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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 1

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 1

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

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Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist

after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

Comments: 9

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 12

Can A Cut In Vestibule cause Vulvodynia?

Thu Mar 01, 2018 1:07 am by rockylife

Can a cut in the vestibule area cause vulvodynia? Is it possible that some nerve a were damaged that’s why I feel this pain in my area without visible lesions?

Comments: 0

They just don't understand

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They just don't understand

Post  Luv_on09 on Sat Aug 22, 2015 10:49 pm

I have an awesome boyfriend who is the only person I have ever been with who can make me feel pleasure. He tries to find ways to touch me so that it doesn't hurt and I can enjoy intimacy. I am so appreciative of that. But what he doesn't understand is why I break down in tears every time I have to tell him no or stop in the middle of trying to have intercourse because of the pain. The tears have nothing to do with the pain, they are solely tied to my guilt and embarrassment that I can't be normal. It frustrates him because he doesn't think that the bedroom should be a place of sadness or anger... But I can't help it. I can't help but feel like I'm damaged and less of a woman because I can't do the basic things that I should be able to. He doesn't understand that the mental pain of this can be just as bad as the physical. He doesn't understand that just because it doesn't bother him, doesn't mean that it doesn't bother me. I hate that I can't satisfy him. I hate that most nights we just go to sleep. I'm 24 years old...this should be peak time for me and I don't ever want to do anything. I can't even get enjoyment out of kissing because I'm anxious about where it will lead and how bad it will hurt. I am so happy that he is understanding about not being able to have sex. I just wish he would understand that sometimes I need to cry about it and feel like awful and I just need him to tell me it's okay.


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Re: They just don't understand

Post  PainBlogger on Mon Aug 24, 2015 9:12 am

Yeah, I think the emotional damage that this condition does is far worse than the actual physical pain Sad I don't know what I advice I can offer except try to keep the lines of communication open and maybe (if you are not already) try to talk about it with him outside of the bedroom environment i.e. not in the 'heat of the moment'. Would your doctor maybe be able to refer you for some kind of counselling/psychotherapy where you could talk about the psychological side of things with a professional?


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