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» Acupuncture advice please
Today at 2:25 am by ryn207

» New and need some help
Today at 12:49 am by Sad

» Please tell me this can get better
Mon Feb 19, 2018 2:10 am by anon99

» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

» MAY HAVE FOUND A CURE- PLEASE READ
Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

Comments: 1

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 0

NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4


Has anyone had continued success with gabapentin or Botox injections?

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Has anyone had continued success with gabapentin or Botox injections?

Post  lcd77 on Thu Oct 12, 2017 12:55 am

I was diagnosed with vulvodynia vestibulitus approximately 9 -10 months ago but I have had it for a year. I have been taking Gabapentin and it has helped more than anything else. Also tried Botox injections but my doctor didn't give enough to tell the difference. I can tell that it is getting worse continually and I really need a doctor that knows what they are doing. Where do you find experts in this field? I live in Texas.

lcd77

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Re: Has anyone had continued success with gabapentin or Botox injections?

Post  sarisbaris on Wed Oct 18, 2017 4:44 am

I battled V for 15 years. I now consider myself cured. It wasn’t by accident. After 20+ western docs, I realized they couldn’t help. I saw countless alternative. Some helped by none cured. I followed the information from Anthony William. This is no joke. His advice cured it.

According to AW, 90% of vaginal burning cases are caused by an unknown/undetectable (with current tests) strain of strep. The other 10% is a strain of am unknown/undetectable (with current tests) strain of shingles. I had strep in the inside and shingles on the outside. How do I know I had these, if there are no tests? Well I tried his protocol and supplements for the viruses I thought I had and they worked. First I followed his advice on strep. That cured the burning inside. I also had a rash sometimes on the outside, I used lobelia which he recommends and that cured it on contact. No joke. It came back a few times but lobelia would alway fix it. Now I don’t have any flare ups of either. So I did it backwards.

First, you need to educate yourself. Go to my blog and scroll down to necessary reading section. Read/listen to the show/blog on strep, epstein barr, shingles, metal detox and even the UTI show will help. In the UTI show he explains an ice therapy that I think would calm your nerves. The EBV show that doesn’t sound related at all but if strep is present then EBV is the foundation virus opening the door and allowing all this to happen. The metals feed strep and EBV. So you’ll need to do a metal detox, so listen to that show as well.

According to Anthony William, 90% of vaginal burning cases are strep. 10% can be an unknown strain of shingles. So listen to that show as well.

Shows/pages that will help:
http://www.medicalmedium.com/blog/streptococcus-revealed
https://soundcloud.com/asha-bhuyan/medical-medium-uti?
http://www.medicalmedium.com/blog/epstein-barr-virus-revealed
http://www.medicalmedium.com/blog/heavy-metal-detox
http://www.medicalmedium.com/blog/shingles-virus

My blog: http://myvulvodyniacure.blogspot.com/2016/12/if-you-are-in-pain.html

While you are educating yourself do these things now:
AVOID: eggs, dairy, wheat, corn, aluminium foil, water that is not filtered, canola oil (which is in almost everything)
SUPPLEMENTS: licorice root, lemon balm and nettleleaf (3 cups a day), esther C, cat’s claw (if you are not planning to get pregnant), golden seal (2 times a day, 2 weeks on 2 weeks off),
A green juice would also help. Celery juice is great. Celery/cucumber/parsley or cilantro. See metal detox.
FOODS: Note all the foods he recommends. They make a difference. Daily food sample: lemon water/honey upon waking, green juice, then smoothie, salad for lunch… veggies heal.

I understand you are looking for a doctor who understand what's going on. But their tests are inadequate so they can't even detect these viruses. I spent years dealing with doctors. I live in Northern California and I have been to the best of the best in SF. At the time I was 3 months pregnant and they couldn't do a damn thing. I crushed the dreams of an internist when her supervisor told me there was nothing they could do besides give me steroids that I guessed would harm the baby. They also tried to give me prozac because they said it helps with pain. I think my doctor was lying because there is a high rate of suicides with V patients. For the obvious reasons. A few years later, they learned that prozac causes birth defects. But at this point, I already knew they couldn't help. I was just seeing the doctors to get extra time off. Anyway... I write all this because I want to save you time and agony. I cried after so many doctors appointments, I lost count. The best ones, just say there is nothing they can do and I agree and move on. Those were the best appointments.

Anyway, I am healed. Truly healed. Try this stuff above and let me know if you have any questions. Keep in touch because I'm trying to gather those who have been healed using Anthony's advice so once you are healed we can help lead other V sufferers to their own cure.





sarisbaris

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Re: Has anyone had continued success with gabapentin or Botox injections?

Post  sarisbaris on Wed Oct 18, 2017 4:47 am

Also...

Only buy the brands of supplements he recommends, he’s right. They work. No one gets $ from these recommendations. I wasted a bunch of money in the beginning. http://www.medicalmedium.com/preferred/supplements

I know his stuff pretty well. I’m not a practitioner just someone who has figured out lady part problems. Sigh. Let me know if you have any questions.

sarisbaris

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Re: Has anyone had continued success with gabapentin or Botox injections?

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