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New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

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Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

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Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

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Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1


Finally relief!

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Finally relief!

Post  jackie333 on Mon Jul 03, 2017 1:02 am

I truly felt that this day would never come--but I'm happy to report that I am for the most part pain free most days.

After about a year and a half of applying a compound cream with little to no help--I finally read about the benefit of medication.
I pretty much begged my doctor for a prescription and I was prescribed Lexipro.

I take one tablet once a day and I am ever so much better! I have also found that on the rare day I have a flair up---taking a dose of Alka Seltzer and lying down for about an hour helps.

I do hope you find relief as I totally understand the pain and frustration-

Jackie

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Re: Finally relief!

Post  mary jane on Tue Jul 04, 2017 8:32 am

thanks for posting! so interesting an SSRI helped you and not a tricyclic ! wow ! super!

I just wanted to tell you that since I've read you also had lower back pain and IC, it sounds like you have a very mild form of Central sensitization. I have the same issues, lower back pain, tailbone, TMJ plus IBS, but no IC (yet). My aches and pains move around a lot too!

I am starting to think some of us have CS and not vulvodynia, it just means the nervous system is sensitive and creates all the pain syndromes Smile
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Hi Mary Jane

Post  jackie333 on Tue Jul 04, 2017 1:37 pm

How interesting that you mentioned the CS-- I was thinking Fibomyalgia,- as the pain moves around.
The OB GYN I was seeing wanted to try physio and even pain management lessons but once the Lexapro started working I decided to take the easy way out.
I did try the physio one time and it triggered my lower back pain.
I have had bladder spasms  for many years and was diagnosed with IC years ago--now the Vulvodynia sometimes manifests with terrible urethral pain when I void and I found the Alka Seltzer helps tremendously....I researched and  found that there is a product called Alka Seltzer Gold that doesn't contain the aspirin----and I ordered it from Ebay--

I would love to stay in touch with you--my private email address is: jackie92646@gmail.com
If I can offer any suggestions or share ideas it would be my pleasure. Only someone who has experienced that pain, truly understands it--
Bless you-
Hugs-
Jackie

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Re: Finally relief!

Post  mary jane on Tue Jul 04, 2017 2:41 pm

Hello!

I do mindfulness now, I have some apps on my phone and can just do it anywhere, anytime. What kind of pani do you have? I have buzzing, electric shocks, everything except burning. the buzzing nerves also move around a lot, I even get buzzing nerves in my knee or foot.
I'm really busy with a new job and stress, but you can always Pm me!

I take magnesium for the CS. I have a history of anxiety and depression which may have contributed to CS.
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Hi Mary Jane

Post  jackie333 on Tue Jul 04, 2017 3:01 pm

My pain is what is known as generalized and the Dr. said that trying to avoid anything that would irritate me is what I have to do--
I wash my white cotton underwear in antibacterial soap--and then rinse in plain water after a regular wash---

The pain travels from inside to outside and varies in intensity when I have a  flare---but I haven't had the type of pain lately that knocks me off of my feet.
I too suffer from anxiety--and the Lexapro serves a duel function as it is an anti anxiety med.
Interestingly enough, my OB GYN was not the one to prescribe the Lexapro-- I called my GP and explained the problem--He prescribed it over the phone--I was thrilled when it started working. I feel as though I have my life back!

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Re: Finally relief!

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