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» 7 months since the diagnosis
Thu Aug 16, 2018 9:09 am by Gaby

» Did going off antidepressants cause this?
Wed Aug 15, 2018 2:08 am by ryn207

» Sex after vulvodynia (husband edition)
Mon Aug 13, 2018 12:15 pm by emalita

» burning sensation and small cut? Maybe thrush?
Sun Aug 12, 2018 8:24 pm by emalita

» can v return after vestibulectomy?
Sun Aug 12, 2018 12:01 pm by Alana3

» Cleveland Clinic - Pain Management, Weston, FL
Sat Aug 11, 2018 12:37 pm by Alana3

» Hurting, Burning, Itching, and Worn Out
Fri Aug 10, 2018 7:55 pm by fairlight10

» GREATFULL FOR THIS WEBSITE
Thu Aug 09, 2018 8:37 pm by Nicola Jost

» Can you guys tell me your experiences with diflucan/Fluconazole?
Tue Aug 07, 2018 6:01 am by Guest

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 1

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 1

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 6

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 3

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 10

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4


Has anyone had continued success with gabapentin or Botox injections?

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Has anyone had continued success with gabapentin or Botox injections?

Post  lcd77 on Thu Oct 12, 2017 12:55 am

I was diagnosed with vulvodynia vestibulitus approximately 9 -10 months ago but I have had it for a year. I have been taking Gabapentin and it has helped more than anything else. Also tried Botox injections but my doctor didn't give enough to tell the difference. I can tell that it is getting worse continually and I really need a doctor that knows what they are doing. Where do you find experts in this field? I live in Texas.

lcd77

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Re: Has anyone had continued success with gabapentin or Botox injections?

Post  sarisbaris on Wed Oct 18, 2017 4:44 am

I battled V for 15 years. I now consider myself cured. It wasn’t by accident. After 20+ western docs, I realized they couldn’t help. I saw countless alternative. Some helped by none cured. I followed the information from Anthony William. This is no joke. His advice cured it.

According to AW, 90% of vaginal burning cases are caused by an unknown/undetectable (with current tests) strain of strep. The other 10% is a strain of am unknown/undetectable (with current tests) strain of shingles. I had strep in the inside and shingles on the outside. How do I know I had these, if there are no tests? Well I tried his protocol and supplements for the viruses I thought I had and they worked. First I followed his advice on strep. That cured the burning inside. I also had a rash sometimes on the outside, I used lobelia which he recommends and that cured it on contact. No joke. It came back a few times but lobelia would alway fix it. Now I don’t have any flare ups of either. So I did it backwards.

First, you need to educate yourself. Go to my blog and scroll down to necessary reading section. Read/listen to the show/blog on strep, epstein barr, shingles, metal detox and even the UTI show will help. In the UTI show he explains an ice therapy that I think would calm your nerves. The EBV show that doesn’t sound related at all but if strep is present then EBV is the foundation virus opening the door and allowing all this to happen. The metals feed strep and EBV. So you’ll need to do a metal detox, so listen to that show as well.

According to Anthony William, 90% of vaginal burning cases are strep. 10% can be an unknown strain of shingles. So listen to that show as well.

Shows/pages that will help:
http://www.medicalmedium.com/blog/streptococcus-revealed
https://soundcloud.com/asha-bhuyan/medical-medium-uti?
http://www.medicalmedium.com/blog/epstein-barr-virus-revealed
http://www.medicalmedium.com/blog/heavy-metal-detox
http://www.medicalmedium.com/blog/shingles-virus

My blog: http://myvulvodyniacure.blogspot.com/2016/12/if-you-are-in-pain.html

While you are educating yourself do these things now:
AVOID: eggs, dairy, wheat, corn, aluminium foil, water that is not filtered, canola oil (which is in almost everything)
SUPPLEMENTS: licorice root, lemon balm and nettleleaf (3 cups a day), esther C, cat’s claw (if you are not planning to get pregnant), golden seal (2 times a day, 2 weeks on 2 weeks off),
A green juice would also help. Celery juice is great. Celery/cucumber/parsley or cilantro. See metal detox.
FOODS: Note all the foods he recommends. They make a difference. Daily food sample: lemon water/honey upon waking, green juice, then smoothie, salad for lunch… veggies heal.

I understand you are looking for a doctor who understand what's going on. But their tests are inadequate so they can't even detect these viruses. I spent years dealing with doctors. I live in Northern California and I have been to the best of the best in SF. At the time I was 3 months pregnant and they couldn't do a damn thing. I crushed the dreams of an internist when her supervisor told me there was nothing they could do besides give me steroids that I guessed would harm the baby. They also tried to give me prozac because they said it helps with pain. I think my doctor was lying because there is a high rate of suicides with V patients. For the obvious reasons. A few years later, they learned that prozac causes birth defects. But at this point, I already knew they couldn't help. I was just seeing the doctors to get extra time off. Anyway... I write all this because I want to save you time and agony. I cried after so many doctors appointments, I lost count. The best ones, just say there is nothing they can do and I agree and move on. Those were the best appointments.

Anyway, I am healed. Truly healed. Try this stuff above and let me know if you have any questions. Keep in touch because I'm trying to gather those who have been healed using Anthony's advice so once you are healed we can help lead other V sufferers to their own cure.





sarisbaris

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Re: Has anyone had continued success with gabapentin or Botox injections?

Post  sarisbaris on Wed Oct 18, 2017 4:47 am

Also...

Only buy the brands of supplements he recommends, he’s right. They work. No one gets $ from these recommendations. I wasted a bunch of money in the beginning. http://www.medicalmedium.com/preferred/supplements

I know his stuff pretty well. I’m not a practitioner just someone who has figured out lady part problems. Sigh. Let me know if you have any questions.

sarisbaris

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Re: Has anyone had continued success with gabapentin or Botox injections?

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