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Gabapentin Gel. or other topical creams
Thu May 10, 2018 9:43 am by Rosie21
Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.
Comments: 2
Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?
Sat Aug 01, 2015 4:17 pm by Fielder
Hi everyone,
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
Comments: 11
An absolute success story- please read!
Fri Mar 08, 2019 10:57 pm by Persevere1990
Dear All,
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
Comments: 0
I'm sorry im rambling
Thu Feb 21, 2019 5:49 am by Jet227
hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …
Comments: 1
New member need advice please
Thu Feb 28, 2019 11:33 pm by PANDORA123
Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.
Thanks
Thanks
Comments: 5
MonaLisa Touch
Fri Feb 08, 2019 7:35 pm by rl2091
Hi All,
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
Comments: 3
Diagnosed Recently
Tue Jan 08, 2019 3:55 pm by flissyg
Hi All,
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
Comments: 4
New and need advice and help
Wed Dec 05, 2018 3:26 pm by Cin124
Hi everyone,
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
Comments: 6
New here would very much appreciate advice at the end of my rope
Wed Jan 09, 2019 9:09 pm by Jma990o
This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
Comments: 3
In college, diagnosed with vulvodynia
5 posters
Page 1 of 1
In college, diagnosed with vulvodynia
Hello,
I am a 19 year old that starting experiencing symptoms about a year ago during a hook-up. I knew something was completely wrong, I had never experienced something that painful in that area. I just recently went to the doctor and he confirmed what I already thought it was, vulvodynia. It took me a while, I spent a lot of time feeling sorry for myself and being negative but I finally went. He prescribed me with some form of combo of lidocane and something else. I was wondering If anyone had any success with this treatment. Also I read up on something about botox helping vulvodynia and I was wondering if anyone had any success with that? I really want to get a hold of this, at this age its very hard to have a normal dating life. Every time I think about dating I just get sad. I really wanna figure this out!
More Info:
I have chronic yeast infections, but I don't know if this is a direct link to my vulvodynia. I first noticed my vulvodynia after taking a high dose of antibiotics when I had PID. I also have always been really tight in general, even before vulvodynia It would take a little time for me to be able to have something enter me. Also if anyone has any cures to Chronic Yeasts infections that would be awesome! Also a side note I take lexapro and xanax for my anxiety but those have not helped or hindered my condition.
I am a 19 year old that starting experiencing symptoms about a year ago during a hook-up. I knew something was completely wrong, I had never experienced something that painful in that area. I just recently went to the doctor and he confirmed what I already thought it was, vulvodynia. It took me a while, I spent a lot of time feeling sorry for myself and being negative but I finally went. He prescribed me with some form of combo of lidocane and something else. I was wondering If anyone had any success with this treatment. Also I read up on something about botox helping vulvodynia and I was wondering if anyone had any success with that? I really want to get a hold of this, at this age its very hard to have a normal dating life. Every time I think about dating I just get sad. I really wanna figure this out!
More Info:
I have chronic yeast infections, but I don't know if this is a direct link to my vulvodynia. I first noticed my vulvodynia after taking a high dose of antibiotics when I had PID. I also have always been really tight in general, even before vulvodynia It would take a little time for me to be able to have something enter me. Also if anyone has any cures to Chronic Yeasts infections that would be awesome! Also a side note I take lexapro and xanax for my anxiety but those have not helped or hindered my condition.
Last edited by iwthsap89 on Wed Nov 13, 2013 11:29 pm; edited 1 time in total
iwthsap89- Posts : 1
Join date : 2013-11-13
Re: In college, diagnosed with vulvodynia
Hello,
you need to give more details, you are a bit vague. what are your symptoms? What type of pain do you have ?
and don't worry, you're very young, surely you'll get better. And don't worry about dating, focus on your health right now, screw men, they can WAIT ! Dating is fun when you can focus on it without such issues.
You say you're on lidocaine, that's good, what else are you on? Any medication at all ?
when I was your age (I'm 26 now) I had vulvar vestibulitis symptoms (though very mild) and had some pain with intercourse, now I have full blown constant pain recently controlled by medication, and yet I still expect to get BETTER, because that's what bodies do. They try and heal any damage/illness.
Any yeast infections that you know of ? Try taking Optibac, a lady was cured by it.
http://madpeach.blogspot.co.uk/2011/10/hannahs-story-success-with-yeast.html
you need to give more details, you are a bit vague. what are your symptoms? What type of pain do you have ?
and don't worry, you're very young, surely you'll get better. And don't worry about dating, focus on your health right now, screw men, they can WAIT ! Dating is fun when you can focus on it without such issues.
