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Gabapentin Gel. or other topical creams
Thu May 10, 2018 9:43 am by Rosie21
Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.
Comments: 2
Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?
Sat Aug 01, 2015 4:17 pm by Fielder
Hi everyone,
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
Comments: 11
An absolute success story- please read!
Fri Mar 08, 2019 10:57 pm by Persevere1990
Dear All,
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
Comments: 0
I'm sorry im rambling
Thu Feb 21, 2019 5:49 am by Jet227
hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …
Comments: 1
New member need advice please
Thu Feb 28, 2019 11:33 pm by PANDORA123
Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.
Thanks
Thanks
Comments: 5
MonaLisa Touch
Fri Feb 08, 2019 7:35 pm by rl2091
Hi All,
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
Comments: 3
Diagnosed Recently
Tue Jan 08, 2019 3:55 pm by flissyg
Hi All,
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
Comments: 4
New and need advice and help
Wed Dec 05, 2018 3:26 pm by Cin124
Hi everyone,
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
Comments: 6
New here would very much appreciate advice at the end of my rope
Wed Jan 09, 2019 9:09 pm by Jma990o
This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
Comments: 3
Vulvodynia Petition from Associazione VulvodiniaPuntoInfo ONLUS • Rome, Italy
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Vulvodynia Petition from Associazione VulvodiniaPuntoInfo ONLUS • Rome, Italy
Hi girls,
it's a long time since I wrote last time in here.
I just want you to know VulvodiniaPuntoInfo became a charity association last year!
Some of you perhaps remember my story and the foundation of the first italian Forum for women suffering from V.
Well,
my dreams all came true. The association is the first & unique in Italy as non profit special charity organization, and the best of the news is that we the founder are two women healed from v!
We want to spread a message of hope for all! You can heal.
In our forum, the success stories are increasing year after year. And we are online only since 2010, only 5 years!
Many, many women, once healed, as you probably know, they don't write anymore, so the healings are much more than the written stories...
I hope this will help you believe and have much more confidence in your presonal & unique process of healing.
Today, I have come back in here because I need your help.
Yes.
We really need your help ladies!
We have created a special online Petition. It's called "#UnaFirmaPerLaVulvodinia" = a Signature for Vulvodynia
In Italy V. is not yet recognized by italian NIH.
We have created this petition composing a special text in order to gain much more attention from the Italian Government, but beyond all of this, our Petition goes deeper.
We aim to achieve attention worldwide. Yes, that's what we plan.
You know, even if I am now healed, I cannot forget all the pain, not only my years devasted but also all the women I have met in these years of volunteering.
I cannot forget.
I cannot.
I don't want to!
I don't want any more to read stories like that of Yvonne Wallis. I don't want to.
I cannot forget and I want to change things.
And more, it could be our daughter, our mother, our friend...
I don't want to stay aside and forget all that pain and the suffering and become deaf to the women that today come into our Forum.
I want to take more action and really make a difference.
It's since 2010 that I am in this challenge.
I was able to heal myself, but there's so much to do to help us heal altogether.
This is what I believe in: cooperation!
So I ask your help, please help us achieve big big numbers!
I ask you to please support us.
It only takes one sec and one click.
Here it is:
We can get much more help if we stay together and act together.
This will affect in many positive ways all of us.
This is not meant to remain confined to Italy!
our petition goes deeper.
We aim to achieve attention worldwide. Yes, that's what we plan.
We aim to achieve attention worldwide. Yes, that's what we plan.
Thank you so much for your kindness! I thank in advance in special ways the admins and creators of Vulvodynia Support for letting me post all this. Hope it will be ok! Grazie di cuore!
With all heart,
Elena (aka Aida Blanchett)
Associazione VulvodiniaPuntoInfo ONLUS
VulvodiniaPuntoInfo.com
#NoiCiCrediAmo
#WeBelieveVulvodynia(canbehealed)
Your Signature counts. Your Voice counts. It does make a difference!
Let Your Voice be HEARD!
Similar topics
» Hi from Rome
» UK Petition to include 'PELVIC PAIN' in the UK university curriculum for ALL medical students
» Vulvodynia?
» UK Petition to include 'PELVIC PAIN' in the UK university curriculum for ALL medical students
» Vulvodynia?
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Fri Oct 23, 2020 12:04 am by ringostarr26
» Please tell me this can get better
Sat Jul 18, 2020 7:38 pm by sammykramer
» By no means cured, but doing much better!
Mon Mar 16, 2020 1:26 pm by tinkerbelle2
» How I cured my Vulvodynia!
Sat Dec 07, 2019 11:54 am by Millie
» 7 months since the diagnosis
Wed Aug 14, 2019 2:38 am by agtoronto
» Gabapentin Gel. or other topical creams
Sat Jun 15, 2019 5:22 pm by mary jane
» IMPORTANT FOR UK SUFFERERS
Sat Jun 15, 2019 5:21 pm by mary jane
» Help New Diagnosis
Sat Jun 15, 2019 5:07 pm by mary jane
» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Tue Jun 11, 2019 12:56 am by VVSSufferer