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Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

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7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 4

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

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New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5


Has anyone had continued success with gabapentin or Botox injections?

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Has anyone had continued success with gabapentin or Botox injections?

Post  lcd77 on Thu Oct 12, 2017 12:55 am

I was diagnosed with vulvodynia vestibulitus approximately 9 -10 months ago but I have had it for a year. I have been taking Gabapentin and it has helped more than anything else. Also tried Botox injections but my doctor didn't give enough to tell the difference. I can tell that it is getting worse continually and I really need a doctor that knows what they are doing. Where do you find experts in this field? I live in Texas.

lcd77

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Re: Has anyone had continued success with gabapentin or Botox injections?

Post  sarisbaris on Wed Oct 18, 2017 4:44 am

I battled V for 15 years. I now consider myself cured. It wasn’t by accident. After 20+ western docs, I realized they couldn’t help. I saw countless alternative. Some helped by none cured. I followed the information from Anthony William. This is no joke. His advice cured it.

According to AW, 90% of vaginal burning cases are caused by an unknown/undetectable (with current tests) strain of strep. The other 10% is a strain of am unknown/undetectable (with current tests) strain of shingles. I had strep in the inside and shingles on the outside. How do I know I had these, if there are no tests? Well I tried his protocol and supplements for the viruses I thought I had and they worked. First I followed his advice on strep. That cured the burning inside. I also had a rash sometimes on the outside, I used lobelia which he recommends and that cured it on contact. No joke. It came back a few times but lobelia would alway fix it. Now I don’t have any flare ups of either. So I did it backwards.

First, you need to educate yourself. Go to my blog and scroll down to necessary reading section. Read/listen to the show/blog on strep, epstein barr, shingles, metal detox and even the UTI show will help. In the UTI show he explains an ice therapy that I think would calm your nerves. The EBV show that doesn’t sound related at all but if strep is present then EBV is the foundation virus opening the door and allowing all this to happen. The metals feed strep and EBV. So you’ll need to do a metal detox, so listen to that show as well.

According to Anthony William, 90% of vaginal burning cases are strep. 10% can be an unknown strain of shingles. So listen to that show as well.

Shows/pages that will help:
http://www.medicalmedium.com/blog/streptococcus-revealed
https://soundcloud.com/asha-bhuyan/medical-medium-uti?
http://www.medicalmedium.com/blog/epstein-barr-virus-revealed
http://www.medicalmedium.com/blog/heavy-metal-detox
http://www.medicalmedium.com/blog/shingles-virus

My blog: http://myvulvodyniacure.blogspot.com/2016/12/if-you-are-in-pain.html

While you are educating yourself do these things now:
AVOID: eggs, dairy, wheat, corn, aluminium foil, water that is not filtered, canola oil (which is in almost everything)
SUPPLEMENTS: licorice root, lemon balm and nettleleaf (3 cups a day), esther C, cat’s claw (if you are not planning to get pregnant), golden seal (2 times a day, 2 weeks on 2 weeks off),
A green juice would also help. Celery juice is great. Celery/cucumber/parsley or cilantro. See metal detox.
FOODS: Note all the foods he recommends. They make a difference. Daily food sample: lemon water/honey upon waking, green juice, then smoothie, salad for lunch… veggies heal.

I understand you are looking for a doctor who understand what's going on. But their tests are inadequate so they can't even detect these viruses. I spent years dealing with doctors. I live in Northern California and I have been to the best of the best in SF. At the time I was 3 months pregnant and they couldn't do a damn thing. I crushed the dreams of an internist when her supervisor told me there was nothing they could do besides give me steroids that I guessed would harm the baby. They also tried to give me prozac because they said it helps with pain. I think my doctor was lying because there is a high rate of suicides with V patients. For the obvious reasons. A few years later, they learned that prozac causes birth defects. But at this point, I already knew they couldn't help. I was just seeing the doctors to get extra time off. Anyway... I write all this because I want to save you time and agony. I cried after so many doctors appointments, I lost count. The best ones, just say there is nothing they can do and I agree and move on. Those were the best appointments.

Anyway, I am healed. Truly healed. Try this stuff above and let me know if you have any questions. Keep in touch because I'm trying to gather those who have been healed using Anthony's advice so once you are healed we can help lead other V sufferers to their own cure.





sarisbaris

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Re: Has anyone had continued success with gabapentin or Botox injections?

Post  sarisbaris on Wed Oct 18, 2017 4:47 am

Also...

Only buy the brands of supplements he recommends, he’s right. They work. No one gets $ from these recommendations. I wasted a bunch of money in the beginning. http://www.medicalmedium.com/preferred/supplements

I know his stuff pretty well. I’m not a practitioner just someone who has figured out lady part problems. Sigh. Let me know if you have any questions.

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