You say you're on lidocaine, that's good, what else are you on? Any medication at all ?
when I was your age (I'm 26 now) I had vulvar vestibulitis symptoms (though very mild) and had some pain with intercourse, now I have full blown constant pain recently controlled by medication, and yet I still expect to get BETTER, because that's what bodies do. They try and heal any damage/illness.
Any yeast infections that you know of ? Try taking Optibac, a lady was cured by it.
http://madpeach.blogspot.co.uk/2011/10/hannahs-story-success-with-yeast.html
mary jane- Posts : 345
Join date : 2013-10-05
Location : UK
Re: In college, diagnosed with vulvodynia
botox helps vulvodynia in some cases, but it helps vaginismus even more. So if your pain is caused by a tight pelvic floor, it might help, but I don't know if nhs pays for that.
there is a cosmo article on botox for vulvodynia.
but from my experience, 100 women can all have vulvodynia and yet have different causes, symptoms and cures.
If you;re really desperate, you can see a vulval specialist privately. Like Wendy Reid. but it's very expensive
there is a cosmo article on botox for vulvodynia.
but from my experience, 100 women can all have vulvodynia and yet have different causes, symptoms and cures.
If you;re really desperate, you can see a vulval specialist privately. Like Wendy Reid. but it's very expensive
mary jane- Posts : 345
Join date : 2013-10-05
Location : UK
Re: In college, diagnosed with vulvodynia
I think given you were tight prior to V you should definitely find a Women's Health Physio and give that a try too.
Sarah001- Posts : 1164
Join date : 2010-06-11
Age : 50
Location : UK
Re: In college, diagnosed with vulvodynia
Hi!
I'm in college now too (although my symptoms started at age 17). My condition is provoked vestibulitis, and I was given lidocane as a first treatment as well. I tried it a couple times before sex, and it helped a little but not really. I don't have experience with the botox treatments but I've tried a bunch of others (Lyrica, PT, Estrogen gels) that may help you depending on what your exact condition is. I have heard that one bad yeast infection can trigger this, but there are definitely people on this forum more knowledgeable on that topic than I am. I totally get how hard it is to deal with this in college. Everyone just hooks up all the time and they don't seem to have any issues at all!
I'm in college now too (although my symptoms started at age 17). My condition is provoked vestibulitis, and I was given lidocane as a first treatment as well. I tried it a couple times before sex, and it helped a little but not really. I don't have experience with the botox treatments but I've tried a bunch of others (Lyrica, PT, Estrogen gels) that may help you depending on what your exact condition is. I have heard that one bad yeast infection can trigger this, but there are definitely people on this forum more knowledgeable on that topic than I am. I totally get how hard it is to deal with this in college. Everyone just hooks up all the time and they don't seem to have any issues at all!
Re: In college, diagnosed with vulvodynia
I had provoked as well and it started in college too. I tried all the topicals and finally couldn't take it anymore so I had a vestibulectomy a year ago which helped. I also have recurrent yeast infections but hoping im controlling them with azo. Its frustrating for sure.
Alana3- Posts : 1093
Join date : 2012-09-25
Similar topics
» Possible vulvodynia, not yet diagnosed
» Just been diagnosed with Vulvodynia and would like some help dealing with it please!
» Vulvodynia - Newly Diagnosed
» Just been diagnosed with Vulvodynia and would like some help dealing with it please!
» Vulvodynia - Newly Diagnosed
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Fri Oct 23, 2020 12:04 am by ringostarr26
» Please tell me this can get better
Sat Jul 18, 2020 7:38 pm by sammykramer
» By no means cured, but doing much better!
Mon Mar 16, 2020 1:26 pm by tinkerbelle2
» How I cured my Vulvodynia!
Sat Dec 07, 2019 11:54 am by Millie
» 7 months since the diagnosis
Wed Aug 14, 2019 2:38 am by agtoronto
» Gabapentin Gel. or other topical creams
Sat Jun 15, 2019 5:22 pm by mary jane
» IMPORTANT FOR UK SUFFERERS
Sat Jun 15, 2019 5:21 pm by mary jane
» Help New Diagnosis
Sat Jun 15, 2019 5:07 pm by mary jane
» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Tue Jun 11, 2019 12:56 am by VVSSufferer