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Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

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7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

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Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

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Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

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New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

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Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

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New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

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Recent "Poke" Pain - So Confused/Losing My Mind

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Recent "Poke" Pain - So Confused/Losing My Mind

Post  kelseybeth23 on Thu Oct 12, 2017 9:26 am

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was working out of town and couldn't get in to see my regular doctor, so I kind of just dealt with it. I had a LOT of discharge, like everywhere. Then, two days in a row I had the most intense, sharp pain I had ever had... I cried at work it hurt so bad. It was always most painful at work, when sitting. It was centralized pain... and it's in a weird location. The right side of my vagina (I honestly am not very familiar with the area and names, so I could be labeling it wrong) towards the "top" (that is what I call the area outside of the clitoris). I called my dr and got in the day after Labor Day. While there, she notated how red I was and how much discharge I had and diagnosed me with a yeast infection. I was given fluconazole (2 for 1 day, 1 for 7 days, and 1 a week for 3 weeks). Initially, this made me feel SO MUCH BETTER. All of the redness and pain did not go away, but it definitely dulled down a LOT. However, when I only had one pill left I called to ask for something else because the pulsing shock/prick feeling was coming back. I went back in, they swabbed me, and tested me for certain STD's and infections, and gave me a week's worth of metronidazole. (I did test positive for some bacterial infection). When I started taking it, the prick feeling did not go away, and I also started to feel worse (the corners of my mouth were cracking really bad, and no relief down there). I was HOPING it was a candida infection in my body, because changing my diet would be fine. However, I went back this week and I told her it wasn't going away, how it's more of a prickling feeling when I am sitting a certain way or if I put pressure on the triangle area down there. I told her I was starting to lose my mind, I couldn't sleep well because sleeping on my side was out of the question, it caused uncomfortable pressure and the prickling feeling, etc. I can't work out, which defines me, so I am getting really, really upset and in a dark place.

I also brought up the fact that I had read about neuraligia and pelvic floor entrapment and that I was terrified this is what I had. She prescribed me a new cream (picking up tomorrow) and lyrica to test. She said if the lyrica helped in a week, we would go from there, if it didn't, she would like to do more extensive tests for infections. I took lyrica Tuesday morning and I swear I felt better that evening (which made me more depressed because I really don't know how to handle a nerve issue). I hoped that my natural remedies and being done with the metronidazole was actually helping. So, I had taken two lyrica's on Tuesday and one Wednesday. I didn't take one Wednesday night because I felt 100% no prickling pain down there and I wanted to know if it was really the lyrica or everything else I was changing.

So here I am, Thursday morning at 422 am and the prickling feeling is back. I am freaked out. I don't know how/if I can handle this diagnosis if it is a neuralgia. I am currently going through a divorce and am no sexually active so I am terrified (esp after a lot of online reading) that I will never be able to have happy sex again. I am 29 and things seem so dim to me right now, I don't know what to do. Any answers or ideas would be appreciated. Not only is this already a really depressing, stressful time for me, but the fact that I may have nerve damage (I don't get how) is making me lose my mind completely. I also am afraid of the side effects of weight gain and I can tell you that I have been sleepy for two days, the two days I did take Lyrica. My sister tried to easy my mind and say how one pill probably wouldn't have worked that fast, but why the heck am I prickling again down there when I stopped taking it just last night? I just don't know...

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Re: Recent "Poke" Pain - So Confused/Losing My Mind

Post  Angelmegs on Sat Oct 14, 2017 5:34 pm

The amount of times I’ve cried over this pain... I get it. I’m so sorry you’re going through this too. One common thread I’m seeing in many posts is that we were all told it was yeast originally. And if it was yeast, symptoms never went away. It’s gotten so bad that I can’t wear pants or underwear. Has anything helped at all? Even slight relief?

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Re: Recent "Poke" Pain - So Confused/Losing My Mind

Post  sarisbaris on Tue Oct 17, 2017 4:52 am

I battled V for 15 years. I now consider myself cured. It wasn’t by accident. After 20+ western docs, I realized they couldn’t help. I saw countless alternative docs. Some helped by none cured. I followed the information from Anthony William. This is no joke. His advice cured it.

Ok… sounds like you’re battle an unknown/undetectable form of streptococcus. Yeast isn’t actually the infection. Your body produces yeast when strep is present. I’m also assuming that this virus or another one inflamed a nerve in your lady parts as well which would explain the sharp pain.

