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» Diagnosed Recently
Thu Feb 14, 2019 10:35 am by davesjen

» New and need advice and help
Wed Feb 13, 2019 4:42 am by feeling desperate

» New here would very much appreciate advice at the end of my rope
Wed Feb 13, 2019 4:33 am by feeling desperate

» MonaLisa Touch
Sat Feb 09, 2019 7:46 am by Julquint

» New member desperate need of other vulvadynia sufferers
Sat Feb 09, 2019 2:09 am by Tfc13

» The pain CAN get better - What's worked for me
Sat Feb 09, 2019 12:17 am by Ginger

» Remission and relapse and again and again
Thu Feb 07, 2019 5:10 am by mary jane

» Long term pain after partial vestibulectomy?
Wed Feb 06, 2019 5:56 am by mary jane

» Recovery story please read !!
Fri Feb 01, 2019 5:33 am by mary jane

Diagnosed Recently

Tue Jan 08, 2019 7:55 am by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 7:26 am by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 1:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3

MonaLisa Touch

Fri Feb 08, 2019 11:35 am by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 1

New member desperate need of other vulvadynia sufferers

Fri Feb 08, 2019 10:55 am by Tfc13

Hi there hope some1 reading this is going through the same shit as me!, I'm new to this so don't really know where to start , I'm Teresa , I've just been diagnosed with vestibular vulvadynia , after countless appointments with GPS being misdiagnosed, tested for god knows everything , eventually under my gynochologist ,who done all her necessary tests, I now have been given a diagnosis I'm in …

Comments: 5

Looking for suggestions or encouragement

Fri Jan 12, 2018 4:10 pm by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 7

I'm new to this forum and would love some advice! :)

Mon Jun 04, 2018 9:13 pm by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 1:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

Comments: 0

Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 2:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 3


you can be healed so easy and quite fast.

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you can be healed so easy and quite fast.

Post  pussycat on Thu Apr 26, 2018 4:46 pm

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened me so much. I was young and the idea of spending the rest of my life in bed terrified me! Today i am sharing this info with you in hope, so you and other people know they can recover, just like i did. I did research and found out about oxalate diet. I decided and went on low oxalate diet only, i had no tablets to take, no medicine at all, just diet. Within a short time i was totally pain free, all of a sudden no pain. I had many symptoms besides V and they too totally gone! I no longer have V and i just want to help as many women as possible.

Have a nice evening and good bye.

pussycat

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Re: you can be healed so easy and quite fast.

Post  mary jane on Sat Apr 28, 2018 11:06 am

pussycat wrote:Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened me so much. I was young and the idea of spending the rest of my life in bed terrified me! Today i am sharing this info with you in hope, so you and other people know they can recover, just like i did. I did research and found out about oxalate diet. I decided and went on low oxalate diet only, i had no tablets to take, no medicine at all, just diet. Within a short time i was totally pain free, all of a sudden no pain. I had many symptoms besides V and they too totally gone! I no longer have V and i just want to help as many women as possible.

Have a nice evening and good bye.


thank you for sharing, I hope someone can be helped with this story.

Can you describe the pain you had ? not everyone has the same symptoms so no all-universal cure
mary jane
mary jane

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symptoms

Post  pussycat on Sat Apr 28, 2018 2:42 pm

I had these symptoms: a very strong pain in "down there", like i was stabbed with a big, sharp knife many times at once inside my private part and then like someone poured acid in that place. I was getting worst as time passed and soon I could not even sit or stand or walk and not even swim in a swimming pool, i had to stop it as well. On top of that i had painful eyes, i have been to all eye doctors i could find in this area and non of them found anything wrong with me. I had this painful eyes as soon, as i was walking towards the bathroom in a morning just after i had a night sleep. It seems i had no reason to have bad eyes, cos i had a sleep earlier, but no, i had this strange pain, like a multitude small broken pieces of glass was in my eyes. I also had hot flashes sometimes, even though i was too young to have them. And very often i woke up in a morning in cold sweat.I was also at that time overweight
Do you have these symptoms? Do not be put off from my humble advise about the diet that i did, even if you have different symptoms. You still could have oxalates build up, like me. Oxalates can be build up in susceptible people in various/different parts of the body( not just kidney and "down there"),so there for, you can have different symptoms to mine. But you may recover through this diet, especially if you just have too much oxalates in your body. I hate to see many women sick, like i was. And it is the point i am wanting to help someone.

Have a good night.


pussycat

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Re: you can be healed so easy and quite fast.

Post  mary jane on Sun Apr 29, 2018 2:31 am

pussycat wrote:I had these symptoms: a very strong pain in "down there", like i was stabbed with a big, sharp knife many times at once inside my private part and then like someone poured acid in that place. I was getting worst as time passed and soon I could not even sit or stand or walk and not even swim in a swimming pool, i had to stop it as well. On top of that i had painful eyes, i have been to all eye   doctors i could find in this area and non of them found anything wrong with me. I had this painful eyes as soon, as i was walking towards the bathroom in a morning just after i had a night sleep. It seems i had no reason to have bad eyes, cos i had a sleep earlier, but no, i had this strange pain, like a multitude small broken pieces of glass was in my eyes. I also had hot flashes sometimes, even though i was too young to have them. And very often i woke up in a morning in cold sweat.I was also at  that time overweight
Do you have these symptoms? Do not be put off from my humble advise about the diet that i did, even if you have different symptoms. You still could have oxalates build up, like me. Oxalates can be build up in susceptible people in various/different parts of the body( not just kidney and "down there"),so there for, you can have different symptoms to mine. But you may recover through this diet, especially if you just have too much oxalates in your body. I hate to see many women sick, like i was. And it is the point i am  wanting to help someone.

Have a good night.

   

thank you for sharing, that is very helpful for us here.
I am currently pain-free using amitriptyline, I have vulvodynia as a result of too many procedures on my bartholin glands, combined with a predisposition for anxiety which doesn't help.

thank you once again for sharing, I know how good this diet is for relief and cure!
mary jane
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Re: you can be healed so easy and quite fast.

Post  pussycat on Sun Apr 29, 2018 11:36 am

The diet i suggested is low oxalate diet, not just diet, avoiding 5 foods, mentioned on this forum. 5 foods to avoid- diet is all good for inflammation, but it is not a low oxalate diet in particular. I was on a strictly low oxalate diet, which was not that hard and i never took any medications, no supplements, no acupuncture, no any other fancy treatment known on earth at all! And i was complectly free from all my symptoms within only a month! I now eat again anything i want and i have no V or any other weird symptoms, that i used to have!

Mary-Jane, are you sure your over treatments lead you to have V, not your anxieties? I myself have and had tendencies towards anxiety. But i had nothing wrong in my body prior to my V to suggest it lead to V. However, i had big anxiety at a time prior to V. That's why i think it is my anxiety developed into V, acting as a catalyst or a real trigger. Sure i had oxalate build up as well, but the final trigger of V was stress/ anxiety.

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Re: you can be healed so easy and quite fast.

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