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Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

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Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 3

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6


NEED ADVISE

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NEED ADVISE

Post  Mubhaus on Wed Dec 24, 2014 6:56 pm

I HAD A HYSTERCTOMY IN APRIL OF THIS YEAR, IM 46 AND ATER THE FRIST TIME WE HAS INTERCOUSE ALMOSY 3MONTH LATER I STARTED HAVE BURNING . I WAS TREAT FOR A FEMALE INFECTION, AND THAT DID NOT WORK. I M MARRIED TO WONDERFUL MAN WHO IS UNDERSTANTING, BUT I'M SICK OF THIS. MY DOCTOR LISTENED TO ME AND GAVE SOME CREAM FOR PAIN AND A ANTIDRESSANT WITH PAIN MEDS. I STILL HAVE FLAIR UP'S.

Mubhaus

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Re: NEED ADVISE

Post  JulesB on Fri Jan 16, 2015 8:08 am

See my post - "what worked for me". Also, as you are 46 and had a hysterectomy it may be due to drop in oestrogen levels which causes the vaginal tissue to because less elastic, thinner, and more fragile and also causes reduction in you own natural lubrication. Oestrogen cream or pessaries is t he usual cure for this - it should return you vaginal tissue to its normal moisture, elasticity and toughness. If you cannot use oestrogen or it doesn't agree with you, there are several vaginal lubricants and moisturisers on the market that help the tissues return to normal, e.g. Yes water based lubricant, Sylk, Woohoo, Balance Activ Menopause, Pegaso IntiNorm, Lubrigyn Cream. Be sure to choose one that has natural ingredients and no chemical nasties. All those I have listed are natural and match vaginal PH, several contain hyaluronic acid which is the same chemical in your body that keeps cells moist. am in the process of going through these to find one that doesn't sting me - I have had vulvodynia for 2 years which has left the skin around my vaginal opening very sensitive to products. Now I have vaginal dryness due to menopause (dropping oestrogen levels), and want a nice natural vaginal moisturiser. All those products I have listed can be bought on Amazon, except Woohoo which is from Boots. Some are available on prescription (Yes, Sylk). My GP gave me hyalofemme which she said many find good, but it stung me (chemicals). You need to find what works for you and doesn't irritate. Try the oestrogen cream / pessary - these give some people sideveffects, which is why I am holding back from trying that unless all else fails.

JulesB

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