Vulvodynia Support
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» Hope to all my suffering ladies
They just don't understand EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
They just don't understand EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
They just don't understand EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
They just don't understand EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
They just don't understand EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
They just don't understand EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
They just don't understand EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
They just don't understand EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
They just don't understand EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


They just don't understand

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They just don't understand Empty They just don't understand

Post  Luv_on09 Sat Aug 22, 2015 10:49 pm

I have an awesome boyfriend who is the only person I have ever been with who can make me feel pleasure. He tries to find ways to touch me so that it doesn't hurt and I can enjoy intimacy. I am so appreciative of that. But what he doesn't understand is why I break down in tears every time I have to tell him no or stop in the middle of trying to have intercourse because of the pain. The tears have nothing to do with the pain, they are solely tied to my guilt and embarrassment that I can't be normal. It frustrates him because he doesn't think that the bedroom should be a place of sadness or anger... But I can't help it. I can't help but feel like I'm damaged and less of a woman because I can't do the basic things that I should be able to. He doesn't understand that the mental pain of this can be just as bad as the physical. He doesn't understand that just because it doesn't bother him, doesn't mean that it doesn't bother me. I hate that I can't satisfy him. I hate that most nights we just go to sleep. I'm 24 years old...this should be peak time for me and I don't ever want to do anything. I can't even get enjoyment out of kissing because I'm anxious about where it will lead and how bad it will hurt. I am so happy that he is understanding about not being able to have sex. I just wish he would understand that sometimes I need to cry about it and feel like awful and I just need him to tell me it's okay.

Luv_on09

Posts : 1
Join date : 2015-08-22

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They just don't understand Empty Re: They just don't understand

Post  PainBlogger Mon Aug 24, 2015 9:12 am

Yeah, I think the emotional damage that this condition does is far worse than the actual physical pain Sad I don't know what I advice I can offer except try to keep the lines of communication open and maybe (if you are not already) try to talk about it with him outside of the bedroom environment i.e. not in the 'heat of the moment'. Would your doctor maybe be able to refer you for some kind of counselling/psychotherapy where you could talk about the psychological side of things with a professional?

PainBlogger

Posts : 219
Join date : 2015-07-27

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