Log in

I forgot my password

Latest topics
» I don't know what to do anymore
Yesterday at 5:05 am by SinclairSassy

» Social Security Disability Benefits
Tue May 22, 2018 7:22 pm by SinclairSassy

» Cleveland Clinic - Pain Management, Weston, FL
Tue May 22, 2018 7:13 pm by SinclairSassy

» Finally found a place for me...
Mon May 21, 2018 4:08 am by mtsp

» UK Vulvodynia Clinics
Sun May 20, 2018 9:58 am by katycrawford

» 8 years and struggling
Thu May 17, 2018 11:22 pm by Kezz

» Vestibulectomy recovery question!
Thu May 17, 2018 11:11 pm by Kezz

» Gabapentin Gel. or other topical creams
Thu May 17, 2018 11:55 am by Rosie21

» What has been helping ME (much less pain over time!!)
Wed May 16, 2018 3:43 am by leoscc

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 5

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14


Recent "Poke" Pain - So Confused/Losing My Mind

Go down

Recent "Poke" Pain - So Confused/Losing My Mind

Post  kelseybeth23 on Thu Oct 12, 2017 9:26 am

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was working out of town and couldn't get in to see my regular doctor, so I kind of just dealt with it. I had a LOT of discharge, like everywhere. Then, two days in a row I had the most intense, sharp pain I had ever had... I cried at work it hurt so bad. It was always most painful at work, when sitting. It was centralized pain... and it's in a weird location. The right side of my vagina (I honestly am not very familiar with the area and names, so I could be labeling it wrong) towards the "top" (that is what I call the area outside of the clitoris). I called my dr and got in the day after Labor Day. While there, she notated how red I was and how much discharge I had and diagnosed me with a yeast infection. I was given fluconazole (2 for 1 day, 1 for 7 days, and 1 a week for 3 weeks). Initially, this made me feel SO MUCH BETTER. All of the redness and pain did not go away, but it definitely dulled down a LOT. However, when I only had one pill left I called to ask for something else because the pulsing shock/prick feeling was coming back. I went back in, they swabbed me, and tested me for certain STD's and infections, and gave me a week's worth of metronidazole. (I did test positive for some bacterial infection). When I started taking it, the prick feeling did not go away, and I also started to feel worse (the corners of my mouth were cracking really bad, and no relief down there). I was HOPING it was a candida infection in my body, because changing my diet would be fine. However, I went back this week and I told her it wasn't going away, how it's more of a prickling feeling when I am sitting a certain way or if I put pressure on the triangle area down there. I told her I was starting to lose my mind, I couldn't sleep well because sleeping on my side was out of the question, it caused uncomfortable pressure and the prickling feeling, etc. I can't work out, which defines me, so I am getting really, really upset and in a dark place.

I also brought up the fact that I had read about neuraligia and pelvic floor entrapment and that I was terrified this is what I had. She prescribed me a new cream (picking up tomorrow) and lyrica to test. She said if the lyrica helped in a week, we would go from there, if it didn't, she would like to do more extensive tests for infections. I took lyrica Tuesday morning and I swear I felt better that evening (which made me more depressed because I really don't know how to handle a nerve issue). I hoped that my natural remedies and being done with the metronidazole was actually helping. So, I had taken two lyrica's on Tuesday and one Wednesday. I didn't take one Wednesday night because I felt 100% no prickling pain down there and I wanted to know if it was really the lyrica or everything else I was changing.

So here I am, Thursday morning at 422 am and the prickling feeling is back. I am freaked out. I don't know how/if I can handle this diagnosis if it is a neuralgia. I am currently going through a divorce and am no sexually active so I am terrified (esp after a lot of online reading) that I will never be able to have happy sex again. I am 29 and things seem so dim to me right now, I don't know what to do. Any answers or ideas would be appreciated. Not only is this already a really depressing, stressful time for me, but the fact that I may have nerve damage (I don't get how) is making me lose my mind completely. I also am afraid of the side effects of weight gain and I can tell you that I have been sleepy for two days, the two days I did take Lyrica. My sister tried to easy my mind and say how one pill probably wouldn't have worked that fast, but why the heck am I prickling again down there when I stopped taking it just last night? I just don't know...

kelseybeth23

Posts : 2
Join date : 2017-10-12

View user profile

Back to top Go down

Re: Recent "Poke" Pain - So Confused/Losing My Mind

Post  Angelmegs on Sat Oct 14, 2017 5:34 pm

The amount of times I’ve cried over this pain... I get it. I’m so sorry you’re going through this too. One common thread I’m seeing in many posts is that we were all told it was yeast originally. And if it was yeast, symptoms never went away. It’s gotten so bad that I can’t wear pants or underwear. Has anything helped at all? Even slight relief?

Sent from Topic'it App
avatar
Angelmegs

Posts : 5
Join date : 2017-10-14

View user profile

Back to top Go down

Re: Recent "Poke" Pain - So Confused/Losing My Mind

Post  sarisbaris on Tue Oct 17, 2017 4:52 am

I battled V for 15 years. I now consider myself cured. It wasn’t by accident. After 20+ western docs, I realized they couldn’t help. I saw countless alternative docs. Some helped by none cured. I followed the information from Anthony William. This is no joke. His advice cured it.

