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» Dating with Vulvodynia and Vaginismus advice
Sun Mar 17, 2019 4:46 pm by Lemonade_lemons

» Lyrica has been classed as a Class C drug in UK
Mon Mar 11, 2019 9:20 pm by mary jane

» Long Time No Talk... What's been going on with my V pain the past few years...
Mon Mar 11, 2019 9:15 pm by mary jane

» An absolute success story- please read!
Fri Mar 08, 2019 10:57 pm by Persevere1990

» I'm sorry im rambling
Fri Mar 08, 2019 7:34 pm by scrumptuous

» New member need advice please
Fri Mar 08, 2019 7:11 pm by scrumptuous

» MonaLisa Touch
Fri Mar 08, 2019 4:46 pm by rl2091

» Diagnosed Recently
Thu Feb 14, 2019 6:35 pm by davesjen

» New and need advice and help
Wed Feb 13, 2019 12:42 pm by feeling desperate

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3

New member desperate need of other vulvadynia sufferers

Fri Feb 08, 2019 6:55 pm by Tfc13

Hi there hope some1 reading this is going through the same shit as me!, I'm new to this so don't really know where to start , I'm Teresa , I've just been diagnosed with vestibular vulvadynia , after countless appointments with GPS being misdiagnosed, tested for god knows everything , eventually under my gynochologist ,who done all her necessary tests, I now have been given a diagnosis I'm in …

Comments: 5

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 7


Husband Doesn't Understand

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Husband Doesn't Understand

Post  Stayathomemom7899 on Sat Dec 06, 2014 12:24 am

For a year now my husband has been in denial that I have vulvodynia despite extensive doctors appointments and intercourse ending in tears. He is so ignorant and won't even research it and still thinks its an STD and says I just need to go to the doctor and be done with it and I have been on meds for months with no relief. He tries to have sex about once a day and it is so hard on me because it is so much pressure and when I say no I get treated like crap. He expects me to have sex on top of satisfying him other ways if I'm in too much pain. I fear he is so ignorant that he will end up leaving me and there is nothing I can do, I just want my kids to have a stable home. Sorry for my rant. It's hard enough I have this intense pain without the added pressure and fear of being alone.

Stayathomemom7899

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...

Post  lavrose on Sat Dec 06, 2014 2:42 am

Ill be honest with you, it prolly wont get any better. It will just get worse and more abusive, and you feel more and more seperated from eachother. Ive personally given up on men and sex with this condition.

Even when it looked like I was getting better, it changed and set the tone of our sex life, and some kind of weird psychological block or wall arose between us that we could never get over.

Men are cheating pervs anyway that are never satisfied, even when your normal.

fergitaboutit..
lavrose
lavrose

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idk

Post  sadone on Sun Dec 07, 2014 1:24 pm

hi stayathomemom,

your husband is being awful. extremely stupid and terrible. I have never been involved with a man like that. Something is seriously wrong with him. I know you feel terrible.
Beyond terrible.

My bf was understanding for a long time.- 4 years. Now he has it in his mind that he either has to have vaginal or anal. And it's for this reason he's leaving me.

I don't know what to say. I know there are understanding men out there- women on this site who have met them and gotten married.

Your husband and guys like that make me so angry. they act like we committed a crime.

lavrose- have you really given up on men?

I just don't know if I can. I am so lonely without him. I have a few friends. I have no children. I can't have children.

I am very depressed. I thought he was the one- he was so sweet and understanding for so long.

I would kill myself if I had the courage.

I know this is not helpful. I just want to say that I feel your pain. And I wish there was some kind of punishment for men like your husband.

It is so unfair and wrong. When they feel entitled to our bodies like we are things with holes for their gratification.

I hope more people respond. This board seems quiet and some of us are very desparate.

sadone

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Re: Husband Doesn't Understand

Post  Sparkle on Mon Dec 08, 2014 8:38 pm

He's a pig, plain and simple. I'm sorry of that sounds harsh, I know he's your husband and U love him but the way he is treating u isn't the way u treat somone U love. He puts pressure on u to have sex wen u in pain and shouts at u if u won't cos u in pain... He should be supporting u and a relationship is about more then sex. I know it's a part of a relationship but it's not everything. One time wen my pain was bad I was unable to have sex with my bf for 2 months and not once did that man moan or make me feel bad becos of it. He made it so easy on me and your husband should be acting the same way.

In so sorry to hear u are going through this on a daily basis as well as having to deal with V. It must be so draining on u to have the pressure of your husband aswell. Have u taken him to our doctors appointments? Maybe that might help him understand?
If he came in Ther with u?
My thoughts are maybe he isn't believing in V bcos of he does then his sexual behaviour Wud need to change. And he would need to be suportive and less of a sex pest.

Thers are so many men out Ther that woulnt act this way with u... Maybe u need to sit down and talk with him proparly wen he is in a good mood. Have a chat and explain how he makes u feel and how v makes u feel. I think if he understood a bit more u wud be more inclined to want to please him in other ways. Maybe u should tell him that too..Don't be scared he will Leave u, if he does then he isn't worth your time my love x

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Re: Husband Doesn't Understand

Post  Mariek on Mon Mar 09, 2015 11:41 pm

Sorry to hear your husband is such a controlling ass! It's hard enough dealing with this without having him to deal with too. I hope you can work it out. Couples counseling has helped us in the past and with this new condition we might go back. So far (it's only been 5 days) since confirmed he's been supportive. We have been married 34 years and I am almost 59, he is 60. Feel really bad for all others out there. Please try to stay positive. We are worthy of love and compassion.

Mariek

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Re: Husband Doesn't Understand

Post  mrs.optimistic on Thu May 14, 2015 5:43 pm

I read your post and HAD to respond. It frightens me knowing that women are left because of this condition. Their husbands can't handle it, so they give up. Let me say this- me and my husband have two kids together and we've been together now for 5 years. I've had vulvodynia (undiagnosed until now) for 4 years. He is extremely supportive of my condition. He is so gentle and caring,, he truly loves me unconditionally. When I feel like i want to give up, he comforts me and helps me stay positive. I don't know if I will ever overcome vulvar vestibulitis, but I know my husband will stand by me for as long as he can. I won't give up, neither should you. Love yourself and be loved. Do not let this man treat you the way he is, its emotional abuse. I can't believe you're still married. Leave this guy and find someone who loves you for you. Sex is important, but you can still have a spiritual connection with someone without great sex all the time. There is great men out there, don't waste your life away with this guy!

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you're not alone

Post  ilseke on Mon Aug 03, 2015 4:22 pm

V is a concept men don't seem to get...i'm so sorry for you. Know it all too well...

ilseke

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Re: Husband Doesn't Understand

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