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Gabapentin Gel. or other topical creams
Thu May 10, 2018 9:43 am by Rosie21
Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.
Comments: 2
Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?
Sat Aug 01, 2015 4:17 pm by Fielder
Hi everyone,
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
Comments: 11
An absolute success story- please read!
Fri Mar 08, 2019 10:57 pm by Persevere1990
Dear All,
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
Comments: 0
I'm sorry im rambling
Thu Feb 21, 2019 5:49 am by Jet227
hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …
Comments: 1
New member need advice please
Thu Feb 28, 2019 11:33 pm by PANDORA123
Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.
Thanks
Thanks
Comments: 5
MonaLisa Touch
Fri Feb 08, 2019 7:35 pm by rl2091
Hi All,
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
Comments: 3
Diagnosed Recently
Tue Jan 08, 2019 3:55 pm by flissyg
Hi All,
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
Comments: 4
New and need advice and help
Wed Dec 05, 2018 3:26 pm by Cin124
Hi everyone,
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
Comments: 6
New here would very much appreciate advice at the end of my rope
Wed Jan 09, 2019 9:09 pm by Jma990o
This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
Comments: 3
How did you find this forum?
+19
lotsofluvallred
mrs.optimistic
sammykramer
nanmark3
mary jane
fking
Jenn89
Sabrinalaura
Tinabeauxbina
sadone
Aceladi
riv
Sassymel
itchyandscratchy
jules
key_lime_teddy
Sarah001
naomi
Sebby (Admin)
23 posters
Page 1 of 2
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How did you find this forum?
How did you find this forum?
Please state which search engine, forum or directory you found this forum on...fanx!
Last edited by Sebby (Admin) on Wed Mar 02, 2011 10:27 pm; edited 1 time in total
Re: How did you find this forum?
I put 'other womans forum' but im not sure as I saw Sebbys link on the Daily Mail online on the health section. I hope thats right?
naomi- Moderator
- Posts : 262
Join date : 2010-04-09
Location : Cheltenham
Re: How did you find this forum?
Google for me Sebby and I see you've got to grips with the scrolling text function!!
Sarah001- Posts : 1164
Join date : 2010-06-11
Age : 50
Location : UK
Re: How did you find this forum?
I know! Im dead impressed with this site Sebby! You should pat yourself on the back!!
naomi- Moderator
- Posts : 262
Join date : 2010-04-09
Location : Cheltenham
Re: How did you find this forum?
awww fanx guys lol.... I had the scrolling text whizzing by at one point..like far to fast for anyone to read! hahaa
Yes Naomi you got it right, I fink I had posted it in the womens health section?
Re: How did you find this forum?
Google... I just google the word online support groups for vulvodynia... and here I am.. But if you google the opposite way, then you will not find this site..
key_lime_teddy- Posts : 7
Join date : 2010-10-07
Age : 50
Re: How did you find this forum?
Thanks and welcome key_lime_teddy
I have tried to put as many link words a I can think of for search engines..I would probably have to pay for anything more specific..
I will take another look though and see If I can make it more specific without paying lol
Re: How did you find this forum?
Hmmmm it seems the search engine is doing an ok job lol that why I see the Google bot hanging around ere! lol
Re: How did you find this forum?
it's been awhile. i remember doing a Google search. i looked up vulvodynia support groups
jules- Posts : 225
Join date : 2010-03-17
Re: How did you find this forum?
Got to grips with the whole bloody meta tags thing a little confusing lol but am deff getting more hits so its working great on Google
Re: How did you find this forum?
Googled "vulvodynia forum".
itchyandscratchy- Posts : 36
Join date : 2011-04-11
Age : 34
Location : UK
Re: How did you find this forum?
I was googling looking for anything about vulvadynia and tampon use...and suddenly came accross this as there was a post about tampons hehe!
Sassymel- Posts : 8
Join date : 2011-05-07
Age : 38
Location : New Zealand
Re: How did you find this forum?
I searched vulva pain forum uk on google
glad I did! got diagnosed today and very happy to find other people to speak to about it
glad I did! got diagnosed today and very happy to find other people to speak to about it
riv- Posts : 10
Join date : 2011-10-27
Search Engine Reply
I belonged to this site years ago and check every once in awhile but couldn't sign in as a member so signed up again... with remembering the website name.
Aceladi- Posts : 8
Join date : 2011-10-30
Age : 81
Location : Arizona
Finding this website
Sebby (Admin) wrote:Please state which search engine, forum or directory you found this forum on...fanx!
I'm pretty sure I found this forum through Google. It has been about 8 years at least. Not sure if this is the original but seems to be pretty much the same. I had some trouble navigating it at the time but did read much of the content that pertained to my situation... Millie
Aceladi- Posts : 8
Join date : 2011-10-30
Age : 81
Location : Arizona
Where I found you...
I found this forum listed on a Wikipedia article on Vulvodynia and I used Google to get to Wikipedia.Sebby (Admin) wrote:Please state which search engine, forum or directory you found this forum on...fanx!
Tinabeauxbina- Posts : 6
Join date : 2012-01-25
Location : Indianapolis, IN (USA)
I began typing in Vulvodynia support... and vulvodynia support forum came up, and this was at the top of the search results!
Jenn89- Posts : 16
Join date : 2013-08-19
Age : 34
Location : Mass
New member
I found this forum from goggle. I have been suffering from vulvadynia in awful pain until i was diagnoised a few months ago. I wanted to speak to other people who suffer from this.
fking- Posts : 1
Join date : 2013-09-14
Re: How did you find this forum?
I googled "persistent vulvar pain", although the first result was pudendal neuralgia
mary jane- Posts : 345
Join date : 2013-10-05
Location : UK
Re: How did you find this forum?
Today I googled "Vulvodynia support groups" I like what I see, thank you for all of your hard work!
nanmark3- Posts : 6
Join date : 2014-03-24
Sebby (Admin) wrote:Please state which search engine, forum or directory you found this forum on...fanx!
sammykramer- Posts : 3
Join date : 2014-07-04
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Similar topics
» Happy to find support
» New member... so glad to find others like me!!
» so happy to find you guys!!
» New member... so glad to find others like me!!
» so happy to find you guys!!
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Fri Oct 23, 2020 12:04 am by ringostarr26
» Please tell me this can get better
Sat Jul 18, 2020 7:38 pm by sammykramer
» By no means cured, but doing much better!
Mon Mar 16, 2020 1:26 pm by tinkerbelle2
» How I cured my Vulvodynia!
Sat Dec 07, 2019 11:54 am by Millie
» 7 months since the diagnosis
Wed Aug 14, 2019 2:38 am by agtoronto
» Gabapentin Gel. or other topical creams
Sat Jun 15, 2019 5:22 pm by mary jane
» IMPORTANT FOR UK SUFFERERS
Sat Jun 15, 2019 5:21 pm by mary jane
» Help New Diagnosis
Sat Jun 15, 2019 5:07 pm by mary jane
» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Tue Jun 11, 2019 12:56 am by VVSSufferer