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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 1

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 8

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35


Vulvodynia Petition from Associazione VulvodiniaPuntoInfo ONLUS • Rome, Italy

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Vulvodynia Petition from Associazione VulvodiniaPuntoInfo ONLUS • Rome, Italy

Post  Aida Blanchett on Tue Jul 07, 2015 5:18 am

Hi girls,

it's a long time since I wrote last time in here.

I just want you to know VulvodiniaPuntoInfo became a charity association last year!

Some of you perhaps remember my story and the foundation of the first italian Forum for women suffering from V.
Well,

my dreams all came true. The association is the first & unique in Italy as non profit special charity organization, and the best of the news is that we the founder are two women healed from v!

We want to spread a message of hope for all!  I love you You can heal.

In our forum, the success stories are increasing year after year. And we are online only since 2010, only 5 years!
Many, many women, once healed, as you probably know, they don't write anymore, so the healings are much more than the written stories...

 I hope this will help you believe and have much more confidence in your presonal & unique  process of healing



Today, I have come back in here because I need your help.
Yes.
We really need your help ladies!  Like a Star @ heaven

We have created a special online Petition. It's called "#UnaFirmaPerLaVulvodinia" = a Signature for Vulvodynia

In Italy V. is not yet recognized by italian NIH.

We have created this petition composing a special text in order to gain much more attention from the Italian Government, but beyond all of this, our Petition goes deeper. 

We aim to achieve attention worldwide. Yes, that's what we plan.

You know, even if I am now healed, I cannot forget all the pain, not only my years devasted but also all the women I have met in these years of volunteering.

 I cannot forget.
I cannot.
I don't want to!

I don't want any more to read stories like that of Yvonne Wallis. I don't want to.

I cannot forget and I want to change things.


And more, it could be our daughter, our mother, our friend... 

I don't want to stay aside and forget all that pain and the suffering and become deaf to the women that today come into our Forum.
I want to take more action and really make a difference.

It's since 2010 that I am in this challenge.
 I was able to heal myself, but there's so much to do to help us heal altogether.

This is what I believe in: cooperation!

So I ask your help, please help us achieve big big numbers!
I ask you to please support us.

cat  It only takes one sec and one click.




Here it is:





We can get much more help if we stay together and act together.



This will affect in many positive ways all of us.

 This is not meant to remain confined to Italy!

our petition goes deeper. 


We aim to achieve attention worldwide. Yes, that's what we plan.

Thank you so much for your kindness! I thank in advance in special ways the admins and creators of Vulvodynia Support for letting me post all this. Hope it will be ok! Grazie di cuore!



With all heart,

Elena (aka Aida Blanchett) I love you

Associazione VulvodiniaPuntoInfo ONLUS
VulvodiniaPuntoInfo.com

#NoiCiCrediAmo
#WeBelieveVulvodynia(canbehealed)



Your Signature counts. Your Voice counts. It does make a difference!


Let Your Voice be HEARD!






avatar
Aida Blanchett

Posts : 6
Join date : 2012-02-22
Age : 40
Location : Rome

View user profile http://www.vulvodiniapuntoinfo.com/

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