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» Looking to meet up in LA/OC CA
Yesterday at 3:43 am by crypticcalico

» Vulvadynia
Mon Jul 24, 2017 11:35 pm by Linda Williams

» Just Diagnosed with Vulvadynia
Mon Jul 24, 2017 1:57 am by angelique2016

» Constant pain, I want to die.
Sat Jul 22, 2017 9:41 pm by Meggiemay

» What is Vulvodynia?
Sat Jul 22, 2017 9:21 pm by mary jane

» Will I ever be able to wear jeans?
Wed Jul 19, 2017 11:02 pm by jungleclover

» Looking for a friend IRL; LA/OC
Wed Jul 19, 2017 10:58 pm by jungleclover

» Anyone else get this from yeast infections? (new member)
Wed Jul 19, 2017 10:37 pm by jungleclover

» Owner of vulvodyniSuppoet.com
Wed Jul 19, 2017 10:28 pm by LaurenVV

Vulvadynia

Fri Jul 21, 2017 11:53 pm by Linda Williams

I am 68 years old and a year ago was diagnosed with vestibulitis, then vulvadynia. I have a history of chinchilla bladder infections, have had major bladder repair, hysterectomy, mid 30's, an auto immune disease. I take a daily antibiotic to keep UTI's at bay. My doctor has done the Quip test which was uncomfortable but did not test anything. I use Premarin vaginal cream 2 times a week. These …

Comments: 4

Just Diagnosed with Vulvadynia

Tue Aug 02, 2016 9:11 pm by CherryTree23

Well, I was just diagnosed today, yay...my symptoms are just burning pain in vaginal opening. This all came about after taking Bactrim, Monistat, Clindomycin and Diflucan. This doctor was extremely confident I have Vulvadynia. Also told me my vaginal skin isn't red. Yes, it is, mine isn't typically electric red. He prescribed Ampytripline (sp) said, I have a very mild case, and worse case …

Comments: 7

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 21

Looking for a friend IRL; LA/OC

Tue Jul 18, 2017 2:51 am by crypticcalico

Hello!

I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.

Comments: 1

Owner of vulvodyniSuppoet.com

Wed Jul 19, 2017 10:28 pm by LaurenVV

Hi, I started vulvodyniasupport.com at the age of 28.
I was a leader when there was no help, no forums etc.

As I went on my path, I found acupuncture, herbs and time helped me recover.
Most never do.

I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.

I have moved on from the support world and found a career that allowed
Me to bring my …

Comments: 0

anyone from southern california in here?

Tue Jul 12, 2011 6:43 pm by Melissa777

Hi Im just wondering if anyone here is from so cal- USA
I am in san diego- but from LA!!!

Comments: 6

Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

Tue Jul 04, 2017 9:01 am by Tired89

Hello everyone. It's been quite a long time since I've posted. I've been extremely depressed and bottling it all up. I've been seeing a pelvic floor therapist (it's only been 4 visits) for my provoked vestibulodynia and the only reason she can get inside of me to do myofascial release and to use the dilators is because I use BLT (benzocaine, lidocaine, tetracaine) ointment on my vestibule prior …

Comments: 2

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12


Finally relief!

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Finally relief!

Post  jackie333 on Mon Jul 03, 2017 1:02 am

I truly felt that this day would never come--but I'm happy to report that I am for the most part pain free most days.

After about a year and a half of applying a compound cream with little to no help--I finally read about the benefit of medication.
I pretty much begged my doctor for a prescription and I was prescribed Lexipro.

I take one tablet once a day and I am ever so much better! I have also found that on the rare day I have a flair up---taking a dose of Alka Seltzer and lying down for about an hour helps.

I do hope you find relief as I totally understand the pain and frustration-

Jackie

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Re: Finally relief!

Post  mary jane on Tue Jul 04, 2017 8:32 am

thanks for posting! so interesting an SSRI helped you and not a tricyclic ! wow ! super!

I just wanted to tell you that since I've read you also had lower back pain and IC, it sounds like you have a very mild form of Central sensitization. I have the same issues, lower back pain, tailbone, TMJ plus IBS, but no IC (yet). My aches and pains move around a lot too!

I am starting to think some of us have CS and not vulvodynia, it just means the nervous system is sensitive and creates all the pain syndromes Smile
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Hi Mary Jane

Post  jackie333 on Tue Jul 04, 2017 1:37 pm

How interesting that you mentioned the CS-- I was thinking Fibomyalgia,- as the pain moves around.
The OB GYN I was seeing wanted to try physio and even pain management lessons but once the Lexapro started working I decided to take the easy way out.
I did try the physio one time and it triggered my lower back pain.
I have had bladder spasms  for many years and was diagnosed with IC years ago--now the Vulvodynia sometimes manifests with terrible urethral pain when I void and I found the Alka Seltzer helps tremendously....I researched and  found that there is a product called Alka Seltzer Gold that doesn't contain the aspirin----and I ordered it from Ebay--

I would love to stay in touch with you--my private email address is: jackie92646@gmail.com
If I can offer any suggestions or share ideas it would be my pleasure. Only someone who has experienced that pain, truly understands it--
Bless you-
Hugs-
Jackie

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Re: Finally relief!

Post  mary jane on Tue Jul 04, 2017 2:41 pm

Hello!

I do mindfulness now, I have some apps on my phone and can just do it anywhere, anytime. What kind of pani do you have? I have buzzing, electric shocks, everything except burning. the buzzing nerves also move around a lot, I even get buzzing nerves in my knee or foot.
I'm really busy with a new job and stress, but you can always Pm me!

I take magnesium for the CS. I have a history of anxiety and depression which may have contributed to CS.
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Hi Mary Jane

Post  jackie333 on Tue Jul 04, 2017 3:01 pm

My pain is what is known as generalized and the Dr. said that trying to avoid anything that would irritate me is what I have to do--
I wash my white cotton underwear in antibacterial soap--and then rinse in plain water after a regular wash---

The pain travels from inside to outside and varies in intensity when I have a  flare---but I haven't had the type of pain lately that knocks me off of my feet.
I too suffer from anxiety--and the Lexapro serves a duel function as it is an anti anxiety med.
Interestingly enough, my OB GYN was not the one to prescribe the Lexapro-- I called my GP and explained the problem--He prescribed it over the phone--I was thrilled when it started working. I feel as though I have my life back!

jackie333

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Re: Finally relief!

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