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Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 4

Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 2

6 year sufferer but I’ve found some hope

Wed Oct 10, 2018 1:33 am by Npage14

Hey, ladies! I’m new to this support group, I’ve thought about doing something like this for a while so I wanted to try this out! I’ve had vulvodynia for 6 years now, I am self diagnosed. I’m 20 now and the pain started when I had my first encounter with sexual contact when I was 14(I still remained a virgin though it was fingering). For a couple years the pain was so bad I could hardly …

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Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 1

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 6


you can be healed so easy and quite fast.

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you can be healed so easy and quite fast.

Post  pussycat on Thu Apr 26, 2018 11:46 pm

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened me so much. I was young and the idea of spending the rest of my life in bed terrified me! Today i am sharing this info with you in hope, so you and other people know they can recover, just like i did. I did research and found out about oxalate diet. I decided and went on low oxalate diet only, i had no tablets to take, no medicine at all, just diet. Within a short time i was totally pain free, all of a sudden no pain. I had many symptoms besides V and they too totally gone! I no longer have V and i just want to help as many women as possible.

Have a nice evening and good bye.

pussycat

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Re: you can be healed so easy and quite fast.

Post  mary jane on Sat Apr 28, 2018 6:06 pm

pussycat wrote:Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened me so much. I was young and the idea of spending the rest of my life in bed terrified me! Today i am sharing this info with you in hope, so you and other people know they can recover, just like i did. I did research and found out about oxalate diet. I decided and went on low oxalate diet only, i had no tablets to take, no medicine at all, just diet. Within a short time i was totally pain free, all of a sudden no pain. I had many symptoms besides V and they too totally gone! I no longer have V and i just want to help as many women as possible.

Have a nice evening and good bye.


thank you for sharing, I hope someone can be helped with this story.

Can you describe the pain you had ? not everyone has the same symptoms so no all-universal cure
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mary jane

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symptoms

Post  pussycat on Sat Apr 28, 2018 9:42 pm

I had these symptoms: a very strong pain in "down there", like i was stabbed with a big, sharp knife many times at once inside my private part and then like someone poured acid in that place. I was getting worst as time passed and soon I could not even sit or stand or walk and not even swim in a swimming pool, i had to stop it as well. On top of that i had painful eyes, i have been to all eye doctors i could find in this area and non of them found anything wrong with me. I had this painful eyes as soon, as i was walking towards the bathroom in a morning just after i had a night sleep. It seems i had no reason to have bad eyes, cos i had a sleep earlier, but no, i had this strange pain, like a multitude small broken pieces of glass was in my eyes. I also had hot flashes sometimes, even though i was too young to have them. And very often i woke up in a morning in cold sweat.I was also at that time overweight
Do you have these symptoms? Do not be put off from my humble advise about the diet that i did, even if you have different symptoms. You still could have oxalates build up, like me. Oxalates can be build up in susceptible people in various/different parts of the body( not just kidney and "down there"),so there for, you can have different symptoms to mine. But you may recover through this diet, especially if you just have too much oxalates in your body. I hate to see many women sick, like i was. And it is the point i am wanting to help someone.

Have a good night.


pussycat

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Re: you can be healed so easy and quite fast.

Post  mary jane on Sun Apr 29, 2018 9:31 am

pussycat wrote:I had these symptoms: a very strong pain in "down there", like i was stabbed with a big, sharp knife many times at once inside my private part and then like someone poured acid in that place. I was getting worst as time passed and soon I could not even sit or stand or walk and not even swim in a swimming pool, i had to stop it as well. On top of that i had painful eyes, i have been to all eye   doctors i could find in this area and non of them found anything wrong with me. I had this painful eyes as soon, as i was walking towards the bathroom in a morning just after i had a night sleep. It seems i had no reason to have bad eyes, cos i had a sleep earlier, but no, i had this strange pain, like a multitude small broken pieces of glass was in my eyes. I also had hot flashes sometimes, even though i was too young to have them. And very often i woke up in a morning in cold sweat.I was also at  that time overweight
Do you have these symptoms? Do not be put off from my humble advise about the diet that i did, even if you have different symptoms. You still could have oxalates build up, like me. Oxalates can be build up in susceptible people in various/different parts of the body( not just kidney and "down there"),so there for, you can have different symptoms to mine. But you may recover through this diet, especially if you just have too much oxalates in your body. I hate to see many women sick, like i was. And it is the point i am  wanting to help someone.

Have a good night.

   

thank you for sharing, that is very helpful for us here.
I am currently pain-free using amitriptyline, I have vulvodynia as a result of too many procedures on my bartholin glands, combined with a predisposition for anxiety which doesn't help.

thank you once again for sharing, I know how good this diet is for relief and cure!
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Re: you can be healed so easy and quite fast.

Post  pussycat on Sun Apr 29, 2018 6:36 pm

The diet i suggested is low oxalate diet, not just diet, avoiding 5 foods, mentioned on this forum. 5 foods to avoid- diet is all good for inflammation, but it is not a low oxalate diet in particular. I was on a strictly low oxalate diet, which was not that hard and i never took any medications, no supplements, no acupuncture, no any other fancy treatment known on earth at all! And i was complectly free from all my symptoms within only a month! I now eat again anything i want and i have no V or any other weird symptoms, that i used to have!

Mary-Jane, are you sure your over treatments lead you to have V, not your anxieties? I myself have and had tendencies towards anxiety. But i had nothing wrong in my body prior to my V to suggest it lead to V. However, i had big anxiety at a time prior to V. That's why i think it is my anxiety developed into V, acting as a catalyst or a real trigger. Sure i had oxalate build up as well, but the final trigger of V was stress/ anxiety.

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Re: you can be healed so easy and quite fast.

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