First, you need to educate yourself. Listen to the strep show and read the page. Follow the protocol. Next, listen to the UTI show. He takes about an ice therapy in this show that I think would calm that nerve. Next, listen to the EBV show that doesn’t sound related at all but if strep is present then EBV is the foundation virus opening the door and allowing all this to happen. Finally, listen to the metal detox show. Metal feeds strep and EBV. So you’ll need to do a metal detox. I added the neurological show that I thought might help.

Shows/pages that will help:
http://www.medicalmedium.com/blog/streptococcus-revealed
https://soundcloud.com/asha-bhuyan/medical-medium-uti?
http://www.medicalmedium.com/blog/epstein-barr-virus-revealed
http://www.medicalmedium.com/blog/heavy-metal-detox
http://www.medicalmedium.com/blog/healing-your-neurological-system

My blog: http://myvulvodyniacure.blogspot.com/2016/12/if-you-are-in-pain.html

While you are educating yourself do these things now:
AVOID: eggs, dairy, wheat, corn, aluminium foil, water that is not filtered, canola oil which is in almost everything. All these things feed strep.
SUPPLEMENTS: licorice root... try this first if you don’t see a difference in a day then try lemon balm and nettle-leaf (3 cups a day), esther C, cat’s claw (if you are not planning to get pregnant), golden seal (2 times a day, 2 weeks on 2 weeks off),
Douche with silver hydrosol, just use a small syringe. Will help with the yeast.
A green juice would also help. Celery juice is great. Celery/cucumber/parsley or cilantro. See metal detox.
FOODS: Note all the foods he recommends. They make a difference. Lemon water/honey upon waking, green juice, then smoothie, salad for lunch… veggies heal.

Only buy the ones he recommends, he’s right. They work. No one gets $ from these recommendations, just FYI. http://www.medicalmedium.com/preferred/supplements

I know his stuff pretty well. I’m not a practitioner just someone who has figured out lady part problems. Sigh. Let me know if you have any questions.

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Re: Recent "Poke" Pain - So Confused/Losing My Mind

Post  Angelmegs on Tue Oct 17, 2017 4:57 pm

Thank you so much... wow... I am absolutely going to research all of that and try what you said. I’ll let you know how it does. You seem very educated on this— do you think there’s any chance this relates to my diagnoses of narcolepsy and Lyme disease?

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Re: Recent "Poke" Pain - So Confused/Losing My Mind

Post  kelseybeth23 on Tue Oct 17, 2017 5:10 pm

Hey sarisbaris,

I am also going to read what you wrote. I was planning on doing the candida diet to see if that helped but I think your idea sounds better. I went back to my dr bc the lyrica was helping, and she upped my dosage to 75mg twice a day. It's making it feel better, but I don't want a tempest fix. She scared me too, because she compared it to a shingles outbreak, and said it could last forever. I choose to be optimistic and try to find other solutions. Two months ago I felt great, and I will feel great again. Your information was so positive and I am so glad to have your experience, though I'm sad it bothered you for so long!!

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Re: Recent "Poke" Pain - So Confused/Losing My Mind

Post  sarisbaris on Wed Oct 18, 2017 2:37 am

kelseybeth23,
So I did the candida diet the 2nd year in. It helps because you're cleaning up your diet but it didn't heal me. Once you learn from Anthony William's info, you'll understand why it helps but won't ultimately heal you. Yes, all my doctors saw no end to my pain in sight as well. When I was cured my Kaiser doctor was the one who actually told me to get online and try to spread the word about my experience. So don't be discouraged by the doctors. Unfortunately, doctors are going to be very pessimistic about healing because they have no idea what's going on. They know this even though most, except very experience ones, will state this. It's hard on us and them, to be in the dark.

Angelmegs,
So I couldn't find anything about narcolepsy in his current info but yes, lyme disease can be EBV or shingles. Strep is usually present when EBV is present and V can be caused by strep or shingles. There are many varieties of these viruses and our current tests can't detect them. And no, as you probably guessed lyme is not from you getting a tick in the forest. A tick bite can just be a trigger/final straw weakening your body to succumb to the virus that has been there awhile. Which makes sense cause I have friends who have lyme who live in the city and swear they never got a tick bite. All of these things are related. Just like your gut and common sense is telling you.

Here's his show on lyme.
https://soundcloud.com/medicalmedium/medical-medium-lyme-disease

Please keep in touch! Let me know if you have any questions, I know his stuff really well. But again, I am not a practitioner, just a survivor Wink I am attempting to gather a community of V survivors so once healed, we can continue to spread the word to those still battling V.

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