Log in

I forgot my password

Similar topics
Latest topics
» 7 months since the diagnosis
you can be healed so easy and quite fast.   EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
you can be healed so easy and quite fast.   EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
you can be healed so easy and quite fast.   EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
you can be healed so easy and quite fast.   EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
you can be healed so easy and quite fast.   EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

» Vestibulectomy next week in London!! - questions!!
you can be healed so easy and quite fast.   EmptyWed Apr 24, 2019 8:32 pm by HedvigB

» Dating with Vulvodynia and Vaginismus advice
you can be healed so easy and quite fast.   EmptyFri Apr 19, 2019 10:25 pm by Tartufo

» Research Participants Needed!
you can be healed so easy and quite fast.   EmptyThu Apr 11, 2019 2:09 pm by PelvicPainProject

» Does anyone else have Endometriosis?
you can be healed so easy and quite fast.   EmptyMon Apr 08, 2019 7:54 am by Jo44

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


you can be healed so easy and quite fast.

Go down

you can be healed so easy and quite fast.   Empty you can be healed so easy and quite fast.

Post  pussycat on Thu Apr 26, 2018 11:46 pm

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened me so much. I was young and the idea of spending the rest of my life in bed terrified me! Today i am sharing this info with you in hope, so you and other people know they can recover, just like i did. I did research and found out about oxalate diet. I decided and went on low oxalate diet only, i had no tablets to take, no medicine at all, just diet. Within a short time i was totally pain free, all of a sudden no pain. I had many symptoms besides V and they too totally gone! I no longer have V and i just want to help as many women as possible.

Have a nice evening and good bye.

pussycat

Posts : 6
Join date : 2018-04-26

View user profile

Back to top Go down

you can be healed so easy and quite fast.   Empty Re: you can be healed so easy and quite fast.

Post  mary jane on Sat Apr 28, 2018 6:06 pm

pussycat wrote:Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened me so much. I was young and the idea of spending the rest of my life in bed terrified me! Today i am sharing this info with you in hope, so you and other people know they can recover, just like i did. I did research and found out about oxalate diet. I decided and went on low oxalate diet only, i had no tablets to take, no medicine at all, just diet. Within a short time i was totally pain free, all of a sudden no pain. I had many symptoms besides V and they too totally gone! I no longer have V and i just want to help as many women as possible.

Have a nice evening and good bye.


thank you for sharing, I hope someone can be helped with this story.

Can you describe the pain you had ? not everyone has the same symptoms so no all-universal cure
mary jane
mary jane

Posts : 345
Join date : 2013-10-05
Location : UK

View user profile

Back to top Go down

you can be healed so easy and quite fast.   Empty symptoms

Post  pussycat on Sat Apr 28, 2018 9:42 pm

I had these symptoms: a very strong pain in "down there", like i was stabbed with a big, sharp knife many times at once inside my private part and then like someone poured acid in that place. I was getting worst as time passed and soon I could not even sit or stand or walk and not even swim in a swimming pool, i had to stop it as well. On top of that i had painful eyes, i have been to all eye doctors i could find in this area and non of them found anything wrong with me. I had this painful eyes as soon, as i was walking towards the bathroom in a morning just after i had a night sleep. It seems i had no reason to have bad eyes, cos i had a sleep earlier, but no, i had this strange pain, like a multitude small broken pieces of glass was in my eyes. I also had hot flashes sometimes, even though i was too young to have them. And very often i woke up in a morning in cold sweat.I was also at that time overweight
Do you have these symptoms? Do not be put off from my humble advise about the diet that i did, even if you have different symptoms. You still could have oxalates build up, like me. Oxalates can be build up in susceptible people in various/different parts of the body( not just kidney and "down there"),so there for, you can have different symptoms to mine. But you may recover through this diet, especially if you just have too much oxalates in your body. I hate to see many women sick, like i was. And it is the point i am wanting to help someone.

Have a good night.


pussycat

Posts : 6
Join date : 2018-04-26

View user profile

Back to top Go down

you can be healed so easy and quite fast.   Empty Re: you can be healed so easy and quite fast.

Post  mary jane on Sun Apr 29, 2018 9:31 am

pussycat wrote:I had these symptoms: a very strong pain in "down there", like i was stabbed with a big, sharp knife many times at once inside my private part and then like someone poured acid in that place. I was getting worst as time passed and soon I could not even sit or stand or walk and not even swim in a swimming pool, i had to stop it as well. On top of that i had painful eyes, i have been to all eye   doctors i could find in this area and non of them found anything wrong with me. I had this painful eyes as soon, as i was walking towards the bathroom in a morning just after i had a night sleep. It seems i had no reason to have bad eyes, cos i had a sleep earlier, but no, i had this strange pain, like a multitude small broken pieces of glass was in my eyes. I also had hot flashes sometimes, even though i was too young to have them. And very often i woke up in a morning in cold sweat.I was also at  that time overweight
Do you have these symptoms? Do not be put off from my humble advise about the diet that i did, even if you have different symptoms. You still could have oxalates build up, like me. Oxalates can be build up in susceptible people in various/different parts of the body( not just kidney and "down there"),so there for, you can have different symptoms to mine. But you may recover through this diet, especially if you just have too much oxalates in your body. I hate to see many women sick, like i was. And it is the point i am  wanting to help someone.

Have a good night.

   

thank you for sharing, that is very helpful for us here.
I am currently pain-free using amitriptyline, I have vulvodynia as a result of too many procedures on my bartholin glands, combined with a predisposition for anxiety which doesn't help.

thank you once again for sharing, I know how good this diet is for relief and cure!
mary jane
mary jane

Posts : 345
Join date : 2013-10-05
Location : UK

View user profile

Back to top Go down

you can be healed so easy and quite fast.   Empty Re: you can be healed so easy and quite fast.

Post  pussycat on Sun Apr 29, 2018 6:36 pm

The diet i suggested is low oxalate diet, not just diet, avoiding 5 foods, mentioned on this forum. 5 foods to avoid- diet is all good for inflammation, but it is not a low oxalate diet in particular. I was on a strictly low oxalate diet, which was not that hard and i never took any medications, no supplements, no acupuncture, no any other fancy treatment known on earth at all! And i was complectly free from all my symptoms within only a month! I now eat again anything i want and i have no V or any other weird symptoms, that i used to have!

Mary-Jane, are you sure your over treatments lead you to have V, not your anxieties? I myself have and had tendencies towards anxiety. But i had nothing wrong in my body prior to my V to suggest it lead to V. However, i had big anxiety at a time prior to V. That's why i think it is my anxiety developed into V, acting as a catalyst or a real trigger. Sure i had oxalate build up as well, but the final trigger of V was stress/ anxiety.

pussycat

Posts : 6
Join date : 2018-04-26

View user profile

Back to top Go down

you can be healed so easy and quite fast.   Empty Re: you can be healed so easy and quite fast.

Post  Sponsored content


Sponsored content


Back to top Go down

Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum