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I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

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Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

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New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

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MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

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New member desperate need of other vulvadynia sufferers

Fri Feb 08, 2019 6:55 pm by Tfc13

Hi there hope some1 reading this is going through the same shit as me!, I'm new to this so don't really know where to start , I'm Teresa , I've just been diagnosed with vestibular vulvadynia , after countless appointments with GPS being misdiagnosed, tested for god knows everything , eventually under my gynochologist ,who done all her necessary tests, I now have been given a diagnosis I'm in …

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Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 7

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

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Has anyone had continued success with gabapentin or Botox injections?

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Has anyone had continued success with gabapentin or Botox injections?

Post  lcd77 on Thu Oct 12, 2017 12:55 am

I was diagnosed with vulvodynia vestibulitus approximately 9 -10 months ago but I have had it for a year. I have been taking Gabapentin and it has helped more than anything else. Also tried Botox injections but my doctor didn't give enough to tell the difference. I can tell that it is getting worse continually and I really need a doctor that knows what they are doing. Where do you find experts in this field? I live in Texas.

lcd77

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Re: Has anyone had continued success with gabapentin or Botox injections?

Post  sarisbaris on Wed Oct 18, 2017 4:44 am

I battled V for 15 years. I now consider myself cured. It wasn’t by accident. After 20+ western docs, I realized they couldn’t help. I saw countless alternative. Some helped by none cured. I followed the information from Anthony William. This is no joke. His advice cured it.

According to AW, 90% of vaginal burning cases are caused by an unknown/undetectable (with current tests) strain of strep. The other 10% is a strain of am unknown/undetectable (with current tests) strain of shingles. I had strep in the inside and shingles on the outside. How do I know I had these, if there are no tests? Well I tried his protocol and supplements for the viruses I thought I had and they worked. First I followed his advice on strep. That cured the burning inside. I also had a rash sometimes on the outside, I used lobelia which he recommends and that cured it on contact. No joke. It came back a few times but lobelia would alway fix it. Now I don’t have any flare ups of either. So I did it backwards.

First, you need to educate yourself. Go to my blog and scroll down to necessary reading section. Read/listen to the show/blog on strep, epstein barr, shingles, metal detox and even the UTI show will help. In the UTI show he explains an ice therapy that I think would calm your nerves. The EBV show that doesn’t sound related at all but if strep is present then EBV is the foundation virus opening the door and allowing all this to happen. The metals feed strep and EBV. So you’ll need to do a metal detox, so listen to that show as well.

According to Anthony William, 90% of vaginal burning cases are strep. 10% can be an unknown strain of shingles. So listen to that show as well.

Shows/pages that will help:
http://www.medicalmedium.com/blog/streptococcus-revealed
https://soundcloud.com/asha-bhuyan/medical-medium-uti?
http://www.medicalmedium.com/blog/epstein-barr-virus-revealed
http://www.medicalmedium.com/blog/heavy-metal-detox
http://www.medicalmedium.com/blog/shingles-virus

My blog: http://myvulvodyniacure.blogspot.com/2016/12/if-you-are-in-pain.html

While you are educating yourself do these things now:
AVOID: eggs, dairy, wheat, corn, aluminium foil, water that is not filtered, canola oil (which is in almost everything)
SUPPLEMENTS: licorice root, lemon balm and nettleleaf (3 cups a day), esther C, cat’s claw (if you are not planning to get pregnant), golden seal (2 times a day, 2 weeks on 2 weeks off),
A green juice would also help. Celery juice is great. Celery/cucumber/parsley or cilantro. See metal detox.
FOODS: Note all the foods he recommends. They make a difference. Daily food sample: lemon water/honey upon waking, green juice, then smoothie, salad for lunch… veggies heal.

I understand you are looking for a doctor who understand what's going on. But their tests are inadequate so they can't even detect these viruses. I spent years dealing with doctors. I live in Northern California and I have been to the best of the best in SF. At the time I was 3 months pregnant and they couldn't do a damn thing. I crushed the dreams of an internist when her supervisor told me there was nothing they could do besides give me steroids that I guessed would harm the baby. They also tried to give me prozac because they said it helps with pain. I think my doctor was lying because there is a high rate of suicides with V patients. For the obvious reasons. A few years later, they learned that prozac causes birth defects. But at this point, I already knew they couldn't help. I was just seeing the doctors to get extra time off. Anyway... I write all this because I want to save you time and agony. I cried after so many doctors appointments, I lost count. The best ones, just say there is nothing they can do and I agree and move on. Those were the best appointments.

Anyway, I am healed. Truly healed. Try this stuff above and let me know if you have any questions. Keep in touch because I'm trying to gather those who have been healed using Anthony's advice so once you are healed we can help lead other V sufferers to their own cure.





sarisbaris

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Re: Has anyone had continued success with gabapentin or Botox injections?

Post  sarisbaris on Wed Oct 18, 2017 4:47 am

Also...

Only buy the brands of supplements he recommends, he’s right. They work. No one gets $ from these recommendations. I wasted a bunch of money in the beginning. http://www.medicalmedium.com/preferred/supplements

I know his stuff pretty well. I’m not a practitioner just someone who has figured out lady part problems. Sigh. Let me know if you have any questions.

sarisbaris

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Re: Has anyone had continued success with gabapentin or Botox injections?

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