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New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 4

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

Comments: 0

Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 3

Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 4

6 year sufferer but I’ve found some hope

Wed Oct 10, 2018 1:33 am by Npage14

Hey, ladies! I’m new to this support group, I’ve thought about doing something like this for a while so I wanted to try this out! I’ve had vulvodynia for 6 years now, I am self diagnosed. I’m 20 now and the pain started when I had my first encounter with sexual contact when I was 14(I still remained a virgin though it was fingering). For a couple years the pain was so bad I could hardly …

Comments: 0

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5

Vulvodynia Petition from Associazione VulvodiniaPuntoInfo ONLUS • Rome, Italy

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Vulvodynia Petition from Associazione VulvodiniaPuntoInfo ONLUS • Rome, Italy

Post  Aida Blanchett on Tue Jul 07, 2015 5:18 am

Hi girls,

it's a long time since I wrote last time in here.

I just want you to know VulvodiniaPuntoInfo became a charity association last year!

Some of you perhaps remember my story and the foundation of the first italian Forum for women suffering from V.

my dreams all came true. The association is the first & unique in Italy as non profit special charity organization, and the best of the news is that we the founder are two women healed from v!

We want to spread a message of hope for all!  I love you You can heal.

In our forum, the success stories are increasing year after year. And we are online only since 2010, only 5 years!
Many, many women, once healed, as you probably know, they don't write anymore, so the healings are much more than the written stories...

 I hope this will help you believe and have much more confidence in your presonal & unique  process of healing

Today, I have come back in here because I need your help.
We really need your help ladies!  Like a Star @ heaven

We have created a special online Petition. It's called "#UnaFirmaPerLaVulvodinia" = a Signature for Vulvodynia

In Italy V. is not yet recognized by italian NIH.

We have created this petition composing a special text in order to gain much more attention from the Italian Government, but beyond all of this, our Petition goes deeper. 

We aim to achieve attention worldwide. Yes, that's what we plan.

You know, even if I am now healed, I cannot forget all the pain, not only my years devasted but also all the women I have met in these years of volunteering.

 I cannot forget.
I cannot.
I don't want to!

I don't want any more to read stories like that of Yvonne Wallis. I don't want to.

I cannot forget and I want to change things.

And more, it could be our daughter, our mother, our friend... 

I don't want to stay aside and forget all that pain and the suffering and become deaf to the women that today come into our Forum.
I want to take more action and really make a difference.

It's since 2010 that I am in this challenge.
 I was able to heal myself, but there's so much to do to help us heal altogether.

This is what I believe in: cooperation!

So I ask your help, please help us achieve big big numbers!
I ask you to please support us.

cat  It only takes one sec and one click.

Here it is:

We can get much more help if we stay together and act together.

This will affect in many positive ways all of us.

 This is not meant to remain confined to Italy!

our petition goes deeper. 

We aim to achieve attention worldwide. Yes, that's what we plan.

Thank you so much for your kindness! I thank in advance in special ways the admins and creators of Vulvodynia Support for letting me post all this. Hope it will be ok! Grazie di cuore!

With all heart,

Elena (aka Aida Blanchett) I love you

Associazione VulvodiniaPuntoInfo ONLUS


Your Signature counts. Your Voice counts. It does make a difference!

Let Your Voice be HEARD!

Aida Blanchett

Posts : 6
Join date : 2012-02-22
Age : 41
Location : Rome

View user profile http://www.vulvodiniapuntoinfo.com/

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