Log in
Similar topics
Latest topics
Gabapentin Gel. or other topical creams
Thu May 10, 2018 9:43 am by Rosie21
Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.
Comments: 2
Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?
Sat Aug 01, 2015 4:17 pm by Fielder
Hi everyone,
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
Comments: 11
An absolute success story- please read!
Fri Mar 08, 2019 10:57 pm by Persevere1990
Dear All,
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
Comments: 0
I'm sorry im rambling
Thu Feb 21, 2019 5:49 am by Jet227
hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …
Comments: 1
New member need advice please
Thu Feb 28, 2019 11:33 pm by PANDORA123
Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.
Thanks
Thanks
Comments: 5
MonaLisa Touch
Fri Feb 08, 2019 7:35 pm by rl2091
Hi All,
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
Comments: 3
Diagnosed Recently
Tue Jan 08, 2019 3:55 pm by flissyg
Hi All,
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
Comments: 4
New and need advice and help
Wed Dec 05, 2018 3:26 pm by Cin124
Hi everyone,
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
Comments: 6
New here would very much appreciate advice at the end of my rope
Wed Jan 09, 2019 9:09 pm by Jma990o
This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
Comments: 3
Trying to understand:)
Page 1 of 1
Trying to understand:)
Hello everyone, I have so many questions which I'm trying to understand myself from my own experience but hopefully some of you guys can help me understand better:)
My pain started when my boyfriend and I were having dry sex. (I was still in my underwear) I remember the burning and knifelike pain but I couldn't make any sense. After that moment, I was never able to sit down. My pain was constant and I remember the burning being soooo severe. Later on, I was diagnosed with localized, provoked vulvodynia.
1) I would sit down and after that the pain wouldn't go away. It was like a cycle, it was provoked and it would hurt for hours and then I would sit again and so on and on. Can localized pain can hurt all the time right after the minute you sit down?
Later,
I had vestibulectomy but one part of the pain didn't go away. After 3 months I had and MR neurography done. (for the pudendal nerve) My pain has always been on the left side. And according to the report, my left pudendal nerve is thicker than the right one.
So after months, I figured my main burning was due to an abscess (bartholin gland) I had the bartholin gland removal surgery and now my pain isn't as bad as before. Which brings me to my second question,
2)Can a huge(size of a table tennis ball) bartholin abscess could have caused that report to turn out the way it was? Doctors told me that this report doesn't determine anything. It just shows that the pudendal nerve is problematic.
3) (I've never had sex, penetration, and that day with my ex I remember not wanting to) Can one stressful event cause pelvic muscles spasm and damage the pudendal nerve which can cause VVS?
But my burning had always been in my entire vestibule. After vestibulectomy, my doctor told me that I had way too many mast cells. Btw, I had no pudendal neuralgia symptoms other than pain with sitting. (I still can't sit very well but I'd like to believe its because of the recent bartholin surgery)
Now looking back, I'm trying to find what started all this. The burning pain started that day with my ex and it became worse each day until I wasn't able to even walk. But the first month it was more like a mild mild aching pain. Then it became so severe. Could I have tightened the pelvic floor muscles not wanting to go any further and damaged the nerves? What I don't understand is, I remember the left side being super super severe and the right side was way better than the left one.
I think I was born with too many nerve endings and triggered it that day. I still have burning but not constant. I think I have scar tissue on the right side too and it burns crazy.
I know how long this is, but I can't believe that one stressful event can damage the nerves.
My pain started when my boyfriend and I were having dry sex. (I was still in my underwear) I remember the burning and knifelike pain but I couldn't make any sense. After that moment, I was never able to sit down. My pain was constant and I remember the burning being soooo severe. Later on, I was diagnosed with localized, provoked vulvodynia.
1) I would sit down and after that the pain wouldn't go away. It was like a cycle, it was provoked and it would hurt for hours and then I would sit again and so on and on. Can localized pain can hurt all the time right after the minute you sit down?
Later,
I had vestibulectomy but one part of the pain didn't go away. After 3 months I had and MR neurography done. (for the pudendal nerve) My pain has always been on the left side. And according to the report, my left pudendal nerve is thicker than the right one.
So after months, I figured my main burning was due to an abscess (bartholin gland) I had the bartholin gland removal surgery and now my pain isn't as bad as before. Which brings me to my second question,
2)Can a huge(size of a table tennis ball) bartholin abscess could have caused that report to turn out the way it was? Doctors told me that this report doesn't determine anything. It just shows that the pudendal nerve is problematic.
3) (I've never had sex, penetration, and that day with my ex I remember not wanting to) Can one stressful event cause pelvic muscles spasm and damage the pudendal nerve which can cause VVS?
But my burning had always been in my entire vestibule. After vestibulectomy, my doctor told me that I had way too many mast cells. Btw, I had no pudendal neuralgia symptoms other than pain with sitting. (I still can't sit very well but I'd like to believe its because of the recent bartholin surgery)
Now looking back, I'm trying to find what started all this. The burning pain started that day with my ex and it became worse each day until I wasn't able to even walk. But the first month it was more like a mild mild aching pain. Then it became so severe. Could I have tightened the pelvic floor muscles not wanting to go any further and damaged the nerves? What I don't understand is, I remember the left side being super super severe and the right side was way better than the left one.
I think I was born with too many nerve endings and triggered it that day. I still have burning but not constant. I think I have scar tissue on the right side too and it burns crazy.
I know how long this is, but I can't believe that one stressful event can damage the nerves.
senozs1- Posts : 22
Join date : 2015-10-06
Page 1 of 1
Permissions in this forum:
You cannot reply to topics in this forum
|
|
Fri Oct 23, 2020 12:04 am by ringostarr26
» Please tell me this can get better
Sat Jul 18, 2020 7:38 pm by sammykramer
» By no means cured, but doing much better!
Mon Mar 16, 2020 1:26 pm by tinkerbelle2
» How I cured my Vulvodynia!
Sat Dec 07, 2019 11:54 am by Millie
» 7 months since the diagnosis
Wed Aug 14, 2019 2:38 am by agtoronto
» Gabapentin Gel. or other topical creams
Sat Jun 15, 2019 5:22 pm by mary jane
» IMPORTANT FOR UK SUFFERERS
Sat Jun 15, 2019 5:21 pm by mary jane
» Help New Diagnosis
Sat Jun 15, 2019 5:07 pm by mary jane
» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Tue Jun 11, 2019 12:56 am by VVSSufferer