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New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

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Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

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Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 4

6 year sufferer but I’ve found some hope

Wed Oct 10, 2018 1:33 am by Npage14

Hey, ladies! I’m new to this support group, I’ve thought about doing something like this for a while so I wanted to try this out! I’ve had vulvodynia for 6 years now, I am self diagnosed. I’m 20 now and the pain started when I had my first encounter with sexual contact when I was 14(I still remained a virgin though it was fingering). For a couple years the pain was so bad I could hardly …

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Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

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Finally relief!

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Finally relief!

Post  jackie333 on Mon Jul 03, 2017 1:02 am

I truly felt that this day would never come--but I'm happy to report that I am for the most part pain free most days.

After about a year and a half of applying a compound cream with little to no help--I finally read about the benefit of medication.
I pretty much begged my doctor for a prescription and I was prescribed Lexipro.

I take one tablet once a day and I am ever so much better! I have also found that on the rare day I have a flair up---taking a dose of Alka Seltzer and lying down for about an hour helps.

I do hope you find relief as I totally understand the pain and frustration-

Jackie

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Re: Finally relief!

Post  mary jane on Tue Jul 04, 2017 8:32 am

thanks for posting! so interesting an SSRI helped you and not a tricyclic ! wow ! super!

I just wanted to tell you that since I've read you also had lower back pain and IC, it sounds like you have a very mild form of Central sensitization. I have the same issues, lower back pain, tailbone, TMJ plus IBS, but no IC (yet). My aches and pains move around a lot too!

I am starting to think some of us have CS and not vulvodynia, it just means the nervous system is sensitive and creates all the pain syndromes Smile
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Hi Mary Jane

Post  jackie333 on Tue Jul 04, 2017 1:37 pm

How interesting that you mentioned the CS-- I was thinking Fibomyalgia,- as the pain moves around.
The OB GYN I was seeing wanted to try physio and even pain management lessons but once the Lexapro started working I decided to take the easy way out.
I did try the physio one time and it triggered my lower back pain.
I have had bladder spasms  for many years and was diagnosed with IC years ago--now the Vulvodynia sometimes manifests with terrible urethral pain when I void and I found the Alka Seltzer helps tremendously....I researched and  found that there is a product called Alka Seltzer Gold that doesn't contain the aspirin----and I ordered it from Ebay--

I would love to stay in touch with you--my private email address is: jackie92646@gmail.com
If I can offer any suggestions or share ideas it would be my pleasure. Only someone who has experienced that pain, truly understands it--
Bless you-
Hugs-
Jackie

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Re: Finally relief!

Post  mary jane on Tue Jul 04, 2017 2:41 pm

Hello!

I do mindfulness now, I have some apps on my phone and can just do it anywhere, anytime. What kind of pani do you have? I have buzzing, electric shocks, everything except burning. the buzzing nerves also move around a lot, I even get buzzing nerves in my knee or foot.
I'm really busy with a new job and stress, but you can always Pm me!

I take magnesium for the CS. I have a history of anxiety and depression which may have contributed to CS.
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Hi Mary Jane

Post  jackie333 on Tue Jul 04, 2017 3:01 pm

My pain is what is known as generalized and the Dr. said that trying to avoid anything that would irritate me is what I have to do--
I wash my white cotton underwear in antibacterial soap--and then rinse in plain water after a regular wash---

The pain travels from inside to outside and varies in intensity when I have a  flare---but I haven't had the type of pain lately that knocks me off of my feet.
I too suffer from anxiety--and the Lexapro serves a duel function as it is an anti anxiety med.
Interestingly enough, my OB GYN was not the one to prescribe the Lexapro-- I called my GP and explained the problem--He prescribed it over the phone--I was thrilled when it started working. I feel as though I have my life back!

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Re: Finally relief!

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