Age : 31
Location : Brighton, England, UK.

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Post  Takver Wed Oct 09, 2013 7:59 am

I'm so glad you found things that work for you. I'm taking notes of the ones I hadn't heard of. I'd never have thought of the technique for tightening and releasing muscles during a pain flare, for instance.

I wouldn't recommend tampons! Washable cloth menstrual pads are the way to go. You don't mention contraception: what are you using? I have a copper IUD. They're wonderful things, 99.6% effective and no hormones at all, but if you have heavy/painful periods they usually make them a bit worse, so they're not for everyone. Although an Omega 3 supplement really helped reduce the heavier periods for me.

Also please don't give out blanket suggestions to strangers to go off their medication. They probably need it, and you have no idea what other medical conditions they have.
Takver
Takver

Posts : 41
Join date : 2013-09-11
Location : UK

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Post  mary jane Thu Oct 10, 2013 10:12 pm

go without sex for two months. Your nerves are sensitive and damaged, they need to recover in peace
.
And do you have less painful intercourse afterwards if you respect this rule ?
I'd wait 6 months for them to heal, anything !
mary jane
mary jane

Posts : 345
Join date : 2013-10-05
Location : UK

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Post  Alana3 Fri Oct 11, 2013 2:54 pm

Haha or you could just get surgery and be cured. I cannot get off birth control that's bad advice and not the reason I got vulvodynia. And for a lot of women tightening vagina muscles is a horrible idea. I'm glad it worked for you but don't say you can fix everyone half the stuff you listed I wad told never to try...

Alana3

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Join date : 2012-09-25

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Post  mary jane Fri Oct 11, 2013 3:02 pm

@ alana 3,
surgery does work but not always, it might leave you with even more nerve damage.
Alas, it depends on the doctor you have
mary jane
mary jane

Posts : 345
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Location : UK

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Post  Alana3 Fri Oct 11, 2013 3:28 pm

My point was just because going off all thqt stuff helped her my surgery helped me. Everyone's different I'm cured but I cant do half that stuff and recommendations of going off medication is maddening because I can't.

Alana3

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