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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

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Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

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I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35


you can be healed so easy and quite fast.

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you can be healed so easy and quite fast.

Post  pussycat on Thu Apr 26, 2018 11:46 pm

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened me so much. I was young and the idea of spending the rest of my life in bed terrified me! Today i am sharing this info with you in hope, so you and other people know they can recover, just like i did. I did research and found out about oxalate diet. I decided and went on low oxalate diet only, i had no tablets to take, no medicine at all, just diet. Within a short time i was totally pain free, all of a sudden no pain. I had many symptoms besides V and they too totally gone! I no longer have V and i just want to help as many women as possible.

Have a nice evening and good bye.

pussycat

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Re: you can be healed so easy and quite fast.

Post  mary jane on Sat Apr 28, 2018 6:06 pm

pussycat wrote:Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened me so much. I was young and the idea of spending the rest of my life in bed terrified me! Today i am sharing this info with you in hope, so you and other people know they can recover, just like i did. I did research and found out about oxalate diet. I decided and went on low oxalate diet only, i had no tablets to take, no medicine at all, just diet. Within a short time i was totally pain free, all of a sudden no pain. I had many symptoms besides V and they too totally gone! I no longer have V and i just want to help as many women as possible.

Have a nice evening and good bye.


thank you for sharing, I hope someone can be helped with this story.

Can you describe the pain you had ? not everyone has the same symptoms so no all-universal cure
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mary jane

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symptoms

Post  pussycat on Sat Apr 28, 2018 9:42 pm

I had these symptoms: a very strong pain in "down there", like i was stabbed with a big, sharp knife many times at once inside my private part and then like someone poured acid in that place. I was getting worst as time passed and soon I could not even sit or stand or walk and not even swim in a swimming pool, i had to stop it as well. On top of that i had painful eyes, i have been to all eye doctors i could find in this area and non of them found anything wrong with me. I had this painful eyes as soon, as i was walking towards the bathroom in a morning just after i had a night sleep. It seems i had no reason to have bad eyes, cos i had a sleep earlier, but no, i had this strange pain, like a multitude small broken pieces of glass was in my eyes. I also had hot flashes sometimes, even though i was too young to have them. And very often i woke up in a morning in cold sweat.I was also at that time overweight
Do you have these symptoms? Do not be put off from my humble advise about the diet that i did, even if you have different symptoms. You still could have oxalates build up, like me. Oxalates can be build up in susceptible people in various/different parts of the body( not just kidney and "down there"),so there for, you can have different symptoms to mine. But you may recover through this diet, especially if you just have too much oxalates in your body. I hate to see many women sick, like i was. And it is the point i am wanting to help someone.

Have a good night.


pussycat

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Re: you can be healed so easy and quite fast.

Post  mary jane on Sun Apr 29, 2018 9:31 am

pussycat wrote:I had these symptoms: a very strong pain in "down there", like i was stabbed with a big, sharp knife many times at once inside my private part and then like someone poured acid in that place. I was getting worst as time passed and soon I could not even sit or stand or walk and not even swim in a swimming pool, i had to stop it as well. On top of that i had painful eyes, i have been to all eye   doctors i could find in this area and non of them found anything wrong with me. I had this painful eyes as soon, as i was walking towards the bathroom in a morning just after i had a night sleep. It seems i had no reason to have bad eyes, cos i had a sleep earlier, but no, i had this strange pain, like a multitude small broken pieces of glass was in my eyes. I also had hot flashes sometimes, even though i was too young to have them. And very often i woke up in a morning in cold sweat.I was also at  that time overweight
Do you have these symptoms? Do not be put off from my humble advise about the diet that i did, even if you have different symptoms. You still could have oxalates build up, like me. Oxalates can be build up in susceptible people in various/different parts of the body( not just kidney and "down there"),so there for, you can have different symptoms to mine. But you may recover through this diet, especially if you just have too much oxalates in your body. I hate to see many women sick, like i was. And it is the point i am  wanting to help someone.

Have a good night.

   

thank you for sharing, that is very helpful for us here.
I am currently pain-free using amitriptyline, I have vulvodynia as a result of too many procedures on my bartholin glands, combined with a predisposition for anxiety which doesn't help.

thank you once again for sharing, I know how good this diet is for relief and cure!
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Re: you can be healed so easy and quite fast.

Post  pussycat on Sun Apr 29, 2018 6:36 pm

The diet i suggested is low oxalate diet, not just diet, avoiding 5 foods, mentioned on this forum. 5 foods to avoid- diet is all good for inflammation, but it is not a low oxalate diet in particular. I was on a strictly low oxalate diet, which was not that hard and i never took any medications, no supplements, no acupuncture, no any other fancy treatment known on earth at all! And i was complectly free from all my symptoms within only a month! I now eat again anything i want and i have no V or any other weird symptoms, that i used to have!

Mary-Jane, are you sure your over treatments lead you to have V, not your anxieties? I myself have and had tendencies towards anxiety. But i had nothing wrong in my body prior to my V to suggest it lead to V. However, i had big anxiety at a time prior to V. That's why i think it is my anxiety developed into V, acting as a catalyst or a real trigger. Sure i had oxalate build up as well, but the final trigger of V was stress/ anxiety.

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Re: you can be healed so easy and quite fast.

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