Ok… sounds like you’re battle an unknown/undetectable form of streptococcus. Yeast isn’t actually the infection. Your body produces yeast when strep is present. I’m also assuming that this virus or another one inflamed a nerve in your lady parts as well which would explain the sharp pain.

First, you need to educate yourself. Listen to the strep show and read the page. Follow the protocol. Next, listen to the UTI show. He takes about an ice therapy in this show that I think would calm that nerve. Next, listen to the EBV show that doesn’t sound related at all but if strep is present then EBV is the foundation virus opening the door and allowing all this to happen. Finally, listen to the metal detox show. Metal feeds strep and EBV. So you’ll need to do a metal detox. I added the neurological show that I thought might help.

Shows/pages that will help:
http://www.medicalmedium.com/blog/streptococcus-revealed
https://soundcloud.com/asha-bhuyan/medical-medium-uti?
http://www.medicalmedium.com/blog/epstein-barr-virus-revealed
http://www.medicalmedium.com/blog/heavy-metal-detox
http://www.medicalmedium.com/blog/healing-your-neurological-system

My blog: http://myvulvodyniacure.blogspot.com/2016/12/if-you-are-in-pain.html

While you are educating yourself do these things now:
AVOID: eggs, dairy, wheat, corn, aluminium foil, water that is not filtered, canola oil which is in almost everything. All these things feed strep.
SUPPLEMENTS: licorice root... try this first if you don’t see a difference in a day then try lemon balm and nettle-leaf (3 cups a day), esther C, cat’s claw (if you are not planning to get pregnant), golden seal (2 times a day, 2 weeks on 2 weeks off),
Douche with silver hydrosol, just use a small syringe. Will help with the yeast.
A green juice would also help. Celery juice is great. Celery/cucumber/parsley or cilantro. See metal detox.
FOODS: Note all the foods he recommends. They make a difference. Lemon water/honey upon waking, green juice, then smoothie, salad for lunch… veggies heal.

Only buy the ones he recommends, he’s right. They work. No one gets $ from these recommendations, just FYI. http://www.medicalmedium.com/preferred/supplements

I know his stuff pretty well. I’m not a practitioner just someone who has figured out lady part problems. Sigh. Let me know if you have any questions.

sarisbaris

Posts : 65
Join date : 2014-02-17

View user profile

Back to top Go down

Re: Recent "Poke" Pain - So Confused/Losing My Mind

Post  Angelmegs on Tue Oct 17, 2017 4:57 pm

Thank you so much... wow... I am absolutely going to research all of that and try what you said. I’ll let you know how it does. You seem very educated on this— do you think there’s any chance this relates to my diagnoses of narcolepsy and Lyme disease?

Sent from Topic'it App
avatar
Angelmegs

Posts : 5
Join date : 2017-10-14

View user profile

Back to top Go down

Re: Recent "Poke" Pain - So Confused/Losing My Mind

Post  kelseybeth23 on Tue Oct 17, 2017 5:10 pm

Hey sarisbaris,

I am also going to read what you wrote. I was planning on doing the candida diet to see if that helped but I think your idea sounds better. I went back to my dr bc the lyrica was helping, and she upped my dosage to 75mg twice a day. It's making it feel better, but I don't want a tempest fix. She scared me too, because she compared it to a shingles outbreak, and said it could last forever. I choose to be optimistic and try to find other solutions. Two months ago I felt great, and I will feel great again. Your information was so positive and I am so glad to have your experience, though I'm sad it bothered you for so long!!

kelseybeth23

Posts : 2
Join date : 2017-10-12

View user profile

Back to top Go down

Re: Recent "Poke" Pain - So Confused/Losing My Mind

Post  sarisbaris on Wed Oct 18, 2017 2:37 am

kelseybeth23,
So I did the candida diet the 2nd year in. It helps because you're cleaning up your diet but it didn't heal me. Once you learn from Anthony William's info, you'll understand why it helps but won't ultimately heal you. Yes, all my doctors saw no end to my pain in sight as well. When I was cured my Kaiser doctor was the one who actually told me to get online and try to spread the word about my experience. So don't be discouraged by the doctors. Unfortunately, doctors are going to be very pessimistic about healing because they have no idea what's going on. They know this even though most, except very experience ones, will state this. It's hard on us and them, to be in the dark.

Angelmegs,
So I couldn't find anything about narcolepsy in his current info but yes, lyme disease can be EBV or shingles. Strep is usually present when EBV is present and V can be caused by strep or shingles. There are many varieties of these viruses and our current tests can't detect them. And no, as you probably guessed lyme is not from you getting a tick in the forest. A tick bite can just be a trigger/final straw weakening your body to succumb to the virus that has been there awhile. Which makes sense cause I have friends who have lyme who live in the city and swear they never got a tick bite. All of these things are related. Just like your gut and common sense is telling you.

Here's his show on lyme.
https://soundcloud.com/medicalmedium/medical-medium-lyme-disease

Please keep in touch! Let me know if you have any questions, I know his stuff really well. But again, I am not a practitioner, just a survivor Wink I am attempting to gather a community of V survivors so once healed, we can continue to spread the word to those still battling V.

sarisbaris

Posts : 65
Join date : 2014-02-17

View user profile

Back to top Go down

Re: Recent "Poke" Pain - So Confused/Losing My Mind

Post  Sponsored content


Sponsored content


Back to top Go down

Back to top


 
Permissions in this forum:
You cannot reply to topics in this forum